Hdsa.org - SEO Check

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Übersicht der SEO Analyse
Metaangaben
80% 
Seitenqualität
67% 
Seitenstruktur
55% 
Verlinkung
0% 
Server
87% 
Externe Faktoren
100% 
SEO Score
Antwortzeit
1,68 s
Dateigröße
252,60 kB
Wörter
7469
Medien
45
Anzahl Links
393 Intern / 212 Extern

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Meta-Angaben im HTML

Titel
(Extrem wichtig)
Huntington's Disease Society of America
Die Länge des Titels ist optimal. (364 Pixel von maximal 580 Pixel Länge)
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(Extrem wichtig)
Die Meta-Description fehlt.
Crawlbarkeit
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Es gibt keine Probleme beim Zugriff auf die Webseite.
Canonical Link
(Wichtig)
https://hdsa.org/
Die Seite hat einen korrekten Canonical Link.
Sprache
(Wenig wichtig)
Im Text erkannte Sprache: en
Im HTML angegebene Sprache: en-us
Serverstandort: Vereinigte Staaten von Amerika
Die Sprache wird im HTML Code wie folgt angegeben: en-us
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Die Domain ist keine Subdomain.
Die Länge der Domain ist gut.
Die Domain enthält keine Umlaute.
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In der URL wurden keine Parameter entdeckt.
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Seitenqualität

Inhalt
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Der Seiteninhalt ist mit 7469 Wörtern sehr lang. Es macht eventuell Sinn den Text auf mehrere Seiten aufzuteilen.
Der Text besteht zu 17.6% aus Füllwörtern.
Worte aus dem Titel werden im Text wiederholt.
Wörter aus der H1 Überschrift werden im Text der Seite verwendet.
Im Text befindet sich eine Aufzählung, dies deutet auf eine gute Textstruktur hin.
Es wurden 19 Fließtextblöcke auf der Seite gefunden.
Es wurden keine Platzhalter Texte bzw. Bilder gefunden.
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Die durchschnittliche Satzlänge ist mit 21.47 Wörtern gut.
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Die Seite hat kein Frameset.
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Es ist kein Apple-Touch Icon angegeben.
Der angegebene Viewport (width=device-width, initial-scale=1) ist korrekt.
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Es befinden sich leere Tags auf der Seite.
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Medienliste

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Video-URLBreiteHöhe
https://www.youtube.com/embed/ej7-OhSb4H0560315

Seitenstruktur

H1 Überschrift
(Extrem wichtig)
2024 Amaryllis
Die H1-Überschrift ist zu kurz (14 Zeichen). Sie sollte mindestens 20 Zeichen lang sein.
Überschriften
(Wichtig)
Einige Überschriftentexte kommen doppelt auf der Seite vor.
Es befinden sich 474 Überschriften auf der Seite. Die Anzahl der Überschriften sollte in einem besseren Verhältnis zum Text stehen.

Überschriftenstruktur

Überschriften HierarchieInhalt
H1 2024 Amaryllis
H1 GIVING TUESDAY 2024!
H1 JOIN POWER HD
H1 HD Symptoms and Treatment Impact Survey
H1 2023 HDSA ANNUAL REPORT
H2 SAVE THE DATE!
H2 HDSA Publishes 2023 Year In Review Magazine
H2 HDSA Centers of Excellence Program Expands to 68 Sites
H2 The Marker: 2023 HDSA Research Report
H2 INTRODUCING THE HDSA PODCAST
H2 HDSA SOCIAL WORKERS
H2 HDSA SUPPORT GROUPS
H2 PARTICIPATE IN AN HDSA EVENT NEAR YOU
H2 New to HD
H2 Locate Resources
H2 Enroll in a Trial
H2 Donate to HDSA
H2 News
H2 Events
H2 Subscribe
H3 October 2024 HDSA TODAY Newsletter
H3 2023 HDSA Annual Report
H3 BLOG: This Week in HD Research
H3 We Need Your Voice! Take The HD Symptoms And Treatment Impact Survey
H3 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS
H3 HDSA Awards Six 2024 Donald A. King Summer Research Fellowships
H3 uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease
H3 Farewell & Leadership Transition at HDSA
H3 Wave Life Sciences Update: Results from SELECT-HD Community Letter
H3 PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter
H3 HDSA Podcast- New Episode Now Available!
H3 A message from Louise Vetter, President & CEO
H3 Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA
H3 HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting
H3 Now Accepting Human Biology Project LOIs
H3 Act Fast: Early Bird Rate for HDSA Convention Ends March 31st!
H3 HDSA Publishes 2023 Year in Review
H3 Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pridopidine.
H3 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES
H3 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN
H3 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN
H3 ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication
H3 uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
H3 uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
H3 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
H3 TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA
H3 Now Accepting 2024 HDSA Centers of Excellence Applications
H3 2022 HDSA Annual Report
H3 BLOG: Disability Tips
H3 FREEZE HD Update
H3 HDSA Earns Four-Star Rating From Charity Navigator
H3 Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference
H3 uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy Text-Duplikat
H3 uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease Text-Duplikat
H3 Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship
H3 HDSA Partnership with Rare-X Community Letter & FAQ
H3 HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease
H3 Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
H3 HDSA Awards Four 2023 Donald A. King Summer Research Fellowships
H3 HDBUZZ: PROOF-HD study of pridopidine ends with negative result
H3 Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD.
H3 The HDSA Podcast Episode #3
H3 Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets
H3 HDBuzz: Roche Phase II GENERATION HD2 study underway
H3 Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US
H3 Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease
H3 HDSA Publishes 2022 Year in Review Magazine
H3 Introducing The HDSA Podcast
H3 Roche-Genentech Community Letter: GENERATION HD2 study now open
H3 38th Annual HDSA Convention in New Orleans Registration Now Open
H3 The Marker: HDSA’s 2022 Research Report is now available
H3 HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families
H3 HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
H3 Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease
H3 Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees
H3 Team HDSA Raises More Than $100,000 at the New York City Marathon
H3 Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine
H3 HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects
H3 Breaking News: uniQure provides update on AMT-130
H3 Eighth Annual Freeze HD Raises More Than $200,000
H3 PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518
H3 Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD
H3 HDSA Publishes 2021 Annual Report
H3 HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
H3 Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
H3 BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
H3 HDSA Disability Chat: JHD & Social Security
H3 HDSA Research Webinar: All You Need To Know About PROOF-HD
H3 HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
H3 Novartis Provides Community Update Regarding VIBRANT-HD
H3 HDSA Research Webinar: HD Clinical Trials Update
H3 Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
H3 Sage Therapeutics Provides Positive Update on the SURVEYOR Study
H3 HDSA Films presents KING’S CRUSADE (Part 2)
H3 HDSA Statement Regarding VIBRANT-HD Trial
H3 uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
H3 HDSA Films presents KING’S CRUSADE (Part 1)
H3 Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
H3 HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
H3 uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
H3 HDBuzz: How clever computers are helping us understand Huntington’s disease
H3 New system that defines Huntington’s disease will ‘revolutionise’ drug trials
H3 HDBuzz: A new roadmap to track Huntington’s disease progression
H3 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
H3 Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
H3 HDSA Films presents THE STORY OF E.J. + KATY
H3 HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
H3 HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
H3 PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
H3 HDBuzz: A spoonful of branaplam helps the huntingtin go down
H3 HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
H3 HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
H3 HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
H3 Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
H3 HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
H3 Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
H3 uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
H3 HDBuzz: Oral drug may change the story for huntingtin lowering
H3 Register Today for the 37th Annual HDSA Convention in Atlanta
H3 HDSA Publishes 2021 Year In Review Magazine
H3 BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
H3 VIDEO: Roche Community Presentation of New Tominersen Data
H3 BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
H3 Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment
H3 VIDEO: Happy Holidays from Louise Vetter
H3 uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
H3 The Marker is Now Available! Read HDSA’s 2021 Research Report
H3 Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
H3 Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
H3 HDSA Coffee Walk with Jennifer Simpson
H3 TAKE ACTION: HDSA’s 7 Days of Action
H3 HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
H3 HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
H3 More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
H3 HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
H3 Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
H3 HDSA Awards $749,000 to HD Human Biology Projects
H3 HDBuzz: Q&A with Roche about GENERATION-HD1
H3 HDSA Publishes 2020 Annual Report
H3 Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
H3 Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
H3 HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
H3 HDBuzz: Unpacking Recent Gene Therapy Press
H3 Update from Voyager Therapeutics
H3 HDSA Films Presents The Osborns: Our Legacy
H3 VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
H3 HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
H3 HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
H3 NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
H3 Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
H3 HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
H3 HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
H3 uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
H3 HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
H3 HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
H3 HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
H3 HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
H3 HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
H3 Now Accepting 2021 National Award Nominations
H3 uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
H3 Register Today For Free | Virtual 36th Annual HDSA Convention
H3 HDBuzz: Wave Life Sciences PRECISION-HD Trials
H3 Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
H3 VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
H3 RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
H3 HDBuzz: Sad News From Roche
H3 Roche Provides a Disappointing Update on Tominersen
H3 HDSA Reintroduces the HD Parity Act
H3 HDSA Films presents My Father, My Hero
H3 Now Accepting 2021 Human Biology Project Letters of Intent
H3 HDBuzz: Vaccines and HD
H3 The 36th Annual HDSA Convention Goes Virtual!
H3 HDSA Expands Centers of Excellence Program to Fifty-Four Sites
H3 HDSA Publishes 2020 Year In Review Magazine
H3 Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
H3 Happy New Year!
H3 NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
H3 HDSA Publishes The Marker: 2020 Research Report
H3 HDSA Awards Four HD Human Biology Project Fellowships For 2020
H3 HDBUZZ: Updates from the EHDN Plenary Meeting 2020
H3 VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
H3 HDSA Publishes 2019 Annual Report
H3 HDBuzz: When genes are unstable: Targeting somatic instability in HD
H3 NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
H3 HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
H3 HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
H3 Anne Leserman announces her retirement from HDSA
H3 Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
H3 NEW EPISODE: Here’s The Deal with End of Life & HD
H3 Huntington’s Disease Featured on ABC News Live Prime
H3 HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
H3 uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
H3 Virtual HDSA Convention Recorded Sessions Now Available
H3 Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
H3 HDSA Supports The Fight Against Racism
H3 Register for the Virtual 35th Annual HDSA Convention
H3 Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
H3 HDSA Awards Berman-Topper Family HD Career Development Fellowship
H3 International Huntington’s Disease Awareness Day – May 15th
H3 HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
H3 COMMUNITY STATEMENT: Update On Tominersen (RG6042)
H3 NEW EPISODE: Here’s The Deal with Self-Care
H3 HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
H3 HD & COVID-19 PANDEMIC RESOURCES
H3 NEW EPISODE: Here’s The Deal with COVID-19 & HD
H3 FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
H3 Community Statement
H3 NEW EPISODE: Here’s The Deal with Disability
H3 HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
H3 HDSA Community Update: HD & COVID-19
H3 HDSA Community Update
H3 HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
H3 HDSA Convention Community Statement
H3 HDBuzz: Day 3 at HD Therapeutics Conference
H3 HDSA Films Presents ALLIE & JOE
H3 HDBuzz: Day 2 at HD Therapeutics Conference
H3 HDBuzz: Day 1 at HD Therapeutics Conference
H3 HDSA Announces Fifty 2020 Centers of Excellence
H3 HDSA Publishes 2019 Year In Review Magazine
H3 REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
H3 Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
H3 Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
H3 HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
H3 HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
H3 HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
H3 HDSA Welcomes Three Trustees to National Board
H3 HDSA Publishes The Marker – 2019 Research Report
H3 HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
H3 HDSA Awards Five 2019 HD Human Biology Project Fellowships
H3 Community Statement from Roche / Genentech
H3 View 5th Annual Freeze HD Red Carpet and Event Photos
H3 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
H3 2018 HDSA Annual Report
H3 HDBUZZ: Exciting New Huntingtin Lowering Tool Described
H3 Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
H3 VIDEO: Here’s The Deal With Caregiving While Positive
H3 VIDEO: 34th Annual HDSA Convention Recap
H3 HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
H3 Community Statement from uniQure
H3 HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
H3 HDSA Adds Allison Bartlett as Manager of Disability Programs
H3 HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
H3 Huntington’s Disease Parity Act Is Reintroduced
H3 HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
H3 Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
H3 HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
H3 HDSA Films Presents “The Hodgsons” Short Film
H3 Update on PRECISION-HD program
H3 BLOG: This Week in HD Research Text-Duplikat
H3 HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
H3 COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
H3 HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
H3 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
H3 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
H3 Huntington’s Disease Featured On The Today Show
H3 HDSA Expands Centers of Excellence Program to Forty-Seven
H3 HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
H3 First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
H3 HDSA Publishes 2018 Year In Review Magazine
H3 uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
H3 HDSA Launches Youth Social Worker Program
H3 BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
H3 HDSA’s 2018 Research Report Now Available
H3 EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
H3 HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
H3 Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
H3 HDSA Awards Five HD Human Biology Project Fellowships for 2018
H3 FAQs: Upcoming Genentech/Roche Studies
H3 HDBuzz: Kids Get Huntington’s Disease Too
H3 RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
H3 HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
H3 Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
H3 Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
H3 Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
H3 IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
H3 Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
H3 HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
H3 VIDEO: 33rd Annual HDSA Convention Recap
H3 33rd Annual HDSA Convention Recap
H3 VIDEO: HD Buzz at the 33rd Annual HDSA Convention
H3 VIDEO: 33rd Annual HDSA Convention Research Forum
H3 VIDEO: 33rd Annual HDSA Convention Opening Ceremony
H3 Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
H3 HDSA Awards Berman-Topper Family HD Career Development Fellowship Text-Duplikat
H3 FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
H3 New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
H3 HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
H3 Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
H3 HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
H3 VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
H3 HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
H3 HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
H3 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
H3 IONIS-HTT Rx Community Statement
H3 IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
H3 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
H3 HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
H3 HDSA Announces Forty-Three Centers of Excellence
H3 CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
H3 FAQs: Ionis Huntingtin-Lowering Trial
H3 Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
H3 BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
H3 Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
H3 HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
H3 HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
H3 HDBUZZ: Switch off the genome editor when you’re done
H3 Update confirms Huntington’s disease ‘gene silencing’ trial on track
H3 Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
H3 HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
H3 Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
H3 Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
H3 HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
H3 HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
H3 Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
H3 Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s dise...
H3 Exciting News: IONIS provides update on Huntingtin lowering trial
H3 HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
H3 New study reveals a potential HD biomarker
H3 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
H3 Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
H3 Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
H3 Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
H3 Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
H3 Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
H3 Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
H3 Huntington’s Disease Therapeutics Conference 2017 – Day 3
H3 Huntington’s Disease Therapeutics Conference 2017 – Day 2
H3 Huntington’s Disease Therapeutics Conference 2017 – Day 1
H3 Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
H3 Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
H3 HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
H3 Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
H3 2017 National Awards Nominations
H3 Save the Date- For the largest global gathering of the HD community!
H3 Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
H3 Weeding out the truth: can cannabis improve Huntington’s?
H3 Huntingtin grabs a hammer: DNA repair in HD
H3 The benefits of migration, highlighted in Huntington’s disease
H3 Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
H3 Huntington’s Disease Society of America Unveils HDNavigator Mobile App
H3 HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
H3 Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
H3 HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
H3 Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
H3 HDSA Earns Top-Rating from CharityWatch
H3 Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
H3 Important advances in next generation genome editing tools for Huntington’s Disease
H3 HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
H3 EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
H3 Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
H3 New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
H3 HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
H3 Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
H3 A support system gone wrong – glial cells contribute to HD symptoms
H3 Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
H3 Huntington’s Disease Community Scores Major Victory with Social Security Criteria
H3 Slightly long CAG repeats are more common than we thought
H3 Early exposure to the HD protein may cause life-long symptoms
H3 WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
H3 Electron beam snaps best images yet of Huntington’s disease protein
H3 Select Videos From HDSA’s 31st Annual Convention Now Available
H3 Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
H3 Huntingtin takes a trip: harmful proteins pass between brain cells
H3 Watch us Live from the 31st Annual HDSA Convention
H3 HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
H3 Postcard from Palm Springs
H3 Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
H3 Important drug targets yielded by new genetic study of HD
H3 Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
H3 Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
H3 Thinking clearly about the earliest symptoms of HD and which brain regions control them
H3 Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
H3 2016 HDSA NATIONAL AWARDS NOMINATIONS
H3 How NOT to write a news article about a clinical trial
H3 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
H3 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
H3 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
H3 Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
H3 Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
H3 Harnessing the power of viruses to treat Huntington’s disease
H3 Through a Broader Lens: Looking at Non-Motor Symptoms in HD
H3 HDSA Releases 2015 Year in Review
H3 HDSA Releases 2015 Research Investor’s Report
H3 Looking Past the Spin: Results from a Clinical Trial of Cysteamine
H3 An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
H3 Raptor Plans to Advance RP103 in a Registration Study
H3 New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
H3 Through the eyes of a friend: changes in mood and behavior in early HD
H3 Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
H3 Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
H3 A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
H3 Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
H3 Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
H3 Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
H3 HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
H3 HDBuzz primer: Clinical trial designs and phases
H3 Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
H3 FDA Opens 60 Day Open Comment Period
H3 Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
H3 HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
H3 CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
H3 Deadline To Tell Us Your Thoughts Has Been Extended!
H3 HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
H3 Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
H3 Scientists identify genetic factors that alter the clinical onset of HD in landmark study
H3 Would ewe believe it? GM1, sheep and Huntington’s disease
H3 ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
H3 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
H3 Calling all HD families: Our time to be heard is now!
H3 Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
H3 HDSA Supports 21st Century Cures Act
H3 NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
H3 Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
H3 HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
H3 2015 Postcard from Palm Springs
H3 HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
H3 2015 Huntington’s Disease Therapeutics Conference and taking part in trials
H3 Gene variant determines early or late onset of Huntington’s disease
H3 Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
H3 Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
H3 Lighting the way: A new biomarker for Huntington’s disease
H3 Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
H3 New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
H3 Law Enforcement Toolkit II Webinar Now Available
H3 Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
H3 Huntington’s Disease Society of America Endorses Enroll-HD
H3 Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
H3 Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
H3 HDSA appoints Director of Marketing & Communications
H3 World leader in movement disorders Professor Ira Shoulson joins Prana Board
H3 Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
H3 Huntington’s Disease Society of America Launches First “HD News” App
H3 2CARE HD Clinical Trial Stopped Early for Lack of Benefit
H3 HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
H3 Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
H3 Huntington’s Disease Society of America Awards Additional HD Human Biology Project
H3 Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
H3 Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
H3 Anne Schneider’s 30th Birthday Fundraiser
H3 2024 HDSA Hope League – Fantasy Football
H3 2024 Team Hope Walk – Las Vegas (shelter on the east side of the lake on the south end of the park) , Las Vegas, NV 89107
H3 2024 Huntington’s Disease Education Day – Farmington, CT Cell and Genome Sciences Building, Edmund & Arlene Grossman Auditorium 400 Farmington Avenue , Farmington, CT 06030
H3 2024 High Trestle Trail Walk/Ride High Trestle Trail, IA , Madrid, IA
H3 2024 Education Day – Maine McKernan Hospitality Center 2 Fort Road, , South Portland, ME 04106
H3 2024 Shine A Light on HD: Bel-Air – October Garden in Bel Air Under the Stars , Bel Air, CA 1209
H3 2024 NorCal Celebration of Hope Boundary Oak Golf Course- 3800 Valley Vista Rd , Walnut Creek, CA 94598
H3 2024 Team Hope Walk – Austin, TX Martin Middle School - 1601 Haskell Street , Austin, TX 78702
H3 2024 Education Day – Fargo, ND Sanford Health Center - 2301 25th St South , Fargo, ND 58103
H3 2024 Rush University HD Patient & Family Symposium Rush Rubschlager Ambulatory Building - 1520 West Harrison 4th Floor , Chicago, IL 60612
H3 2024 Education Day – Mississippi Embassy Suites by Hilton Jackson North - 200 Township Ave , Ridgeland, MS 39157
H3 2024 Tee Off Fore HD – Topgolf Hillsboro, OR Toopgolf Hillsboro - 5505 NE Huffman St , Hillsboro, OR 97124
H3 2024 Celebration of Hope – Sparkle Chicago The Ivy Room - 12 East Ohio Street Suite 100 , Chicago, IL 60611
H3 2024 Team Hope Walk – Oklahoma Guthrie Green 111 Reconciliation Way , Tulsa, OK 74103
H3 Wood’s Warriors Strike Out Huntington’s Disease Family Bowlaway - 540 Fairground Hill RD. , Butler, PA 16001
H3 2024 Education Day – LA Hope & Cope 757 Westwood Plaza Tamkin Auditorium (Room B-130) , Los Angeles, CA 90095
H3 2024 Team Hope 5K – Greater North Texas Rose Rudman Park - 450 Shiloh Road , Tyler, TX 75703
H3 2024 Education Day – San Antonio, TX UT Health San Antonio, 8300 Floyd Curl Dr , San Antonio, TX 78229
H3 2024 Education Day – New Hampshire 70 Constitution Ave , Concord, NH 03301
H3 2024 Wisconsin State Conference Tundra Lodge , Green Bay, WI 54304
H3 2024 Celebration of Hope Brunch & Brew – Central Ohio 96 Gender Rd - BrewDog DogTap Columbus , Canal Winchester, OH 43110
H3 2024 Team Hope Walk – North Carolina Morrisville Community Park,1520 Morrisville Pkwy , Morrisville, North Carolina 27560
H3 Northwestern Huntington’s Disease Patient Family Symposium Northwestern Medicine Prentice Women's Hospital, 250 E Superior St , Chicago, IL 60611
H3 2024 Education and Youth Day – MA / RI King Phillip High School - 18 King Street , Norfolk, MA 02056
H3 2024 Education Day – South Florida Hilton Garden Inn Tampa North - 3305 Tampa Oaks Blvd , Temple Terrace, FL 33637
H3 2024 Celebration of Hope – Iowa Disco Holiday Inn- Des Moines Mercy Campus 1050 6th Avenue , Des Moines, IA 50314
H3 2024 Team Hope Walk Anita Sabedra – Houston Middlebrook Greenbelt Park - 16203 Dunmoor Drive , Houston, TX 77059
H3 2024 Omaha Tailgate Party Skyybox Bar & Grill , 6720 S 168th St, Omaha 68135
H3 2024 Celebration of Hope – South Region Bonefish Grill - 12301 Lake Underhill Rd Suite 101 , Orlando, FL 32828
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/news/huntingtons-disease-soci...07/10/2024 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS
A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS
/news/hdsa-awards-six-2024-don...07/10/2024 HDSA Awards Six 2024 Donald A. King Summer Research Fellowships
A-TITLE HDSA Awards Six 2024 Donald A. King Summer Research Fellowships
/wp-content/uploads/2024/07/PR...07/09/2024 uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease
A-TITLE uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease
/news/farewell-leadership-tran...06/27/2024 Farewell & Leadership Transition at HDSA
A-TITLE Farewell & Leadership Transition at HDSA
/wp-content/uploads/2024/06/Wa...06/25/2024 Wave Life Sciences Update: Results from SELECT-HD Community Letter
A-TITLE Wave Life Sciences Update: Results from SELECT-HD Community Letter
/wp-content/uploads/2024/06/Ju...06/20/2024 PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter
A-TITLE PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter
https://thehdsapodcast.buzzspr...Extern Subdomain 06/12/2024 HDSA Podcast- New Episode Now Available!
A-TITLE HDSA Podcast- New Episode Now Available!
/wp-content/uploads/2024/05/HD...05/23/2024 A message from Louise Vetter, President & CEO
A-TITLE A message from Louise Vetter, President & CEO
/news/huntingtons-disease-awar...05/01/2024 Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA
A-TITLE Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA
/news/hdsa-to-host-externally-...04/16/2024 HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting
A-TITLE HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting
/hd-research/hd-human-biology-...04/05/2024 Now Accepting Human Biology Project LOIs
A-TITLE Now Accepting Human Biology Project LOIs
https://www.hdsa.org/ConventionSubdomain 03/27/2024 Act Fast: Early Bird Rate for HDSA Convention Ends March 31st!
A-TITLE Act Fast: Early Bird Rate for HDSA Convention Ends March 31st!
https://www.flipsnack.com/9CFB...Extern Subdomain 03/27/2024 HDSA Publishes 2023 Year in Review
A-TITLE HDSA Publishes 2023 Year in Review
/wp-content/uploads/2024/03/HD...03/12/2024 Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pr...
A-TITLE Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pridopidine.
/news/huntingtons-disease-soci...02/13/2024 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES
A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES
https://hdsa.org/news/dksr2024/01/09/2024 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN
A-TITLE 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN
/news/hdsa-berman-topper-famil...01/09/2024 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN
A-TITLE 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN
/wp-content/uploads/2023/12/Eo...12/20/2023 ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication
A-TITLE ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication
/wp-content/uploads/2023/12/PR...12/19/2023 uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
A-TITLE uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
/wp-content/uploads/2023/12/20...12/19/2023 uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
A-TITLE uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
/news/huntingtons-disease-soci...12/04/2023 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
/news/team-hdsa-raises-more-th...11/14/2023 TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA
A-TITLE TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA
/news/now-accepting-2024-hdsa-...10/13/2023 Now Accepting 2024 HDSA Centers of Excellence Applications
A-TITLE Now Accepting 2024 HDSA Centers of Excellence Applications
/annual-report-2022/10/06/2023 2022 HDSA Annual Report
A-TITLE 2022 HDSA Annual Report
https://hdsa.org/disability-tips/10/04/2023 BLOG: Disability Tips
A-TITLE BLOG: Disability Tips
/news/freeze-hd-update/10/02/2023 FREEZE HD Update
A-TITLE FREEZE HD Update
/news/huntingtons-disease-soci...09/18/2023 HDSA Earns Four-Star Rating From Charity Navigator
A-TITLE HDSA Earns Four-Star Rating From Charity Navigator
https://chdifoundation.org/all...Extern 08/02/2023 Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference
A-TITLE Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference
/wp-content/uploads/2023/06/20...06/21/2023 uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
A-TITLE uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
/wp-content/uploads/2023/06/PR...06/21/2023 uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
A-TITLE uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
/news/huntingtons-disease-soci...05/24/2023 Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship
A-TITLE Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship
/wp-content/uploads/2023/05/Ra...05/17/2023 HDSA Partnership with Rare-X Community Letter & FAQ
A-TITLE HDSA Partnership with Rare-X Community Letter & FAQ
/news/hdsa-and-rare-x-launch-h...05/17/2023 HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease
A-TITLE HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease
/wp-content/uploads/2023/05/Te...05/16/2023 Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
A-TITLE Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
/news/hdsa-awards-2023/05/08/2023 HDSA Awards Four 2023 Donald A. King Summer Research Fellowships
A-TITLE HDSA Awards Four 2023 Donald A. King Summer Research Fellowships
https://en.hdbuzz.net/342Extern Subdomain 04/26/2023 HDBUZZ: PROOF-HD study of pridopidine ends with negative result
A-TITLE HDBUZZ: PROOF-HD study of pridopidine ends with negative result
/wp-content/uploads/2023/04/Fi...04/25/2023 Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD.
A-TITLE Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD.
http://hdsa.org/podcast/03/28/2023 The HDSA Podcast Episode #3
A-TITLE The HDSA Podcast Episode #3
/news/eva-announces-fda-approv...02/21/2023 Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine...
A-TITLE Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets
https://en.hdbuzz.net/339Extern Subdomain 02/14/2023 HDBuzz: Roche Phase II GENERATION HD2 study underway
A-TITLE HDBuzz: Roche Phase II GENERATION HD2 study underway
/news/huntingtons-disease-soci...02/13/2023 Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US
A-TITLE Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US
https://hdsa.org/news/lvjhd/02/10/2023 Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease
A-TITLE Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease
/news/hdsa-publishes-2022-year...02/02/2023 HDSA Publishes 2022 Year in Review Magazine
A-TITLE HDSA Publishes 2022 Year in Review Magazine
https://hdsa.org/podcast/01/31/2023 Introducing The HDSA Podcast
A-TITLE Introducing The HDSA Podcast
/news/roche-genentech-communit...01/11/2023 Roche-Genentech Community Letter: GENERATION HD2 study now open
A-TITLE Roche-Genentech Community Letter: GENERATION HD2 study now open
/about-hdsa/annual-convention/01/03/2023 38th Annual HDSA Convention in New Orleans Registration Now Open
A-TITLE 38th Annual HDSA Convention in New Orleans Registration Now Open
/?smd_process_download=1&downl...12/21/2022 The Marker: HDSA’s 2022 Research Report is now available
A-TITLE The Marker: HDSA’s 2022 Research Report is now available
/news/hdsa-community-statement...12/20/2022 HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families
A-TITLE HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families
https://en.hdbuzz.net/338Extern Subdomain 12/09/2022 HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
A-TITLE HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
/news/novartis-provides-status...12/08/2022 Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease
A-TITLE Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease
/news/teresa-srajer-appointed-...12/06/2022 Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees
A-TITLE Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees
/news/team-hdsa-raises-more-th...11/21/2022 Team HDSA Raises More Than $100,000 at the New York City Marathon
A-TITLE Team HDSA Raises More Than $100,000 at the New York City Marathon
/news/neurocrine-biosciences-p...11/04/2022 Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine
A-TITLE Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine
/news/hdsa-awards-886785-to-hu...11/02/2022 HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects
A-TITLE HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects
/news/breaking-news-uniqure-pr...11/02/2022 Breaking News: uniQure provides update on AMT-130
A-TITLE Breaking News: uniQure provides update on AMT-130
/news/eighth-annual-freeze-hd-...10/25/2022 Eighth Annual Freeze HD Raises More Than $200,000
A-TITLE Eighth Annual Freeze HD Raises More Than $200,000
/news/ptc-provides-update-on-o...10/18/2022 PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518
A-TITLE PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518
/news/three-year-study-shows-t...10/18/2022 Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD
A-TITLE Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD
/wp-content/uploads/2022/09/HD...09/30/2022 HDSA Publishes 2021 Annual Report
A-TITLE HDSA Publishes 2021 Annual Report
https://en.hdbuzz.net/335Extern Subdomain 09/30/2022 HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
A-TITLE HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
/news/wave-life-sciences-annou...09/20/2022 Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
A-TITLE Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
/news/breaking-news-roche-gene...09/18/2022 BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
A-TITLE BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
https://www.youtube.com/watch?...Extern Subdomain 09/14/2022 HDSA Disability Chat: JHD & Social Security
A-TITLE HDSA Disability Chat: JHD & Social Security
https://www.youtube.com/watch?...Extern Subdomain 09/08/2022 HDSA Research Webinar: All You Need To Know About PROOF-HD
A-TITLE HDSA Research Webinar: All You Need To Know About PROOF-HD
https://en.hdbuzz.net/329Extern Subdomain 08/29/2022 HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
A-TITLE HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
/news/novartis-provides-commun...08/24/2022 Novartis Provides Community Update Regarding VIBRANT-HD
A-TITLE Novartis Provides Community Update Regarding VIBRANT-HD
/news/hdsa-research-webinar-hd...08/12/2022 HDSA Research Webinar: HD Clinical Trials Update
A-TITLE HDSA Research Webinar: HD Clinical Trials Update
/news/now-accepting-2023-hdsa-...08/11/2022 Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
A-TITLE Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
/news/sage-therapeutics-provid...08/10/2022 Sage Therapeutics Provides Positive Update on the SURVEYOR Study
A-TITLE Sage Therapeutics Provides Positive Update on the SURVEYOR Study
https://www.youtube.com/watch?...Extern Subdomain 08/10/2022 HDSA Films presents KING’S CRUSADE (Part 2)
A-TITLE HDSA Films presents KING’S CRUSADE (Part 2)
/news/hdsa-statement-regarding...08/09/2022 HDSA Statement Regarding VIBRANT-HD Trial
A-TITLE HDSA Statement Regarding VIBRANT-HD Trial
/news/uniqure-announces-second...08/09/2022 uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
A-TITLE uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
https://www.youtube.com/watch?...Extern Subdomain 07/26/2022 HDSA Films presents KING’S CRUSADE (Part 1)
A-TITLE HDSA Films presents KING’S CRUSADE (Part 1)
/news/highlights-from-chdis-17...07/12/2022 Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
A-TITLE Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
/news/hdsa-awards-2022-berman-...06/30/2022 HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
A-TITLE HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
/news/uniqure-announces-update...06/23/2022 uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
A-TITLE uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
https://en.hdbuzz.net/326Extern Subdomain 06/20/2022 HDBuzz: How clever computers are helping us understand Huntington’s disease
A-TITLE HDBuzz: How clever computers are helping us understand Huntington’s disease
/news/new-system-that-defines-...06/16/2022 New system that defines Huntington’s disease will ‘revolutionise’ drug trials
A-TITLE New system that defines Huntington’s disease will ‘revolutionise’ drug trials
https://en.hdbuzz.net/325Extern Subdomain 06/15/2022 HDBuzz: A new roadmap to track Huntington’s disease progression
A-TITLE HDBuzz: A new roadmap to track Huntington’s disease progression
/news/37th-annual-hdsa-convent...06/14/2022 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
A-TITLE 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
/news/annexon-biosciences-anno...06/07/2022 Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
A-TITLE Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
https://www.youtube.com/watch?...Extern Subdomain 05/28/2022 HDSA Films presents THE STORY OF E.J. + KATY
A-TITLE HDSA Films presents THE STORY OF E.J. + KATY
/news/hdsa-wins-2022-hd-hockey...05/20/2022 HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
A-TITLE HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
/news/hdsa-announces-winners-o...05/11/2022 HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
A-TITLE HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
https://ir.ptcbio.com/news-rel...Extern Subdomain 03/31/2022 PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
A-TITLE PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
https://en.hdbuzz.net/323Extern Subdomain 03/18/2022 HDBuzz: A spoonful of branaplam helps the huntingtin go down
A-TITLE HDBuzz: A spoonful of branaplam helps the huntingtin go down
https://en.hdbuzz.net/322Extern Subdomain 03/08/2022 HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
A-TITLE HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
https://en.hdbuzz.net/321Extern Subdomain 03/04/2022 HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
A-TITLE HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
https://en.hdbuzz.net/320Extern Subdomain 03/03/2022 HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
A-TITLE HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
/news/sage-therapeutics-provid...02/22/2022 Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
A-TITLE Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
https://en.hdbuzz.net/319?fbcl...Extern Subdomain 02/18/2022 HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
A-TITLE HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
/news/huntingtons-disease-soci...02/09/2022 Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
A-TITLE Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
/news/uniqure-announces-dosing...02/07/2022 uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
A-TITLE uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
/news/hdbuzz-oral-drug-may-cha...02/02/2022 HDBuzz: Oral drug may change the story for huntingtin lowering
A-TITLE HDBuzz: Oral drug may change the story for huntingtin lowering
/about-hdsa/annual-convention/02/01/2022 Register Today for the 37th Annual HDSA Convention in Atlanta
A-TITLE Register Today for the 37th Annual HDSA Convention in Atlanta
/wp-content/uploads/2022/01/HD...01/31/2022 HDSA Publishes 2021 Year In Review Magazine
A-TITLE HDSA Publishes 2021 Year In Review Magazine
/news/breaking-news-novartis-p...01/27/2022 BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
A-TITLE BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
https://www.youtube.com/watch?...Extern Subdomain 01/21/2022 VIDEO: Roche Community Presentation of New Tominersen Data
A-TITLE VIDEO: Roche Community Presentation of New Tominersen Data
/news/breaking-news-roche-has-...01/18/2022 BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
A-TITLE BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
/news/annexon-biosciences-repo...01/04/2022 Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following ...
A-TITLE Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month T...
https://www.youtube.com/watch?...Extern Subdomain 12/24/2021 VIDEO: Happy Holidays from Louise Vetter
A-TITLE VIDEO: Happy Holidays from Louise Vetter
/news/uniqure-announces-clinic...12/16/2021 uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
A-TITLE uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
/wp-content/uploads/2021/12/Th...12/08/2021 The Marker is Now Available! Read HDSA’s 2021 Research Report
A-TITLE The Marker is Now Available! Read HDSA’s 2021 Research Report
/news/neurocrine-biosciences-a...12/07/2021 Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
A-TITLE Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
/news/dr-jeff-carroll-dr-beth-...12/03/2021 Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
A-TITLE Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
https://www.youtube.com/watch?...Extern Subdomain 11/16/2021 HDSA Coffee Walk with Jennifer Simpson
A-TITLE HDSA Coffee Walk with Jennifer Simpson
https://hdsa.org/7daysofaction/11/15/2021 TAKE ACTION: HDSA’s 7 Days of Action
A-TITLE TAKE ACTION: HDSA’s 7 Days of Action
https://www.youtube.com/watch?...Extern Subdomain 11/12/2021 HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
A-TITLE HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
/news/hdsa-applauds-chairman-n...11/10/2021 HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
A-TITLE HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
/news/more-than-64000-raised-a...11/10/2021 More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
A-TITLE More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
/news/hdsa-welcomes-dr-arik-jo...11/01/2021 HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
A-TITLE HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
/news/virtual-7th-annual-freez...10/19/2021 Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
A-TITLE Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
/news/hdsa-awards-749000-to-hd...10/14/2021 HDSA Awards $749,000 to HD Human Biology Projects
A-TITLE HDSA Awards $749,000 to HD Human Biology Projects
https://en.hdbuzz.net/312Extern Subdomain 09/29/2021 HDBuzz: Q&A with Roche about GENERATION-HD1
A-TITLE HDBuzz: Q&A with Roche about GENERATION-HD1
/news/hdsa-publishes-2020-annu...09/22/2021 HDSA Publishes 2020 Annual Report
A-TITLE HDSA Publishes 2020 Annual Report
/news/sage-therapeutics-receiv...09/16/2021 Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
A-TITLE Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
/wp-content/uploads/2021/09/Ro...09/10/2021 Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
A-TITLE Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
/news/hdbuzz-creation-of-a-mol...08/30/2021 HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
A-TITLE HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
/news/hdbuzz-unpacking-recent-...08/16/2021 HDBuzz: Unpacking Recent Gene Therapy Press
A-TITLE HDBuzz: Unpacking Recent Gene Therapy Press
/news/update-from-voyager-ther...08/09/2021 Update from Voyager Therapeutics
A-TITLE Update from Voyager Therapeutics
https://www.youtube.com/watch?...Extern Subdomain 08/06/2021 HDSA Films Presents The Osborns: Our Legacy
A-TITLE HDSA Films Presents The Osborns: Our Legacy
/news/video-watch-kala-booth-d...08/04/2021 VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
A-TITLE VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
/news/hdsa-applauds-ec-subcomm...07/29/2021 HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
A-TITLE HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
https://en.hdbuzz.net/308Extern Subdomain 07/21/2021 HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
A-TITLE HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
https://vimeopro.com/user50548...Extern 07/02/2021 NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
A-TITLE NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
/news/virtual-36th-annual-hdsa...06/14/2021 Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
A-TITLE Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
/news/hdsa-awards-two-berman-t...06/12/2021 HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
A-TITLE HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
/news/hdsa-partners-with-patie...06/10/2021 HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
A-TITLE HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
/news/uniqures-amt-130-for-tre...05/28/2021 uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
A-TITLE uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
https://www.youtube.com/watch?...Extern Subdomain 04/30/2021 HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
A-TITLE HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
https://en.hdbuzz.net/306Extern Subdomain 04/30/2021 HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
A-TITLE HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
https://en.hdbuzz.net/305Extern Subdomain 04/29/2021 HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
A-TITLE HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
https://en.hdbuzz.net/304Extern Subdomain 04/28/2021 HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
A-TITLE HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
/news/hdsa-announces-winners-o...04/26/2021 HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
A-TITLE HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
https://fs22.formsite.com/hdsa...Extern Subdomain 04/21/2021 Now Accepting 2021 National Award Nominations
A-TITLE Now Accepting 2021 National Award Nominations
/wp-content/uploads/2021/04/20...04/05/2021 uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
A-TITLE uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
/about-hdsa/annual-convention/04/02/2021 Register Today For Free | Virtual 36th Annual HDSA Convention
A-TITLE Register Today For Free | Virtual 36th Annual HDSA Convention
https://en.hdbuzz.net/301Extern Subdomain 03/30/2021 HDBuzz: Wave Life Sciences PRECISION-HD Trials
A-TITLE HDBuzz: Wave Life Sciences PRECISION-HD Trials
/wp-content/uploads/2021/03/HD...03/29/2021 Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
A-TITLE Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
https://www.youtube.com/watch?...Extern Subdomain 03/26/2021 VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
A-TITLE VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
https://www.youtube.com/watch?...Extern Subdomain 03/25/2021 RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
A-TITLE RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
https://en.hdbuzz.net/300Extern Subdomain 03/23/2021 HDBuzz: Sad News From Roche
A-TITLE HDBuzz: Sad News From Roche
/wp-content/uploads/2021/03/To...03/22/2021 Roche Provides a Disappointing Update on Tominersen
A-TITLE Roche Provides a Disappointing Update on Tominersen
/news/hdsa-reintroduces-the-hd...03/19/2021 HDSA Reintroduces the HD Parity Act
A-TITLE HDSA Reintroduces the HD Parity Act
https://www.youtube.com/watch?...Extern Subdomain 03/18/2021 HDSA Films presents My Father, My Hero
A-TITLE HDSA Films presents My Father, My Hero
/news/now-accepting-2021-human...03/12/2021 Now Accepting 2021 Human Biology Project Letters of Intent
A-TITLE Now Accepting 2021 Human Biology Project Letters of Intent
https://en.hdbuzz.net/299Extern Subdomain 02/25/2021 HDBuzz: Vaccines and HD
A-TITLE HDBuzz: Vaccines and HD
/news/the-36th-annual-hdsa-con...02/18/2021 The 36th Annual HDSA Convention Goes Virtual!
A-TITLE The 36th Annual HDSA Convention Goes Virtual!
/news/hdsa-expands-centers-of-...02/02/2021 HDSA Expands Centers of Excellence Program to Fifty-Four Sites
A-TITLE HDSA Expands Centers of Excellence Program to Fifty-Four Sites
/wp-content/uploads/2021/02/HD...01/29/2021 HDSA Publishes 2020 Year In Review Magazine
A-TITLE HDSA Publishes 2020 Year In Review Magazine
/news/dr-victor-sung-named-cha...01/06/2021 Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
A-TITLE Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
https://www.youtube.com/watch?...Extern Subdomain 01/01/2021 Happy New Year!
A-TITLE Happy New Year!
https://www.youtube.com/watch?...Extern Subdomain 12/17/2020 NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
A-TITLE NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
/wp-content/uploads/2020/12/Th...12/10/2020 HDSA Publishes The Marker: 2020 Research Report
A-TITLE HDSA Publishes The Marker: 2020 Research Report
/news/hdsa-awards-four-hd-huma...12/03/2020 HDSA Awards Four HD Human Biology Project Fellowships For 2020
A-TITLE HDSA Awards Four HD Human Biology Project Fellowships For 2020
https://en.hdbuzz.net/293Extern Subdomain 10/06/2020 HDBUZZ: Updates from the EHDN Plenary Meeting 2020
A-TITLE HDBUZZ: Updates from the EHDN Plenary Meeting 2020
/news/virtual-6th-annual-freez...09/28/2020 VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
A-TITLE VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
/wp-content/uploads/2020/09/HD...09/10/2020 HDSA Publishes 2019 Annual Report
A-TITLE HDSA Publishes 2019 Annual Report
https://en.hdbuzz.net/291Extern Subdomain 08/26/2020 HDBuzz: When genes are unstable: Targeting somatic instability in HD
A-TITLE HDBuzz: When genes are unstable: Targeting somatic instability in HD
https://www.youtube.com/watch?...Extern Subdomain 08/25/2020 NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
A-TITLE NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
https://en.hdbuzz.net/290Extern Subdomain 08/18/2020 HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
A-TITLE HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
https://en.hdbuzz.net/289Extern Subdomain 08/14/2020 HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
A-TITLE HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
/news/anne-leserman-msw-announ...08/10/2020 Anne Leserman announces her retirement from HDSA
A-TITLE Anne Leserman announces her retirement from HDSA
/find-help/clinical-care-servi...07/28/2020 Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
A-TITLE Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
https://www.youtube.com/watch?...Extern Subdomain 07/22/2020 NEW EPISODE: Here’s The Deal with End of Life & HD
A-TITLE NEW EPISODE: Here’s The Deal with End of Life & HD
https://abcn.ws/2YUkn7wExtern 07/06/2020 Huntington’s Disease Featured on ABC News Live Prime
A-TITLE Huntington’s Disease Featured on ABC News Live Prime
https://highlandcountypress.co...Extern 06/24/2020 HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
A-TITLE HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
/wp-content/uploads/2020/06/PR...06/19/2020 uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
A-TITLE uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
/about-hdsa/annual-convention/...06/15/2020 Virtual HDSA Convention Recorded Sessions Now Available
A-TITLE Virtual HDSA Convention Recorded Sessions Now Available
/news/virtual-35th-annual-hdsa...06/10/2020 Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
A-TITLE Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
/news/hdsa-supports-the-fight-...06/03/2020 HDSA Supports The Fight Against Racism
A-TITLE HDSA Supports The Fight Against Racism
/about-hdsa/annual-convention/06/01/2020 Register for the Virtual 35th Annual HDSA Convention
A-TITLE Register for the Virtual 35th Annual HDSA Convention
https://player.vimeo.com/video...Extern Subdomain 05/29/2020 Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
A-TITLE Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
/news/hdsa-awards-berman-toppe...05/27/2020 HDSA Awards Berman-Topper Family HD Career Development Fellowship
A-TITLE HDSA Awards Berman-Topper Family HD Career Development Fellowship
/wp-content/uploads/2020/05/In...05/15/2020 International Huntington’s Disease Awareness Day – May 15th
A-TITLE International Huntington’s Disease Awareness Day – May 15th
/news/hdsa-announces-winners-o...05/07/2020 HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
A-TITLE HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
/wp-content/uploads/2020/04/Ro...04/20/2020 COMMUNITY STATEMENT: Update On Tominersen (RG6042)
A-TITLE COMMUNITY STATEMENT: Update On Tominersen (RG6042)
https://www.youtube.com/watch?...Extern Subdomain 04/17/2020 NEW EPISODE: Here’s The Deal with Self-Care
A-TITLE NEW EPISODE: Here’s The Deal with Self-Care
https://en.hdbuzz.net/284Extern Subdomain 04/06/2020 HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
A-TITLE HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
/news/hd-covid-19-pandemic-res...04/03/2020 HD & COVID-19 PANDEMIC RESOURCES
A-TITLE HD & COVID-19 PANDEMIC RESOURCES
https://www.youtube.com/watch?...Extern Subdomain 04/02/2020 NEW EPISODE: Here’s The Deal with COVID-19 & HD
A-TITLE NEW EPISODE: Here’s The Deal with COVID-19 & HD
/wp-content/uploads/2020/03/FA...03/27/2020 FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
A-TITLE FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
/wp-content/uploads/2020/03/Co...03/27/2020 Community Statement
A-TITLE Community Statement
https://www.youtube.com/watch?...Extern Subdomain 03/26/2020 NEW EPISODE: Here’s The Deal with Disability
A-TITLE NEW EPISODE: Here’s The Deal with Disability
/wp-content/uploads/2020/03/CO...03/20/2020 HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
A-TITLE HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
/wp-content/uploads/2020/03/CO...03/18/2020 HDSA Community Update: HD & COVID-19
A-TITLE HDSA Community Update: HD & COVID-19
/wp-content/uploads/2020/03/CO...03/13/2020 HDSA Community Update
A-TITLE HDSA Community Update
https://en.hdbuzz.net/283Extern Subdomain 03/13/2020 HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
A-TITLE HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
/wp-content/uploads/2020/03/CO...03/05/2020 HDSA Convention Community Statement
A-TITLE HDSA Convention Community Statement
https://en.hdbuzz.net/282Extern Subdomain 03/03/2020 HDBuzz: Day 3 at HD Therapeutics Conference
A-TITLE HDBuzz: Day 3 at HD Therapeutics Conference
https://www.youtube.com/watch?...Extern Subdomain 03/02/2020 HDSA Films Presents ALLIE & JOE
A-TITLE HDSA Films Presents ALLIE & JOE
https://en.hdbuzz.net/281Extern Subdomain 03/02/2020 HDBuzz: Day 2 at HD Therapeutics Conference
A-TITLE HDBuzz: Day 2 at HD Therapeutics Conference
https://en.hdbuzz.net/280?fbcl...Extern Subdomain 02/28/2020 HDBuzz: Day 1 at HD Therapeutics Conference
A-TITLE HDBuzz: Day 1 at HD Therapeutics Conference
/news/hdsa-announces-fifty-202...02/05/2020 HDSA Announces Fifty 2020 Centers of Excellence
A-TITLE HDSA Announces Fifty 2020 Centers of Excellence
/wp-content/uploads/2020/01/HD...01/17/2020 HDSA Publishes 2019 Year In Review Magazine
A-TITLE HDSA Publishes 2019 Year In Review Magazine
/about-hdsa/annual-convention/01/17/2020 REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
A-TITLE REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
/news/community-letter-from-wa...12/30/2019 Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
A-TITLE Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
/news/wave-life-sciences-annou...12/30/2019 Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
A-TITLE Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
/news/hdsa-earns-fourth-consec...12/23/2019 HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
A-TITLE HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
/news/hdsa-awards-inaugural-cl...12/23/2019 HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
A-TITLE HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
/news/hdsa-listed-in-top-10-vo...12/05/2019 HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
A-TITLE HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
/news/hdsa-welcomes-three-trus...11/27/2019 HDSA Welcomes Three Trustees to National Board
A-TITLE HDSA Welcomes Three Trustees to National Board
/wp-content/uploads/2019/11/HD...11/19/2019 HDSA Publishes The Marker – 2019 Research Report
A-TITLE HDSA Publishes The Marker – 2019 Research Report
/news/hdsas-new-york-city-mara...11/06/2019 HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
A-TITLE HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
/news/hdsa-awards-five-2019-hd...10/15/2019 HDSA Awards Five 2019 HD Human Biology Project Fellowships
A-TITLE HDSA Awards Five 2019 HD Human Biology Project Fellowships
/news/community-statement-from...10/15/2019 Community Statement from Roche / Genentech
A-TITLE Community Statement from Roche / Genentech
/news/view-5th-annual-freeze-h...10/01/2019 View 5th Annual Freeze HD Red Carpet and Event Photos
A-TITLE View 5th Annual Freeze HD Red Carpet and Event Photos
/news/5th-annual-freeze-hd-rai...10/01/2019 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
A-TITLE 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
/wp-content/uploads/2019/12/HD...09/11/2019 2018 HDSA Annual Report
A-TITLE 2018 HDSA Annual Report
https://en.hdbuzz.net/275Extern Subdomain 08/05/2019 HDBUZZ: Exciting New Huntingtin Lowering Tool Described
A-TITLE HDBUZZ: Exciting New Huntingtin Lowering Tool Described
https://fs22.formsite.com/hdsa...Extern Subdomain 07/30/2019 Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
A-TITLE Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
https://www.youtube.com/watch?...Extern Subdomain 07/23/2019 VIDEO: Here’s The Deal With Caregiving While Positive
A-TITLE VIDEO: Here’s The Deal With Caregiving While Positive
https://www.youtube.com/watch?...Extern Subdomain 07/15/2019 VIDEO: 34th Annual HDSA Convention Recap
A-TITLE VIDEO: 34th Annual HDSA Convention Recap
/news/hdsa-sets-new-attendance...07/01/2019 HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
A-TITLE HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
/news/community-statement-from...06/28/2019 Community Statement from uniQure
A-TITLE Community Statement from uniQure
/news/hdsa-chdi-foundation-lau...06/20/2019 HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
A-TITLE HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
/news/hdsa-adds-allison-bartle...06/11/2019 HDSA Adds Allison Bartlett as Manager of Disability Programs
A-TITLE HDSA Adds Allison Bartlett as Manager of Disability Programs
/news/hdsa-awards-2019-berman-...05/31/2019 HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
A-TITLE HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
https://kinzinger.house.gov/ne...Extern Subdomain 05/15/2019 Huntington’s Disease Parity Act Is Reintroduced
A-TITLE Huntington’s Disease Parity Act Is Reintroduced
https://en.hdbuzz.net/273?fbcl...Extern Subdomain 05/07/2019 HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
A-TITLE HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
https://player.vimeo.com/video...Extern Subdomain 04/18/2019 Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
A-TITLE Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
/news/hdsa-announces-winners-o...04/16/2019 HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
A-TITLE HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
https://www.youtube.com/watch?...Extern Subdomain 04/11/2019 HDSA Films Presents “The Hodgsons” Short Film
A-TITLE HDSA Films Presents “The Hodgsons” Short Film
/wp-content/uploads/2019/04/Wa...04/10/2019 Update on PRECISION-HD program
A-TITLE Update on PRECISION-HD program
https://hdsa.org/blog/04/04/2019 BLOG: This Week in HD Research
A-TITLE BLOG: This Week in HD Research
https://en.hdbuzz.net/272Extern Subdomain 03/22/2019 HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the A...
A-TITLE HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open lab...
/wp-content/uploads/2019/03/Ro...03/21/2019 COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
A-TITLE COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
https://en.hdbuzz.net/271Extern Subdomain 03/14/2019 HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
A-TITLE HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
https://en.hdbuzz.net/270Extern Subdomain 03/04/2019 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
A-TITLE HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
https://en.hdbuzz.net/269Extern Subdomain 03/01/2019 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
A-TITLE HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
https://www.today.com/video/sp...Extern Subdomain 02/11/2019 Huntington’s Disease Featured On The Today Show
A-TITLE Huntington’s Disease Featured On The Today Show
/news/hdsa-expands-centers-of-...02/06/2019 HDSA Expands Centers of Excellence Program to Forty-Seven
A-TITLE HDSA Expands Centers of Excellence Program to Forty-Seven
https://en.hdbuzz.net/267Extern Subdomain 01/30/2019 HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
A-TITLE HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
/wp-content/uploads/2019/01/Ro...01/28/2019 First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
A-TITLE First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
/wp-content/uploads/2019/01/HD...01/24/2019 HDSA Publishes 2018 Year In Review Magazine
A-TITLE HDSA Publishes 2018 Year In Review Magazine
https://tools.eurolandir.com/t...Extern Subdomain 01/22/2019 uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
A-TITLE uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
/wp-content/uploads/2019/01/20...01/16/2019 HDSA Launches Youth Social Worker Program
A-TITLE HDSA Launches Youth Social Worker Program
/news/breaking-news-roche-gene...12/19/2018 BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
A-TITLE BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
/wp-content/uploads/2018/12/HD...12/11/2018 HDSA’s 2018 Research Report Now Available
A-TITLE HDSA’s 2018 Research Report Now Available
/wp-content/uploads/2018/12/20...12/10/2018 EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
A-TITLE EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
https://en.hdbuzz.net/266?fbcl...Extern Subdomain 12/04/2018 HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
A-TITLE HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
/news/genentech-roche-announce...11/10/2018 Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
A-TITLE Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
/wp-content/uploads/2018/10/20...10/23/2018 HDSA Awards Five HD Human Biology Project Fellowships for 2018
A-TITLE HDSA Awards Five HD Human Biology Project Fellowships for 2018
/wp-content/uploads/2018/10/FI...10/17/2018 FAQs: Upcoming Genentech/Roche Studies
A-TITLE FAQs: Upcoming Genentech/Roche Studies
https://en.hdbuzz.net/264Extern Subdomain 10/03/2018 HDBuzz: Kids Get Huntington’s Disease Too
A-TITLE HDBuzz: Kids Get Huntington’s Disease Too
https://www.youtube.com/watch?...Extern Subdomain 09/26/2018 RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
A-TITLE RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
https://en.hdbuzz.net/263/Extern Subdomain 09/18/2018 HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
A-TITLE HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
/wp-content/uploads/2018/09/Ro...09/16/2018 Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
A-TITLE Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
/news/roches-phase-3-trial-for...09/16/2018 Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
A-TITLE Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
/wp-content/uploads/2018/08/Ro...08/03/2018 Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
A-TITLE Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
/wp-content/uploads/2018/08/IO...08/02/2018 IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
A-TITLE IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
/news/now-accepting-2019-hdsa-...08/01/2018 Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
A-TITLE Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
https://en.hdbuzz.net/260Extern Subdomain 07/10/2018 HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
A-TITLE HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
https://www.youtube.com/watch?...Extern Subdomain 06/27/2018 VIDEO: 33rd Annual HDSA Convention Recap
A-TITLE VIDEO: 33rd Annual HDSA Convention Recap
/wp-content/uploads/2018/06/20...06/13/2018 33rd Annual HDSA Convention Recap
A-TITLE 33rd Annual HDSA Convention Recap
https://vimeo.com/274605963Extern 06/13/2018 VIDEO: HD Buzz at the 33rd Annual HDSA Convention
A-TITLE VIDEO: HD Buzz at the 33rd Annual HDSA Convention
https://vimeo.com/274610527Extern 06/13/2018 VIDEO: 33rd Annual HDSA Convention Research Forum
A-TITLE VIDEO: 33rd Annual HDSA Convention Research Forum
https://vimeo.com/274575984Extern 06/13/2018 VIDEO: 33rd Annual HDSA Convention Opening Ceremony
A-TITLE VIDEO: 33rd Annual HDSA Convention Opening Ceremony
/wp-content/uploads/2018/06/Ro...06/07/2018 Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
A-TITLE Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
/wp-content/uploads/2018/05/20...05/15/2018 HDSA Awards Berman-Topper Family HD Career Development Fellowship
A-TITLE HDSA Awards Berman-Topper Family HD Career Development Fellowship
/wp-content/uploads/2018/04/Ap...04/27/2018 FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
A-TITLE FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
http://ir.ionispharma.com/node...Extern Subdomain 04/24/2018 New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measu...
A-TITLE New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Hunt...
/wp-content/uploads/2018/04/20...04/24/2018 HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
A-TITLE HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
/wp-content/uploads/2018/04/Ro...04/20/2018 Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
A-TITLE Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
https://en.hdbuzz.net/257Extern Subdomain 04/19/2018 HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
A-TITLE HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
/hd-research/research-video-po...03/29/2018 VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
A-TITLE VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
/wp-content/uploads/2018/03/03...03/12/2018 HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
A-TITLE HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
/news/hdsa-earns-second-consec...03/05/2018 HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
A-TITLE HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
https://en.hdbuzz.net/255Extern Subdomain 03/05/2018 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
A-TITLE HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
/wp-content/uploads/2018/03/Io...03/01/2018 IONIS-HTT Rx Community Statement
A-TITLE IONIS-HTT Rx Community Statement
http://ir.ionispharma.com/node...Extern Subdomain 03/01/2018 IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
A-TITLE IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
https://en.hdbuzz.net/254Extern Subdomain 03/01/2018 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
A-TITLE HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
https://en.hdbuzz.net/253Extern Subdomain 02/28/2018 HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
A-TITLE HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
/wp-content/uploads/2018/02/20...02/13/2018 HDSA Announces Forty-Three Centers of Excellence
A-TITLE HDSA Announces Forty-Three Centers of Excellence
/wp-content/uploads/2018/02/HD...02/02/2018 CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
A-TITLE CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
/news/faq-ionis-huntingtin-low...12/12/2017 FAQs: Ionis Huntingtin-Lowering Trial
A-TITLE FAQs: Ionis Huntingtin-Lowering Trial
/news/statement-by-louise-vett...12/11/2017 Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
A-TITLE Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
/news/breaking-news-update-on-...12/11/2017 BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
A-TITLE BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
/news/huntingtons-disease-soci...11/20/2017 Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Pri...
A-TITLE Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care P...
https://curehd.blogspot.com/20...Extern Subdomain 11/14/2017 HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
A-TITLE HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
/news/hdsa-pays-tribute-to-fou...11/14/2017 HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
A-TITLE HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
https://en.hdbuzz.net/248Extern Subdomain 11/02/2017 HDBUZZ: Switch off the genome editor when you’re done
A-TITLE HDBUZZ: Switch off the genome editor when you’re done
https://en.hdbuzz.net/243Extern Subdomain 10/15/2017 Update confirms Huntington’s disease ‘gene silencing’ trial on track
A-TITLE Update confirms Huntington’s disease ‘gene silencing’ trial on track
/news/huntingtons-disease-soci...10/12/2017 Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
A-TITLE Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
https://en.hdbuzz.net/246Extern Subdomain 09/25/2017 HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
A-TITLE HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
/news/global-huntingtons-disea...09/19/2017 Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
A-TITLE Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
/news/huntingtons-disease-soci...09/18/2017 Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
A-TITLE Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
/news/healthwell-foundation-op...08/01/2017 HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
A-TITLE HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
https://en.hdbuzz.net/244Extern Subdomain 07/28/2017 HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
A-TITLE HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
http://ir.wavelifesciences.com...Extern Subdomain 07/17/2017 Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
A-TITLE Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
https://en.hdbuzz.net/podcast/8Extern Subdomain 06/29/2017 Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper de...
A-TITLE Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ...
/wp-content/uploads/2017/06/20...06/22/2017 Exciting News: IONIS provides update on Huntingtin lowering trial
A-TITLE Exciting News: IONIS provides update on Huntingtin lowering trial
/news/huntingtons-disease-soci...06/21/2017 HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
https://en.hdbuzz.net/242Extern Subdomain 06/08/2017 New study reveals a potential HD biomarker
A-TITLE New study reveals a potential HD biomarker
/news/huntingtons-disease-soci...05/30/2017 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARD...
A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGI...
/news/huntingtons-disease-pari...05/24/2017 Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
A-TITLE Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
/news/huntingtons-disease-soci...05/16/2017 Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
A-TITLE Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
/news/huntingtons-disease-soci...05/15/2017 Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
A-TITLE Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
/news/huntingtons-disease-soci...05/15/2017 Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
A-TITLE Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
https://en.hdbuzz.net/241Extern Subdomain 05/08/2017 Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
A-TITLE Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
/news/huntingtons-disease-soci...05/02/2017 Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance ...
A-TITLE Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare...
https://en.hdbuzz.net/240Extern Subdomain 05/01/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 3
A-TITLE Huntington’s Disease Therapeutics Conference 2017 – Day 3
https://en.hdbuzz.net/239Extern Subdomain 05/01/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 2
A-TITLE Huntington’s Disease Therapeutics Conference 2017 – Day 2
https://en.hdbuzz.net/238Extern Subdomain 04/27/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 1
A-TITLE Huntington’s Disease Therapeutics Conference 2017 – Day 1
https://en.hdbuzz.net/237Extern Subdomain 04/21/2017 Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
A-TITLE Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
http://www.prnewswire.com/news...Extern Subdomain 04/14/2017 Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
A-TITLE Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
http://en.hdbuzz.net/236Extern Subdomain 04/05/2017 HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
A-TITLE HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
https://en.hdbuzz.net/235Extern Subdomain 03/29/2017 Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
A-TITLE Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
/news/2017-national-awards-nom...03/28/2017 2017 National Awards Nominations
A-TITLE 2017 National Awards Nominations
/news/save-the-date-for-the-la...03/13/2017 Save the Date- For the largest global gathering of the HD community!
A-TITLE Save the Date- For the largest global gathering of the HD community!
/news/huntingtons-disease-soci...02/28/2017 Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
A-TITLE Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
http://en.hdbuzz.net/234Extern Subdomain 02/24/2017 Weeding out the truth: can cannabis improve Huntington’s?
A-TITLE Weeding out the truth: can cannabis improve Huntington’s?
http://en.hdbuzz.net/233Extern Subdomain 02/22/2017 Huntingtin grabs a hammer: DNA repair in HD
A-TITLE Huntingtin grabs a hammer: DNA repair in HD
http://en.hdbuzz.net/232Extern Subdomain 02/10/2017 The benefits of migration, highlighted in Huntington’s disease
A-TITLE The benefits of migration, highlighted in Huntington’s disease
/news/huntingtons-disease-soci...02/08/2017 Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
A-TITLE Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
/news/huntingtons-disease-soci...01/19/2017 Huntington’s Disease Society of America Unveils HDNavigator Mobile App
A-TITLE Huntington’s Disease Society of America Unveils HDNavigator Mobile App
http://en.hdbuzz.net/231Extern Subdomain 01/12/2017 HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
A-TITLE HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
http://en.hdbuzz.net/229Extern Subdomain 12/19/2016 Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
A-TITLE Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
/hd-research/research-investor...12/06/2016 HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
A-TITLE HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
/news/huntingtons-disease-soci...12/02/2016 Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
A-TITLE Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
/news/hdsa-earns-top-rating-fr...11/22/2016 HDSA Earns Top-Rating from CharityWatch
A-TITLE HDSA Earns Top-Rating from CharityWatch
/news/huntingtons-disease-soci...11/15/2016 Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
A-TITLE Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
http://en.hdbuzz.net/228Extern Subdomain 11/01/2016 Important advances in next generation genome editing tools for Huntington’s Disease
A-TITLE Important advances in next generation genome editing tools for Huntington’s Disease
http://en.hdbuzz.net/227Extern Subdomain 10/03/2016 HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
A-TITLE HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
http://en.hdbuzz.net/226Extern Subdomain 09/23/2016 EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
A-TITLE EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
/wp-content/uploads/2016/09/PR...09/19/2016 Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
A-TITLE Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
http://en.hdbuzz.net/225Extern Subdomain 08/30/2016 New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
A-TITLE New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
/news/hd-support-care-network-...08/22/2016 HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
A-TITLE HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
http://en.hdbuzz.net/224Extern Subdomain 08/17/2016 Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
A-TITLE Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
http://en.hdbuzz.net/223Extern Subdomain 08/02/2016 A support system gone wrong – glial cells contribute to HD symptoms
A-TITLE A support system gone wrong – glial cells contribute to HD symptoms
/news/huntingtons-disease-soci...07/18/2016 Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
A-TITLE Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
/news/huntingtons-disease-comm...07/08/2016 Huntington’s Disease Community Scores Major Victory with Social Security Criteria
A-TITLE Huntington’s Disease Community Scores Major Victory with Social Security Criteria
http://en.hdbuzz.net/222Extern Subdomain 07/05/2016 Slightly long CAG repeats are more common than we thought
A-TITLE Slightly long CAG repeats are more common than we thought
http://en.hdbuzz.net/221Extern Subdomain 06/29/2016 Early exposure to the HD protein may cause life-long symptoms
A-TITLE Early exposure to the HD protein may cause life-long symptoms
/news/wave-life-sciences-recei...06/21/2016 WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
A-TITLE WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
http://en.hdbuzz.net/220Extern Subdomain 06/20/2016 Electron beam snaps best images yet of Huntington’s disease protein
A-TITLE Electron beam snaps best images yet of Huntington’s disease protein
/about-hdsa/annual-convention/...06/14/2016 Select Videos From HDSA’s 31st Annual Convention Now Available
A-TITLE Select Videos From HDSA’s 31st Annual Convention Now Available
/news/huntingtons-disease-soci...06/10/2016 Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
A-TITLE Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
http://en.hdbuzz.net/218Extern Subdomain 06/07/2016 Huntingtin takes a trip: harmful proteins pass between brain cells
A-TITLE Huntingtin takes a trip: harmful proteins pass between brain cells
/news/watch-us-live-from-the-3...06/03/2016 Watch us Live from the 31st Annual HDSA Convention
A-TITLE Watch us Live from the 31st Annual HDSA Convention
/news/hdsa-national-board-of-t...06/01/2016 HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
A-TITLE HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
/news/postcard-from-palm-springs/05/17/2016 Postcard from Palm Springs
A-TITLE Postcard from Palm Springs
/news/huntingtons-disease-soci...05/10/2016 Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
A-TITLE Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
http://en.hdbuzz.net/217Extern Subdomain 05/03/2016 Important drug targets yielded by new genetic study of HD
A-TITLE Important drug targets yielded by new genetic study of HD
/news/huntingtons-disease-soci...05/02/2016 Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
A-TITLE Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
/news/huntingtons-disease-soci...04/28/2016 Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
A-TITLE Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
http://en.hdbuzz.net/216Extern Subdomain 04/18/2016 Thinking clearly about the earliest symptoms of HD and which brain regions control them
A-TITLE Thinking clearly about the earliest symptoms of HD and which brain regions control them
/news/huntingtons-disease-soci...04/18/2016 Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
A-TITLE Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
/news/2016-hdsa-national-award...03/28/2016 2016 HDSA NATIONAL AWARDS NOMINATIONS
A-TITLE 2016 HDSA NATIONAL AWARDS NOMINATIONS
http://en.hdbuzz.net/215Extern Subdomain 03/10/2016 How NOT to write a news article about a clinical trial
A-TITLE How NOT to write a news article about a clinical trial
http://en.hdbuzz.net/214Extern Subdomain 02/29/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
A-TITLE HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
http://en.hdbuzz.net/213Extern Subdomain 02/26/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
A-TITLE HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
http://en.hdbuzz.net/212Extern Subdomain 02/24/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
A-TITLE HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
/news/huntingtons-disease-soci...02/05/2016 Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
A-TITLE Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
/news/huntingtons-disease-soci...02/01/2016 Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
A-TITLE Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
http://en.hdbuzz.net/211Extern Subdomain 02/01/2016 Harnessing the power of viruses to treat Huntington’s disease
A-TITLE Harnessing the power of viruses to treat Huntington’s disease
http://en.hdbuzz.net/210Extern Subdomain 01/25/2016 Through a Broader Lens: Looking at Non-Motor Symptoms in HD
A-TITLE Through a Broader Lens: Looking at Non-Motor Symptoms in HD
/wp-content/uploads/2016/01/HD...01/22/2016 HDSA Releases 2015 Year in Review
A-TITLE HDSA Releases 2015 Year in Review
/hd-research/research-investor...12/23/2015 HDSA Releases 2015 Research Investor’s Report
A-TITLE HDSA Releases 2015 Research Investor’s Report
http://en.hdbuzz.net/209Extern Subdomain 12/18/2015 Looking Past the Spin: Results from a Clinical Trial of Cysteamine
A-TITLE Looking Past the Spin: Results from a Clinical Trial of Cysteamine
http://en.hdbuzz.net/208Extern Subdomain 12/15/2015 An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
A-TITLE An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
/wp-content/uploads/2015/12/Ra...12/10/2015 Raptor Plans to Advance RP103 in a Registration Study
A-TITLE Raptor Plans to Advance RP103 in a Registration Study
https://hdsa.org/news/auto-draft/12/07/2015 New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
A-TITLE New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
http://en.hdbuzz.net/207Extern Subdomain 12/02/2015 Through the eyes of a friend: changes in mood and behavior in early HD
A-TITLE Through the eyes of a friend: changes in mood and behavior in early HD
/news/huntingtons-disease-soci...12/02/2015 Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
A-TITLE Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
/news/huntingtons-disease-soci...12/01/2015 Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
A-TITLE Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
http://en.hdbuzz.net/206Extern Subdomain 11/25/2015 A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
A-TITLE A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
/news/huntingtons-disease-soci...11/25/2015 Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
A-TITLE Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
/news/huntingtons-disease-soci...11/03/2015 Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
A-TITLE Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
/news/fourth-annual-strike-out...11/02/2015 Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
A-TITLE Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
http://en.hdbuzz.net/204Extern Subdomain 10/20/2015 HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
A-TITLE HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
http://en.hdbuzz.net/203Extern Subdomain 10/09/2015 HDBuzz primer: Clinical trial designs and phases
A-TITLE HDBuzz primer: Clinical trial designs and phases
/news/huntingtons-disease-soci...10/05/2015 Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
A-TITLE Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
/news/fda-opens-60-day-open-co...09/23/2015 FDA Opens 60 Day Open Comment Period
A-TITLE FDA Opens 60 Day Open Comment Period
/news/hundreds-of-hd-families-...09/22/2015 Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
A-TITLE Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
http://en.hdbuzz.net/202Extern Subdomain 09/17/2015 HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
A-TITLE HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
/news/cnn-new-day-hosts-alisyn...09/11/2015 CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
A-TITLE CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
/news/tell-us-your-thoughts/08/31/2015 Deadline To Tell Us Your Thoughts Has Been Extended!
A-TITLE Deadline To Tell Us Your Thoughts Has Been Extended!
https://hdsa.org/news/6984/08/17/2015 HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
A-TITLE HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
/news/patient-focused-drug-dis...08/05/2015 Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
A-TITLE Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
/news/scientists-identify-gene...07/30/2015 Scientists identify genetic factors that alter the clinical onset of HD in landmark study
A-TITLE Scientists identify genetic factors that alter the clinical onset of HD in landmark study
http://en.hdbuzz.net/199Extern Subdomain 07/29/2015 Would ewe believe it? GM1, sheep and Huntington’s disease
A-TITLE Would ewe believe it? GM1, sheep and Huntington’s disease
/wp-content/uploads/2015/07/PR...07/21/2015 ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
A-TITLE ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
/news/30th-annual-convention-i...07/02/2015 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
A-TITLE 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
/news/calling-all-hd-families-...06/22/2015 Calling all HD families: Our time to be heard is now!
A-TITLE Calling all HD families: Our time to be heard is now!
/news/huntingtons-disease-soci...06/19/2015 Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
A-TITLE Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
http://energycommerce.house.go...Extern Subdomain 06/19/2015 HDSA Supports 21st Century Cures Act
A-TITLE HDSA Supports 21st Century Cures Act
http://www.nih.gov/news/health...Extern Subdomain 06/16/2015 NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
A-TITLE NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
/news/life-in-hd-earns-rave-re...06/02/2015 Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
A-TITLE Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
http://en.hdbuzz.net/198Extern Subdomain 06/02/2015 HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
A-TITLE HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
/hd-research/research-news-rep...05/26/2015 2015 Postcard from Palm Springs
A-TITLE 2015 Postcard from Palm Springs
/en.hdbuzz.net/19605/13/2015 HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
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/news/life-in-hd-a-conversatio...05/01/2015 Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
A-TITLE Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
/news/huntingtons-disease-soci...04/22/2015 Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
A-TITLE Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
/news/lighting-the-way-a-new-b...04/21/2015 Lighting the way: A new biomarker for Huntington’s disease
A-TITLE Lighting the way: A new biomarker for Huntington’s disease
/news/huntingtons-disease-soci...04/07/2015 Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
A-TITLE Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
/news/new-york-times-bestselli...04/07/2015 New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
A-TITLE New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
/wp-content/uploads/2015/01/La...01/29/2015 Law Enforcement Toolkit II Webinar Now Available
A-TITLE Law Enforcement Toolkit II Webinar Now Available
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A-TITLE Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
/news/pride-hd-study-enrolling...01/29/2015 Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
A-TITLE Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
/news/hdsa-appoints-director-o...01/29/2015 HDSA appoints Director of Marketing & Communications
A-TITLE HDSA appoints Director of Marketing & Communications
/news/world-leader-in-movement...01/29/2015 World leader in movement disorders Professor Ira Shoulson joins Prana Board
A-TITLE World leader in movement disorders Professor Ira Shoulson joins Prana Board
/news/pitt-study-demonstrates-...01/29/2015 Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
A-TITLE Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
/news/huntingtons-disease-soci...01/28/2015 Huntington’s Disease Society of America Launches First “HD News” App
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/wp-content/uploads/2015/01/An...01/28/2015 2CARE HD Clinical Trial Stopped Early for Lack of Benefit
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A-TITLE HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
http://investor.auspexpharma.c...Extern Subdomain 01/28/2015 Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
A-TITLE Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
/news/huntingtons-disease-soci...01/28/2015 Huntington’s Disease Society of America Awards Additional HD Human Biology Project
A-TITLE Huntington’s Disease Society of America Awards Additional HD Human Biology Project
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A-TITLE Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
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A-TITLE Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
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A-TITLE 2024 Team Hope Walk – North Carolina
https://classes.nm.org/wlp2/cl...Extern Subdomain 11/16/2024 10:00 AM Northwestern Huntington’s Disease Patient Family Symposium Northwestern Medicine Prentice Women's Hospital, 250 E Superior St , Chicago, ...
A-TITLE Northwestern Huntington’s Disease Patient Family Symposium
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