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twitter:title | Huntington's Disease Society of America |
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og:site_name | Huntington's Disease Society of America - Family Is Everything |
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H1 | HD Symptoms and Treatment Impact Survey |
H1 | TAKE ACTION NOW! |
H1 | JOIN POWER HD |
H2 | SAVE THE DATE! |
H2 | HDSA Publishes 2023 Year In Review Magazine |
H2 | HDSA Centers of Excellence Program Expands to 68 Sites |
H2 | The Marker: 2023 HDSA Research Report |
H2 | INTRODUCING THE HDSA PODCAST |
H2 | HDSA SOCIAL WORKERS |
H2 | HDSA SUPPORT GROUPS |
H2 | PARTICIPATE IN AN HDSA EVENT NEAR YOU |
H2 | New to HD |
H2 | Locate Resources |
H2 | Enroll in a Trial |
H2 | Donate to HDSA |
H2 | News |
H2 | Events |
H2 | Subscribe |
H3 | We Need Your Voice! Take The HD Symptoms And Treatment Impact Survey |
H3 | HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS |
H3 | HDSA Awards Six 2024 Donald A. King Summer Research Fellowships |
H3 | uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease |
H3 | Farewell & Leadership Transition at HDSA |
H3 | Wave Life Sciences Update: Results from SELECT-HD Community Letter |
H3 | PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter |
H3 | HDSA Podcast- New Episode Now Available! |
H3 | BLOG: This Week in HD Research |
H3 | A message from Louise Vetter, President & CEO |
H3 | Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA |
H3 | HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting |
H3 | Now Accepting Human Biology Project LOIs |
H3 | Act Fast: Early Bird Rate for HDSA Convention Ends March 31st! |
H3 | HDSA Publishes 2023 Year in Review |
H3 | Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pridopidine. |
H3 | HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES |
H3 | 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN |
H3 | 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN |
H3 | ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication |
H3 | uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease |
H3 | uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy |
H3 | HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS |
H3 | TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA |
H3 | Now Accepting 2024 HDSA Centers of Excellence Applications |
H3 | 2022 HDSA Annual Report |
H3 | BLOG: Disability Tips |
H3 | FREEZE HD Update |
H3 | HDSA Earns Four-Star Rating From Charity Navigator |
H3 | Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference |
H3 | uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy Texto duplicado |
H3 | uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease Texto duplicado |
H3 | Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship |
H3 | HDSA Partnership with Rare-X Community Letter & FAQ |
H3 | HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease |
H3 | Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets |
H3 | HDSA Awards Four 2023 Donald A. King Summer Research Fellowships |
H3 | HDBUZZ: PROOF-HD study of pridopidine ends with negative result |
H3 | Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD. |
H3 | The HDSA Podcast Episode #3 |
H3 | Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets |
H3 | HDBuzz: Roche Phase II GENERATION HD2 study underway |
H3 | Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US |
H3 | Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease |
H3 | HDSA Publishes 2022 Year in Review Magazine |
H3 | Introducing The HDSA Podcast |
H3 | Roche-Genentech Community Letter: GENERATION HD2 study now open |
H3 | 38th Annual HDSA Convention in New Orleans Registration Now Open |
H3 | The Marker: HDSA’s 2022 Research Report is now available |
H3 | HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families |
H3 | HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial |
H3 | Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease |
H3 | Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees |
H3 | Team HDSA Raises More Than $100,000 at the New York City Marathon |
H3 | Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine |
H3 | HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects |
H3 | Breaking News: uniQure provides update on AMT-130 |
H3 | Eighth Annual Freeze HD Raises More Than $200,000 |
H3 | PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518 |
H3 | Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD |
H3 | HDSA Publishes 2021 Annual Report |
H3 | HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials |
H3 | Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial |
H3 | BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2 |
H3 | HDSA Disability Chat: JHD & Social Security |
H3 | HDSA Research Webinar: All You Need To Know About PROOF-HD |
H3 | HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials |
H3 | Novartis Provides Community Update Regarding VIBRANT-HD |
H3 | HDSA Research Webinar: HD Clinical Trials Update |
H3 | Now Accepting 2023 HDSA Centers of Excellence Letters of Intent |
H3 | Sage Therapeutics Provides Positive Update on the SURVEYOR Study |
H3 | HDSA Films presents KING’S CRUSADE (Part 2) |
H3 | HDSA Statement Regarding VIBRANT-HD Trial |
H3 | uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress |
H3 | HDSA Films presents KING’S CRUSADE (Part 1) |
H3 | Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference |
H3 | HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship |
H3 | uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease |
H3 | HDBuzz: How clever computers are helping us understand Huntington’s disease |
H3 | New system that defines Huntington’s disease will ‘revolutionise’ drug trials |
H3 | HDBuzz: A new roadmap to track Huntington’s disease progression |
H3 | 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again |
H3 | Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD |
H3 | HDSA Films presents THE STORY OF E.J. + KATY |
H3 | HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000 |
H3 | HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship |
H3 | PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease |
H3 | HDBuzz: A spoonful of branaplam helps the huntingtin go down |
H3 | HDBuzz: Day 3 of the 2022 HD Therapeutics Conference |
H3 | HDBuzz: Day 2 of the 2022 HD Therapeutics Conference |
H3 | HDBuzz: Day 1 of the 2022 HD Therapeutics Conference |
H3 | Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718. |
H3 | HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time |
H3 | Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence |
H3 | uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease |
H3 | HDBuzz: Oral drug may change the story for huntingtin lowering |
H3 | Register Today for the 37th Annual HDSA Convention in Atlanta |
H3 | HDSA Publishes 2021 Year In Review Magazine |
H3 | BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial |
H3 | VIDEO: Roche Community Presentation of New Tominersen Data |
H3 | BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial |
H3 | Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment |
H3 | VIDEO: Happy Holidays from Louise Vetter |
H3 | uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease |
H3 | The Marker is Now Available! Read HDSA’s 2021 Research Report |
H3 | Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease |
H3 | Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees |
H3 | HDSA Coffee Walk with Jennifer Simpson |
H3 | TAKE ACTION: HDSA’s 7 Days of Action |
H3 | HDSA Films presents THE DOHERTYS: FINDING THE FUNNY |
H3 | HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act |
H3 | More than $64,000 Raised at the TCS New York City Marathon to Support HDSA |
H3 | HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer |
H3 | Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease |
H3 | HDSA Awards $749,000 to HD Human Biology Projects |
H3 | HDBuzz: Q&A with Roche about GENERATION-HD1 |
H3 | HDSA Publishes 2020 Annual Report |
H3 | Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease |
H3 | Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data |
H3 | HDBuzz: Creation of a molecular “dimmer switch” advances gene editing |
H3 | HDBuzz: Unpacking Recent Gene Therapy Press |
H3 | Update from Voyager Therapeutics |
H3 | HDSA Films Presents The Osborns: Our Legacy |
H3 | VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress |
H3 | HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act |
H3 | HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease |
H3 | NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions |
H3 | Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe |
H3 | HDSA Awards Two Berman-Topper Family HD Career Development Fellowships |
H3 | HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers |
H3 | uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial |
H3 | HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data |
H3 | HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference |
H3 | HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference |
H3 | HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference |
H3 | HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship |
H3 | Now Accepting 2021 National Award Nominations |
H3 | uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130 |
H3 | Register Today For Free | Virtual 36th Annual HDSA Convention |
H3 | HDBuzz: Wave Life Sciences PRECISION-HD Trials |
H3 | Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials |
H3 | VIDEO: A Message from Roche about the GENERATION-HD1 Trial News |
H3 | RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here? |
H3 | HDBuzz: Sad News From Roche |
H3 | Roche Provides a Disappointing Update on Tominersen |
H3 | HDSA Reintroduces the HD Parity Act |
H3 | HDSA Films presents My Father, My Hero |
H3 | Now Accepting 2021 Human Biology Project Letters of Intent |
H3 | HDBuzz: Vaccines and HD |
H3 | The 36th Annual HDSA Convention Goes Virtual! |
H3 | HDSA Expands Centers of Excellence Program to Fifty-Four Sites |
H3 | HDSA Publishes 2020 Year In Review Magazine |
H3 | Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees |
H3 | Happy New Year! |
H3 | NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead |
H3 | HDSA Publishes The Marker: 2020 Research Report |
H3 | HDSA Awards Four HD Human Biology Project Fellowships For 2020 |
H3 | HDBUZZ: Updates from the EHDN Plenary Meeting 2020 |
H3 | VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA |
H3 | HDSA Publishes 2019 Annual Report |
H3 | HDBuzz: When genes are unstable: Targeting somatic instability in HD |
H3 | NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease |
H3 | HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off |
H3 | HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR |
H3 | Anne Leserman announces her retirement from HDSA |
H3 | Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence |
H3 | NEW EPISODE: Here’s The Deal with End of Life & HD |
H3 | Huntington’s Disease Featured on ABC News Live Prime |
H3 | HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD |
H3 | uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease |
H3 | Virtual HDSA Convention Recorded Sessions Now Available |
H3 | Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe |
H3 | HDSA Supports The Fight Against Racism |
H3 | Register for the Virtual 35th Annual HDSA Convention |
H3 | Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference |
H3 | HDSA Awards Berman-Topper Family HD Career Development Fellowship |
H3 | International Huntington’s Disease Awareness Day – May 15th |
H3 | HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship |
H3 | COMMUNITY STATEMENT: Update On Tominersen (RG6042) |
H3 | NEW EPISODE: Here’s The Deal with Self-Care |
H3 | HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research? |
H3 | HD & COVID-19 PANDEMIC RESOURCES |
H3 | NEW EPISODE: Here’s The Deal with COVID-19 & HD |
H3 | FREQUENTLY ASKED QUESTIONS: Disability & COVID-19 |
H3 | Community Statement |
H3 | NEW EPISODE: Here’s The Deal with Disability |
H3 | HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual! |
H3 | HDSA Community Update: HD & COVID-19 |
H3 | HDSA Community Update |
H3 | HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models |
H3 | HDSA Convention Community Statement |
H3 | HDBuzz: Day 3 at HD Therapeutics Conference |
H3 | HDSA Films Presents ALLIE & JOE |
H3 | HDBuzz: Day 2 at HD Therapeutics Conference |
H3 | HDBuzz: Day 1 at HD Therapeutics Conference |
H3 | HDSA Announces Fifty 2020 Centers of Excellence |
H3 | HDSA Publishes 2019 Year In Review Magazine |
H3 | REGISTER TODAY! 35th Annual HDSA Convention in New Orleans |
H3 | Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2 |
H3 | Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease |
H3 | HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator |
H3 | HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence |
H3 | HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits |
H3 | HDSA Welcomes Three Trustees to National Board |
H3 | HDSA Publishes The Marker – 2019 Research Report |
H3 | HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD |
H3 | HDSA Awards Five 2019 HD Human Biology Project Fellowships |
H3 | Community Statement from Roche / Genentech |
H3 | View 5th Annual Freeze HD Red Carpet and Event Photos |
H3 | 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA |
H3 | 2018 HDSA Annual Report |
H3 | HDBUZZ: Exciting New Huntingtin Lowering Tool Described |
H3 | Now Accepting 2020 HDSA Centers of Excellence Letters of Interest |
H3 | VIDEO: Here’s The Deal With Caregiving While Positive |
H3 | VIDEO: 34th Annual HDSA Convention Recap |
H3 | HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston |
H3 | Community Statement from uniQure |
H3 | HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research |
H3 | HDSA Adds Allison Bartlett as Manager of Disability Programs |
H3 | HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships |
H3 | Huntington’s Disease Parity Act Is Reintroduced |
H3 | HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication |
H3 | Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference |
H3 | HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship |
H3 | HDSA Films Presents “The Hodgsons” Short Film |
H3 | Update on PRECISION-HD program |
H3 | BLOG: This Week in HD Research Texto duplicado |
H3 | HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study |
H3 | COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design |
H3 | HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease |
H3 | HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap |
H3 | HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap |
H3 | Huntington’s Disease Featured On The Today Show |
H3 | HDSA Expands Centers of Excellence Program to Forty-Seven |
H3 | HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race |
H3 | First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies |
H3 | HDSA Publishes 2018 Year In Review Magazine |
H3 | uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease |
H3 | HDSA Launches Youth Social Worker Program |
H3 | BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study |
H3 | HDSA’s 2018 Research Report Now Available |
H3 | EJ Garner Appointed as Chair of HDSA’s National Board of Trustees |
H3 | HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease |
H3 | Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study |
H3 | HDSA Awards Five HD Human Biology Project Fellowships for 2018 |
H3 | FAQs: Upcoming Genentech/Roche Studies |
H3 | HDBuzz: Kids Get Huntington’s Disease Too |
H3 | RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042 |
H3 | HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease |
H3 | Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018 |
H3 | Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1 |
H3 | Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx) |
H3 | IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease |
H3 | Now Accepting 2019 HDSA Centers of Excellence Letters of Interest |
H3 | HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed |
H3 | VIDEO: 33rd Annual HDSA Convention Recap |
H3 | 33rd Annual HDSA Convention Recap |
H3 | VIDEO: HD Buzz at the 33rd Annual HDSA Convention |
H3 | VIDEO: 33rd Annual HDSA Convention Research Forum |
H3 | VIDEO: 33rd Annual HDSA Convention Opening Ceremony |
H3 | Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx ) |
H3 | HDSA Awards Berman-Topper Family HD Career Development Fellowship Texto duplicado |
H3 | FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche |
H3 | New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease |
H3 | HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship |
H3 | Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx ) |
H3 | HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers |
H3 | VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta |
H3 | HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders |
H3 | HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator |
H3 | HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3 |
H3 | IONIS-HTT Rx Community Statement |
H3 | IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease |
H3 | HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2 |
H3 | HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1 |
H3 | HDSA Announces Forty-Three Centers of Excellence |
H3 | CEO Memo: Chorea Medication Co-Pay Assistance Programs Information |
H3 | FAQs: Ionis Huntingtin-Lowering Trial |
H3 | Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement |
H3 | BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future |
H3 | Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists |
H3 | HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000 |
H3 | HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy |
H3 | HDBUZZ: Switch off the genome editor when you’re done |
H3 | Update confirms Huntington’s disease ‘gene silencing’ trial on track |
H3 | Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017 |
H3 | HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function |
H3 | Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE) |
H3 | Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie |
H3 | HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients |
H3 | HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD |
H3 | Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease |
H3 | Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s dise... |
H3 | Exciting News: IONIS provides update on Huntingtin lowering trial |
H3 | HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES |
H3 | New study reveals a potential HD biomarker |
H3 | HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT |
H3 | Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease |
H3 | Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City |
H3 | Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship |
H3 | Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month |
H3 | Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.) |
H3 | Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients |
H3 | Huntington’s Disease Therapeutics Conference 2017 – Day 3 |
H3 | Huntington’s Disease Therapeutics Conference 2017 – Day 2 |
H3 | Huntington’s Disease Therapeutics Conference 2017 – Day 1 |
H3 | Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research. |
H3 | Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease |
H3 | HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease |
H3 | Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop. |
H3 | 2017 National Awards Nominations |
H3 | Save the Date- For the largest global gathering of the HD community! |
H3 | Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary |
H3 | Weeding out the truth: can cannabis improve Huntington’s? |
H3 | Huntingtin grabs a hammer: DNA repair in HD |
H3 | The benefits of migration, highlighted in Huntington’s disease |
H3 | Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence |
H3 | Huntington’s Disease Society of America Unveils HDNavigator Mobile App |
H3 | HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression |
H3 | Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms |
H3 | HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016. |
H3 | Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease |
H3 | HDSA Earns Top-Rating from CharityWatch |
H3 | Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows |
H3 | Important advances in next generation genome editing tools for Huntington’s Disease |
H3 | HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine |
H3 | EuroBuzz 2016: The Euro-HD Network Meeting in The Hague |
H3 | Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD |
H3 | New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD |
H3 | HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona |
H3 | Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly… |
H3 | A support system gone wrong – glial cells contribute to HD symptoms |
H3 | Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest |
H3 | Huntington’s Disease Community Scores Major Victory with Social Security Criteria |
H3 | Slightly long CAG repeats are more common than we thought |
H3 | Early exposure to the HD protein may cause life-long symptoms |
H3 | WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease |
H3 | Electron beam snaps best images yet of Huntington’s disease protein |
H3 | Select Videos From HDSA’s 31st Annual Convention Now Available |
H3 | Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years |
H3 | Huntingtin takes a trip: harmful proteins pass between brain cells |
H3 | Watch us Live from the 31st Annual HDSA Convention |
H3 | HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021. |
H3 | Postcard from Palm Springs |
H3 | Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship |
H3 | Important drug targets yielded by new genetic study of HD |
H3 | Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May |
H3 | Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease” |
H3 | Thinking clearly about the earliest symptoms of HD and which brain regions control them |
H3 | Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship |
H3 | 2016 HDSA NATIONAL AWARDS NOMINATIONS |
H3 | How NOT to write a news article about a clinical trial |
H3 | HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3 |
H3 | HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2 |
H3 | HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1 |
H3 | Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask |
H3 | Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence |
H3 | Harnessing the power of viruses to treat Huntington’s disease |
H3 | Through a Broader Lens: Looking at Non-Motor Symptoms in HD |
H3 | HDSA Releases 2015 Year in Review |
H3 | HDSA Releases 2015 Research Investor’s Report |
H3 | Looking Past the Spin: Results from a Clinical Trial of Cysteamine |
H3 | An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic |
H3 | Raptor Plans to Advance RP103 in a Registration Study |
H3 | New HD Career Development Fellowship Announced by Huntington’s Disease Society of America |
H3 | Through the eyes of a friend: changes in mood and behavior in early HD |
H3 | Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder |
H3 | Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator |
H3 | A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true? |
H3 | Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship |
H3 | Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000 |
H3 | Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000 |
H3 | HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD! |
H3 | HDBuzz primer: Clinical trial designs and phases |
H3 | Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients |
H3 | FDA Opens 60 Day Open Comment Period |
H3 | Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease |
H3 | HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells |
H3 | CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America |
H3 | Deadline To Tell Us Your Thoughts Has Been Extended! |
H3 | HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program |
H3 | Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease |
H3 | Scientists identify genetic factors that alter the clinical onset of HD in landmark study |
H3 | Would ewe believe it? GM1, sheep and Huntington’s disease |
H3 | ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients |
H3 | 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America |
H3 | Calling all HD families: Our time to be heard is now! |
H3 | Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status |
H3 | HDSA Supports 21st Century Cures Act |
H3 | NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke |
H3 | Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America |
H3 | HDBUZZ: Switching it up: variety in the HD gene affects symptom onset |
H3 | 2015 Postcard from Palm Springs |
H3 | HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease |
H3 | 2015 Huntington’s Disease Therapeutics Conference and taking part in trials |
H3 | Gene variant determines early or late onset of Huntington’s disease |
H3 | Life in HD: A Conversation with Lisa Genova Tickets Now on Sale |
H3 | Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship |
H3 | Lighting the way: A new biomarker for Huntington’s disease |
H3 | Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease |
H3 | New York Times Bestselling Author Lisa Genova to release Inside the O’Briens |
H3 | Law Enforcement Toolkit II Webinar Now Available |
H3 | Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards |
H3 | Huntington’s Disease Society of America Endorses Enroll-HD |
H3 | Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship |
H3 | Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease |
H3 | HDSA appoints Director of Marketing & Communications |
H3 | World leader in movement disorders Professor Ira Shoulson joins Prana Board |
H3 | Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons |
H3 | Huntington’s Disease Society of America Launches First “HD News” App |
H3 | 2CARE HD Clinical Trial Stopped Early for Lack of Benefit |
H3 | HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends |
H3 | Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD) |
H3 | Huntington’s Disease Society of America Awards Additional HD Human Biology Project |
H3 | Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America |
H3 | Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline |
H3 | KYCureHD – RachelWalsh |
H3 | HDSA WA Celebration of Hope at FlatStick Flatstick Redmond - 7530 164th Ave NE Suite A108 , Redmond, VA 98052 |
H3 | 2024 Team Hope Walk- Boyne City, MI Boyne City Pavilion - Veterans Memorial Park - 207 North Lake St. , Boyne City, MI 49712 |
H3 | 2024 HDSA & Vanderbilt Neurology Tennessee Education Day Hilton Garden Inn - Mt. Juliet - 1975 Providence Parkway , Mt. Juliet, TN 37122 |
H3 | 2024 Fairways for Hope Charity Golf Tournament , Littleton, Colorado 80125 |
H3 | 2024 Team Hope Walk – Traverse City, MI Sunset Park - 635 E Front Street , Traverse City, MI 49686 |
H3 | 2024 Grahlman Golf Tournament Jester Park Golf Course - 11949 NW 118th Avenue , Granger, IA 50190 |
H3 | 2024 HD Education Day – Morgantown, WV Rockefeller Neuroscience Institute - 33 Medical Center Drive , Morgantown, WV 26506 |
H3 | 2024 Team Hope Walk & 5K Run – Bozeman, MT BOGERT PARK - 325 S Church Ave , Bozeman, MT 59715 |
H3 | 2024 Team Hope Walk – Central Michigan Michigan Theatre - 124 North Mechanic Street , Jackson, MI 49201 |
H3 | 2024 Arizona Family Retreat Weekend Redemptorist Renewal Center - 7101 West Picture Rocks Road , Tucson, AZ 85743 |
H3 | 2024 Team Hope Fishy Frolic – Walk & 5K Corning Preserve - Jennings Landing 1 Quay Street , Albany, NY 12207 |
H3 | 15th Annual Fore-A-Cure Golf Outing Bunker Hill Golf Course - 3060 Pearl Rd , Medina, OH 44256 |
H3 | 2024 Day at the Races for HD Hawthorne Race Course - 3501 South Laramie , Cicero, IL 60804 |
H3 | 2024 Team Hope Walk – Lehigh Valley, PA Hopewell Park Pavilion - 4695 West Hopewell Rd , Center Valley, PA 18036 |
H3 | 2024 20th Annual Heroes and Villains Team Hope 5K Walk and Run Stapleton Central Park - 8601 E Martin Luther King Blvd S , Denver, CO 80238 |
H3 | 2024 Team Hope Walk – Buffalo, NY Niawanda Park - Ronald J Pilozzi Pavilion - 600 Niagra Street , Tonowanda, NY 14150 |
H3 | 2024 Team Hope Walk – West Virginia Barbour County Fairgrounds - 1154 Point Pleasant Road , Belington, WV 26250 |
H3 | 2024 Team Hope Walk – Wantagh, NY Wantagh Park - 1 King Road , Wantagh, NY 11793 |
H3 | 2024 Team Hope Walk – San Diego Coronado Tidelands Park - 2000 Mullinex Drive , Coronado, CA 92118 |
H3 | 2024 Music On The Vine Chateau Le Gari Winery - 303 S. Main Street , Marlborough, CT 06447 |
H3 | 2024 Team Hope Walk – St. Louis, MO Tilles Park - 9551 Litzsinger , St. Louis, MO 63124 |
H3 | 2024 Team Hope Walk – Zionsville, IN Mulberry Fields - 9645 Whitestown RD , Zionville, IN 46077 |
H3 | 2024 Team Hope Walk – Rhode Island Colt State Park - Bristol Sports Complex 50 Asylum Road , Bristol, RI 02809 |
H3 | 2024 Fall Education Day – South Dakota Sanford Health - 1305 W 18th St - Schroder Auditorium, , Sioux Falls, SD 57105 |
H3 | 2024 Midwest Golf Tournament – STL Crescent Farms Golf Club - 745 Lewis Rd , Eureka, MO 63025 |
H3 | 2024 Team Hope Walk & Fun Run – Salt Lake City, UT Sugar House Park - 1330 2100 S , Salt Lake City, UT 84106 |
H3 | 2024 Team Hope 5k Walk & Fun Run – San Francisco , San Francisco, California 94129 |
H3 | 2024 SoCal Celebration of Hope Stone Brewing - 2816 Historic Decatur Rd #116 , San Diego, CA 92106 |
H3 | 2024 Team Hope Walk – Columbia, SC Community Park of Irmo - 7507 Eastview Drive , Irmo, SC 29763 |
H3 | 2024 Team Hope Walk – Edison, New Jersey Roosevelt Park - Meet at Grove 1A - 151 Parsonage Road , Edison, NJ 08837 |
H3 | 2024 Team Hope Walk – Arkansas Rock City Harley Davidson - 400 Gateway Grove Loop , Little Rock, AR 72210 |
H3 | 2024 Team Hope Walk – West Michigan Grand Ravines Lodge - 9920 42nd Avenue , Georgetown Township, MI 49428 |
H3 | 2024 Team Hope Walk – Boise, ID Julius M Kleiner Memorial Park - 1900 N. Records Avenue , Boise, ID 83642 |
H3 | 2024 Team Hope Walk – Los Angeles Johnny Carson Park - 400 Bob Hope Drive , Burbank, CA 91505 |
H3 | 2024 Team Hope Walk – Orange County, CA William H. Mason Park - 18712 University Dr. , Irvine, CA 92612 |
H3 | 2024 Team Hope Walk – Greater North Texas Mike Lewis Park - 2600 North Carrier Parkway , Grand Prairie, TX 75050 |
H3 | Northwestern Huntington’s Disease Patient Family Symposium Northwestern Medicine Prentice Women's Hospital, 250 E Superior St , Chicago, IL 60611 |
H3 | Share a link |
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H4 | GET INVOLVED |
Enlace | Propiedades | Texto ancla |
---|---|---|
https://hdsa.org/ | IMG-ALT logo A-TITLE Huntington's Disease Society of America logo | |
https://www.facebook.com/HDSofA | Nueva ventana Externo Subdominio | Sin texto |
https://twitter.com/HDSA | Nueva ventana Externo | Sin texto |
https://www.youtube.com/channe... | Nueva ventana Externo Subdominio | Sin texto |
http://instagram.com/hdsanational | Nueva ventana Externo | Sin texto |
https://www.linkedin.com/compa... | Nueva ventana Externo Subdominio | Sin texto |
https://app.donorview.com/e18b | Externo Subdominio | Donate |
https://app.donorview.com/NzQ5e | Nueva ventana Externo Subdominio | Create or log into HDSA Account |
/about-hdsa/about/ | About HDSA A-TITLE About HDSA | |
https://hdsa.org/news | News A-TITLE News | |
https://hdsa.org/events | Events A-TITLE Events | |
https://hdsa.org/advocacyhome/ | Advocacy A-TITLE Advocacy | |
/about-hdsa/chapters-affiliates/ | Chapters & Affiliates A-TITLE Chapters & Affiliates | |
/find-help/clinical-care-servi... | HDSA Centers of Excellence A-TITLE HDSA Centers of Excellence | |
http://nya.hdsa.org/ | Externo Subdominio | HDSA’s NYA A-TITLE HDSA’s NYA |
/shop/publications/ | PUBLICATIONS A-TITLE PUBLICATIONS | |
https://hdsa.org/what-is-hd/ | What is HD? A-TITLE What is<br>HD? | |
/what-is-hd/history-and-geneti... | History and Genetics of Huntington’s Disease | |
/what-is-hd/overview-of-huntin... | Overview of HD | |
/what-is-hd/history-and-geneti... | Who Is At-Risk? | |
/what-is-hd/history-and-geneti... | Genetic Testing & Family Planning | |
/what-is-hd/history-and-geneti... | Juvenile Onset HD | |
/what-is-hd/history-and-geneti... | History of HD | |
/what-is-hd/huntingtons-diseas... | Huntington’s Disease Symptoms | |
/what-is-hd/age-of-onset/ | The Age of Onset | |
/what-is-hd/motor-physical-sym... | Motor / Physical Symptoms | |
/what-is-hd/cognitive-symptoms/ | Cognitive Symptoms | |
/what-is-hd/behavioral-psychia... | Behavioral / Psychological Symptoms | |
/what-is-hd/huntingtons-diseas... | Stages of Huntington’s Disease | |
/what-is-hd/huntingtons-diseas... | Early Stage | |
/what-is-hd/huntingtons-diseas... | Middle Stage | |
/what-is-hd/huntingtons-diseas... | Late Stage | |
https://hdsa.org/find-help/ | Find Help A-TITLE Find<br>Help | |
/about-hdsa/locate-resources/ | LOCATE RESOURCES IN YOUR AREA | |
/find-help/clinical-care-servi... | Clinical Care & Services | |
/find-help/clinical-care-servi... | Texto duplicado | HDSA Centers of Excellence |
/find-help/clinical-care-servi... | Symptom Management | |
/find-help/clinical-care-servi... | Suicide Prevention | |
/find-help/healthcare-and-futu... | Healthcare & Future Planning | |
/find-help/healthcare-and-futu... | Genetic Testing & Your Rights | |
/find-help/healthcare-and-futu... | Disability Benefits and HD | |
/find-help/healthcare-and-futu... | Long-Term HD Care | |
/find-help/living-well-with-hd/ | Living Well With HD | |
/find-help/living-well-with-hd... | Nutrition | |
/find-help/living-well-with-hd... | Exercise / Physical Therapy | |
/find-help/living-well-with-hd... | Swallow Dysfunction & Choking | |
/find-help/living-well-with-hd... | Speech | |
/find-help/living-well-with-hd... | Law Enforcement Training Guide | |
/find-help/community-social-su... | Community & Social Support | |
/find-help/community-social-su... | Youth Services | |
/find-help/community-social-su... | Caregiver Services & Resources | |
/find-help/community-social-su... | HDSA Telehealth | |
/find-help/community-social-su... | HDSA Support Groups | |
/find-help/community-social-su... | HDSA Social Workers | |
/find-help/community-social-su... | HDSA Resource Library | |
https://hdsa.org/hd-research/ | HD Research A-TITLE HD<br>Research | |
/hd-research/participate-in-hd... | Participate in HD Research | |
/hd-research/hd-trial-finder/ | HD Trialfinder | |
/hd-research/online-surveys/ | Participate in Online Surveys | |
https://www.enroll-hd.org/ | Externo Subdominio | Enroll-HD |
/hd-research/learn-about-hd-re... | Learn About HD Research | |
https://hdsa.org/blog/ | This Week In HD Research Blog | |
/hd-research/hdsa-research-web... | HDSA Research Webinars | |
https://en.hdbuzz.net/ | Externo Subdominio | HDBuzz |
/hd-research/research-investor... | Annual HDSA Research Reports | |
/hd-research/therapies-in-pipe... | HD Research in the Pipeline | |
/hd-research/research-we-fund/ | HDSA Research Funding Programs | |
/hd-research/hd-human-biology-... | HD Human Biology Project | |
/hd-research/the-donald-a-king... | Donald A. King Fellowship | |
/bermantopperfellowship/ | Berman-Topper Fellowship | |
/hd-research/researcher-spotli... | Spotlight on HD Researchers | |
/hd-research/hd-cope/ | HD Cope | |
/about-hdsa/scientific-board/ | Scientific Advisory Board | |
/healthcare-professionals-reso... | Healthcare Professional Resources A-TITLE Healthcare<br>Professional Resources | |
/healthcare-professionals-reso... | HD 101: CME SERIES | |
/healthcare-professionals-reso... | SOCIAL WORKER CONTINUING EDUCATION | |
/healthcare-professionals-reso... | RESOURCES FOR PHYSICAL THERAPISTS | |
/healthcare-professionals-reso... | PT CONTINUING EDUCATION | |
/healthcare-professionals-reso... | RESOURCES FOR SOCIAL WORKERS | |
/healthcare-professionals-reso... | OT CONTINUING EDUCATION | |
/healthcare-professionals-reso... | GENETIC COUNSELORS CONTINUING EDUCATION | |
https://hdsa.org/get-involved/ | Get Involved A-TITLE Get<br>Involved | |
/get-involved/donation-opportu... | DONATION OPPORTUNITIES | |
https://app.donorview.com/e18b | Externo Subdominio | One-Time Donation |
https://app.donorview.com/e18b | Externo Subdominio | Monthly Giving |
https://app.donorview.com/n3kl | Externo Subdominio | Tribute & Memorial Donations |
/get-involved/stock-appreciate... | Stocks / Assets / Real Estate | |
/get-involved/planned-giving/ | Legacy Giving | |
/get-involved/matching-gifts-p... | Matching Gifts Program | |
/get-involved/workplace-giving/ | Workplace Giving | |
http://hdsa.careasy.org/HOME.html | Externo Subdominio | Vehicle Donations |
/get-involved/hdsa-tree-of-hel... | HDSA Tree of Help & Hope | |
/get-involved/hdsa-family-funds/ | HDSA Family Funds | |
https://hdsa.org/sweepstakes/ | Sweepstakes | |
https://hdsa.org/partnerships/ | Corporate Partnerships | |
/volunteer-opportunities/ | Volunteer Opportunities | |
/volunteer-opportunities/ | Volunteer Registration | |
/get-involved/nyc-marathon-team/ | HDSA New York City Marathon | |
https://hdsa.org/advocacyhome/ | HD ADVOCACY | |
https://hdsa.org/team-hope-walk/ | Team Hope Walk Program | |
https://hdsa.org/events | HDSA Events | |
https://hdsa.org/shop/hdsagear/ | HDSA Gear | |
https://hdsa.org/amaryllis | Flowers for HDSA | |
/shop/publications/ | Publications | |
/shop/hdsa-partners/ | Shop HDSA Partners | |
https://survey.alchemer.com/s3... | Externo Subdominio | Learn More |
http://forms.office.com/r/XuPA... | Externo Subdominio Texto duplicado | Learn More |
/about-hdsa/annual-convention/ | Texto duplicado | Learn More |
https://huntingtonsdisease.rar... | Externo Subdominio Texto duplicado | Learn More |
https://www.flipsnack.com/9CFB... | Externo Subdominio Texto duplicado | Learn More |
/news/huntingtons-disease-soci... | Texto duplicado | Learn More |
https://www.flipsnack.com/9CFB... | Externo Subdominio Texto duplicado | Learn More |
https://www.freewill.com/hdsa?... | Externo Subdominio Texto duplicado | Learn More |
https://hdsa.org/podcast/ | Texto duplicado | Learn More |
/find-help/community-social-su... | Texto duplicado | Learn More |
/find-help/community-social-su... | Texto duplicado | Learn More |
https://hdsa.org/events/ | Texto duplicado | Learn More |
/what-is-hd/overview-of-huntin... | Nueva ventana | New to HD A-TITLE New to HD |
/about-hdsa/locate-resources/ | Nueva ventana | Locate Resources A-TITLE Locate Resources |
https://platform.emergingmed.c... | Nueva ventana Externo Subdominio | Enroll in a Trial A-TITLE Enroll in a Trial |
https://app.donorview.com/Dona... | Nueva ventana Externo Subdominio | Donate to HDSA A-TITLE Donate to HDSA |
https://survey.alchemer.com/s3... | Externo Subdominio | 07/19/2024 We Need Your Voice! Take The HD Symptoms And Treatment Impact Survey A-TITLE We Need Your Voice! Take The HD Symptoms And Treatment Impact Survey |
/news/huntingtons-disease-soci... | 07/10/2024 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS | |
/news/hdsa-awards-six-2024-don... | 07/10/2024 HDSA Awards Six 2024 Donald A. King Summer Research Fellowships A-TITLE HDSA Awards Six 2024 Donald A. King Summer Research Fellowships | |
/wp-content/uploads/2024/07/PR... | 07/09/2024 uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease A-TITLE uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease | |
/news/farewell-leadership-tran... | 06/27/2024 Farewell & Leadership Transition at HDSA A-TITLE Farewell & Leadership Transition at HDSA | |
/wp-content/uploads/2024/06/Wa... | 06/25/2024 Wave Life Sciences Update: Results from SELECT-HD Community Letter A-TITLE Wave Life Sciences Update: Results from SELECT-HD Community Letter | |
/wp-content/uploads/2024/06/Ju... | 06/20/2024 PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter A-TITLE PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter | |
https://thehdsapodcast.buzzspr... | Externo Subdominio | 06/12/2024 HDSA Podcast- New Episode Now Available! A-TITLE HDSA Podcast- New Episode Now Available! |
https://hdsa.org/blog/ | 06/09/2024 BLOG: This Week in HD Research A-TITLE BLOG: This Week in HD Research | |
/wp-content/uploads/2024/05/HD... | 05/23/2024 A message from Louise Vetter, President & CEO A-TITLE A message from Louise Vetter, President & CEO | |
/news/huntingtons-disease-awar... | 05/01/2024 Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA A-TITLE Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA | |
/news/hdsa-to-host-externally-... | 04/16/2024 HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting A-TITLE HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting | |
/hd-research/hd-human-biology-... | 04/05/2024 Now Accepting Human Biology Project LOIs A-TITLE Now Accepting Human Biology Project LOIs | |
https://www.hdsa.org/Convention | Subdominio | 03/27/2024 Act Fast: Early Bird Rate for HDSA Convention Ends March 31st! A-TITLE Act Fast: Early Bird Rate for HDSA Convention Ends March 31st! |
https://www.flipsnack.com/9CFB... | Externo Subdominio | 03/27/2024 HDSA Publishes 2023 Year in Review A-TITLE HDSA Publishes 2023 Year in Review |
/wp-content/uploads/2024/03/HD... | 03/12/2024 Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pr... A-TITLE Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pridopidine. | |
/news/huntingtons-disease-soci... | 02/13/2024 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES | |
https://hdsa.org/news/dksr2024/ | 01/09/2024 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN A-TITLE 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN | |
/news/hdsa-berman-topper-famil... | 01/09/2024 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN A-TITLE 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN | |
/wp-content/uploads/2023/12/Eo... | 12/20/2023 ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication A-TITLE ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication | |
/wp-content/uploads/2023/12/PR... | 12/19/2023 uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease A-TITLE uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease | |
/wp-content/uploads/2023/12/20... | 12/19/2023 uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy A-TITLE uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy | |
/news/huntingtons-disease-soci... | 12/04/2023 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS | |
/news/team-hdsa-raises-more-th... | 11/14/2023 TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA A-TITLE TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA | |
/news/now-accepting-2024-hdsa-... | 10/13/2023 Now Accepting 2024 HDSA Centers of Excellence Applications A-TITLE Now Accepting 2024 HDSA Centers of Excellence Applications | |
/annual-report-2022/ | 10/06/2023 2022 HDSA Annual Report A-TITLE 2022 HDSA Annual Report | |
https://hdsa.org/disability-tips/ | 10/04/2023 BLOG: Disability Tips A-TITLE BLOG: Disability Tips | |
/news/freeze-hd-update/ | 10/02/2023 FREEZE HD Update A-TITLE FREEZE HD Update | |
/news/huntingtons-disease-soci... | 09/18/2023 HDSA Earns Four-Star Rating From Charity Navigator A-TITLE HDSA Earns Four-Star Rating From Charity Navigator | |
https://chdifoundation.org/all... | Externo | 08/02/2023 Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference A-TITLE Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference |
/wp-content/uploads/2023/06/20... | 06/21/2023 uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy A-TITLE uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy | |
/wp-content/uploads/2023/06/PR... | 06/21/2023 uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease A-TITLE uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease | |
/news/huntingtons-disease-soci... | 05/24/2023 Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship A-TITLE Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship | |
/wp-content/uploads/2023/05/Ra... | 05/17/2023 HDSA Partnership with Rare-X Community Letter & FAQ A-TITLE HDSA Partnership with Rare-X Community Letter & FAQ | |
/news/hdsa-and-rare-x-launch-h... | 05/17/2023 HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease A-TITLE HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease | |
/wp-content/uploads/2023/05/Te... | 05/16/2023 Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets A-TITLE Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets | |
/news/hdsa-awards-2023/ | 05/08/2023 HDSA Awards Four 2023 Donald A. King Summer Research Fellowships A-TITLE HDSA Awards Four 2023 Donald A. King Summer Research Fellowships | |
https://en.hdbuzz.net/342 | Externo Subdominio | 04/26/2023 HDBUZZ: PROOF-HD study of pridopidine ends with negative result A-TITLE HDBUZZ: PROOF-HD study of pridopidine ends with negative result |
/wp-content/uploads/2023/04/Fi... | 04/25/2023 Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD. A-TITLE Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD. | |
http://hdsa.org/podcast/ | 03/28/2023 The HDSA Podcast Episode #3 A-TITLE The HDSA Podcast Episode #3 | |
/news/eva-announces-fda-approv... | 02/21/2023 Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine... A-TITLE Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets | |
https://en.hdbuzz.net/339 | Externo Subdominio | 02/14/2023 HDBuzz: Roche Phase II GENERATION HD2 study underway A-TITLE HDBuzz: Roche Phase II GENERATION HD2 study underway |
/news/huntingtons-disease-soci... | 02/13/2023 Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US A-TITLE Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US | |
https://hdsa.org/news/lvjhd/ | 02/10/2023 Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease A-TITLE Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease | |
/news/hdsa-publishes-2022-year... | 02/02/2023 HDSA Publishes 2022 Year in Review Magazine A-TITLE HDSA Publishes 2022 Year in Review Magazine | |
https://hdsa.org/podcast/ | 01/31/2023 Introducing The HDSA Podcast A-TITLE Introducing The HDSA Podcast | |
/news/roche-genentech-communit... | 01/11/2023 Roche-Genentech Community Letter: GENERATION HD2 study now open A-TITLE Roche-Genentech Community Letter: GENERATION HD2 study now open | |
/about-hdsa/annual-convention/ | 01/03/2023 38th Annual HDSA Convention in New Orleans Registration Now Open A-TITLE 38th Annual HDSA Convention in New Orleans Registration Now Open | |
/?smd_process_download=1&downl... | 12/21/2022 The Marker: HDSA’s 2022 Research Report is now available A-TITLE The Marker: HDSA’s 2022 Research Report is now available | |
/news/hdsa-community-statement... | 12/20/2022 HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families A-TITLE HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families | |
https://en.hdbuzz.net/338 | Externo Subdominio | 12/09/2022 HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial A-TITLE HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial |
/news/novartis-provides-status... | 12/08/2022 Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease A-TITLE Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease | |
/news/teresa-srajer-appointed-... | 12/06/2022 Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees A-TITLE Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees | |
/news/team-hdsa-raises-more-th... | 11/21/2022 Team HDSA Raises More Than $100,000 at the New York City Marathon A-TITLE Team HDSA Raises More Than $100,000 at the New York City Marathon | |
/news/neurocrine-biosciences-p... | 11/04/2022 Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine A-TITLE Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine | |
/news/hdsa-awards-886785-to-hu... | 11/02/2022 HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects A-TITLE HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects | |
/news/breaking-news-uniqure-pr... | 11/02/2022 Breaking News: uniQure provides update on AMT-130 A-TITLE Breaking News: uniQure provides update on AMT-130 | |
/news/eighth-annual-freeze-hd-... | 10/25/2022 Eighth Annual Freeze HD Raises More Than $200,000 A-TITLE Eighth Annual Freeze HD Raises More Than $200,000 | |
/news/ptc-provides-update-on-o... | 10/18/2022 PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518 A-TITLE PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518 | |
/news/three-year-study-shows-t... | 10/18/2022 Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD A-TITLE Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD | |
/wp-content/uploads/2022/09/HD... | 09/30/2022 HDSA Publishes 2021 Annual Report A-TITLE HDSA Publishes 2021 Annual Report | |
https://en.hdbuzz.net/335 | Externo Subdominio | 09/30/2022 HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials A-TITLE HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials |
/news/wave-life-sciences-annou... | 09/20/2022 Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial A-TITLE Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial | |
/news/breaking-news-roche-gene... | 09/18/2022 BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2 A-TITLE BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2 | |
https://www.youtube.com/watch?... | Externo Subdominio | 09/14/2022 HDSA Disability Chat: JHD & Social Security A-TITLE HDSA Disability Chat: JHD & Social Security |
https://www.youtube.com/watch?... | Externo Subdominio | 09/08/2022 HDSA Research Webinar: All You Need To Know About PROOF-HD A-TITLE HDSA Research Webinar: All You Need To Know About PROOF-HD |
https://en.hdbuzz.net/329 | Externo Subdominio | 08/29/2022 HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials A-TITLE HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials |
/news/novartis-provides-commun... | 08/24/2022 Novartis Provides Community Update Regarding VIBRANT-HD A-TITLE Novartis Provides Community Update Regarding VIBRANT-HD | |
/news/hdsa-research-webinar-hd... | 08/12/2022 HDSA Research Webinar: HD Clinical Trials Update A-TITLE HDSA Research Webinar: HD Clinical Trials Update | |
/news/now-accepting-2023-hdsa-... | 08/11/2022 Now Accepting 2023 HDSA Centers of Excellence Letters of Intent A-TITLE Now Accepting 2023 HDSA Centers of Excellence Letters of Intent | |
/news/sage-therapeutics-provid... | 08/10/2022 Sage Therapeutics Provides Positive Update on the SURVEYOR Study A-TITLE Sage Therapeutics Provides Positive Update on the SURVEYOR Study | |
https://www.youtube.com/watch?... | Externo Subdominio | 08/10/2022 HDSA Films presents KING’S CRUSADE (Part 2) A-TITLE HDSA Films presents KING’S CRUSADE (Part 2) |
/news/hdsa-statement-regarding... | 08/09/2022 HDSA Statement Regarding VIBRANT-HD Trial A-TITLE HDSA Statement Regarding VIBRANT-HD Trial | |
/news/uniqure-announces-second... | 08/09/2022 uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress A-TITLE uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress | |
https://www.youtube.com/watch?... | Externo Subdominio | 07/26/2022 HDSA Films presents KING’S CRUSADE (Part 1) A-TITLE HDSA Films presents KING’S CRUSADE (Part 1) |
/news/highlights-from-chdis-17... | 07/12/2022 Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference A-TITLE Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference | |
/news/hdsa-awards-2022-berman-... | 06/30/2022 HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship A-TITLE HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship | |
/news/uniqure-announces-update... | 06/23/2022 uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease A-TITLE uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease | |
https://en.hdbuzz.net/326 | Externo Subdominio | 06/20/2022 HDBuzz: How clever computers are helping us understand Huntington’s disease A-TITLE HDBuzz: How clever computers are helping us understand Huntington’s disease |
/news/new-system-that-defines-... | 06/16/2022 New system that defines Huntington’s disease will ‘revolutionise’ drug trials A-TITLE New system that defines Huntington’s disease will ‘revolutionise’ drug trials | |
https://en.hdbuzz.net/325 | Externo Subdominio | 06/15/2022 HDBuzz: A new roadmap to track Huntington’s disease progression A-TITLE HDBuzz: A new roadmap to track Huntington’s disease progression |
/news/37th-annual-hdsa-convent... | 06/14/2022 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again A-TITLE 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again | |
/news/annexon-biosciences-anno... | 06/07/2022 Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD A-TITLE Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD | |
https://www.youtube.com/watch?... | Externo Subdominio | 05/28/2022 HDSA Films presents THE STORY OF E.J. + KATY A-TITLE HDSA Films presents THE STORY OF E.J. + KATY |
/news/hdsa-wins-2022-hd-hockey... | 05/20/2022 HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000 A-TITLE HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000 | |
/news/hdsa-announces-winners-o... | 05/11/2022 HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship A-TITLE HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship | |
https://ir.ptcbio.com/news-rel... | Externo Subdominio | 03/31/2022 PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease A-TITLE PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease |
https://en.hdbuzz.net/323 | Externo Subdominio | 03/18/2022 HDBuzz: A spoonful of branaplam helps the huntingtin go down A-TITLE HDBuzz: A spoonful of branaplam helps the huntingtin go down |
https://en.hdbuzz.net/322 | Externo Subdominio | 03/08/2022 HDBuzz: Day 3 of the 2022 HD Therapeutics Conference A-TITLE HDBuzz: Day 3 of the 2022 HD Therapeutics Conference |
https://en.hdbuzz.net/321 | Externo Subdominio | 03/04/2022 HDBuzz: Day 2 of the 2022 HD Therapeutics Conference A-TITLE HDBuzz: Day 2 of the 2022 HD Therapeutics Conference |
https://en.hdbuzz.net/320 | Externo Subdominio | 03/03/2022 HDBuzz: Day 1 of the 2022 HD Therapeutics Conference A-TITLE HDBuzz: Day 1 of the 2022 HD Therapeutics Conference |
/news/sage-therapeutics-provid... | 02/22/2022 Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718. A-TITLE Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718. | |
https://en.hdbuzz.net/319?fbcl... | Externo Subdominio | 02/18/2022 HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time A-TITLE HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time |
/news/huntingtons-disease-soci... | 02/09/2022 Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence A-TITLE Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence | |
/news/uniqure-announces-dosing... | 02/07/2022 uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease A-TITLE uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease | |
/news/hdbuzz-oral-drug-may-cha... | 02/02/2022 HDBuzz: Oral drug may change the story for huntingtin lowering A-TITLE HDBuzz: Oral drug may change the story for huntingtin lowering | |
/about-hdsa/annual-convention/ | 02/01/2022 Register Today for the 37th Annual HDSA Convention in Atlanta A-TITLE Register Today for the 37th Annual HDSA Convention in Atlanta | |
/wp-content/uploads/2022/01/HD... | 01/31/2022 HDSA Publishes 2021 Year In Review Magazine A-TITLE HDSA Publishes 2021 Year In Review Magazine | |
/news/breaking-news-novartis-p... | 01/27/2022 BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial A-TITLE BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial | |
https://www.youtube.com/watch?... | Externo Subdominio | 01/21/2022 VIDEO: Roche Community Presentation of New Tominersen Data A-TITLE VIDEO: Roche Community Presentation of New Tominersen Data |
/news/breaking-news-roche-has-... | 01/18/2022 BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial A-TITLE BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial | |
/news/annexon-biosciences-repo... | 01/04/2022 Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following ... A-TITLE Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month T... | |
https://www.youtube.com/watch?... | Externo Subdominio | 12/24/2021 VIDEO: Happy Holidays from Louise Vetter A-TITLE VIDEO: Happy Holidays from Louise Vetter |
/news/uniqure-announces-clinic... | 12/16/2021 uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease A-TITLE uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease | |
/wp-content/uploads/2021/12/Th... | 12/08/2021 The Marker is Now Available! Read HDSA’s 2021 Research Report A-TITLE The Marker is Now Available! Read HDSA’s 2021 Research Report | |
/news/neurocrine-biosciences-a... | 12/07/2021 Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease A-TITLE Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease | |
/news/dr-jeff-carroll-dr-beth-... | 12/03/2021 Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees A-TITLE Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees | |
https://www.youtube.com/watch?... | Externo Subdominio | 11/16/2021 HDSA Coffee Walk with Jennifer Simpson A-TITLE HDSA Coffee Walk with Jennifer Simpson |
https://hdsa.org/7daysofaction/ | 11/15/2021 TAKE ACTION: HDSA’s 7 Days of Action A-TITLE TAKE ACTION: HDSA’s 7 Days of Action | |
https://www.youtube.com/watch?... | Externo Subdominio | 11/12/2021 HDSA Films presents THE DOHERTYS: FINDING THE FUNNY A-TITLE HDSA Films presents THE DOHERTYS: FINDING THE FUNNY |
/news/hdsa-applauds-chairman-n... | 11/10/2021 HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act A-TITLE HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act | |
/news/more-than-64000-raised-a... | 11/10/2021 More than $64,000 Raised at the TCS New York City Marathon to Support HDSA A-TITLE More than $64,000 Raised at the TCS New York City Marathon to Support HDSA | |
/news/hdsa-welcomes-dr-arik-jo... | 11/01/2021 HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer A-TITLE HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer | |
/news/virtual-7th-annual-freez... | 10/19/2021 Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease A-TITLE Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease | |
/news/hdsa-awards-749000-to-hd... | 10/14/2021 HDSA Awards $749,000 to HD Human Biology Projects A-TITLE HDSA Awards $749,000 to HD Human Biology Projects | |
https://en.hdbuzz.net/312 | Externo Subdominio | 09/29/2021 HDBuzz: Q&A with Roche about GENERATION-HD1 A-TITLE HDBuzz: Q&A with Roche about GENERATION-HD1 |
/news/hdsa-publishes-2020-annu... | 09/22/2021 HDSA Publishes 2020 Annual Report A-TITLE HDSA Publishes 2020 Annual Report | |
/news/sage-therapeutics-receiv... | 09/16/2021 Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease A-TITLE Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease | |
/wp-content/uploads/2021/09/Ro... | 09/10/2021 Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data A-TITLE Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data | |
/news/hdbuzz-creation-of-a-mol... | 08/30/2021 HDBuzz: Creation of a molecular “dimmer switch” advances gene editing A-TITLE HDBuzz: Creation of a molecular “dimmer switch” advances gene editing | |
/news/hdbuzz-unpacking-recent-... | 08/16/2021 HDBuzz: Unpacking Recent Gene Therapy Press A-TITLE HDBuzz: Unpacking Recent Gene Therapy Press | |
/news/update-from-voyager-ther... | 08/09/2021 Update from Voyager Therapeutics A-TITLE Update from Voyager Therapeutics | |
https://www.youtube.com/watch?... | Externo Subdominio | 08/06/2021 HDSA Films Presents The Osborns: Our Legacy A-TITLE HDSA Films Presents The Osborns: Our Legacy |
/news/video-watch-kala-booth-d... | 08/04/2021 VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress A-TITLE VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress | |
/news/hdsa-applauds-ec-subcomm... | 07/29/2021 HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act A-TITLE HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act | |
https://en.hdbuzz.net/308 | Externo Subdominio | 07/21/2021 HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease A-TITLE HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease |
https://vimeopro.com/user50548... | Externo | 07/02/2021 NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions A-TITLE NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions |
/news/virtual-36th-annual-hdsa... | 06/14/2021 Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe A-TITLE Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe | |
/news/hdsa-awards-two-berman-t... | 06/12/2021 HDSA Awards Two Berman-Topper Family HD Career Development Fellowships A-TITLE HDSA Awards Two Berman-Topper Family HD Career Development Fellowships | |
/news/hdsa-partners-with-patie... | 06/10/2021 HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers A-TITLE HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers | |
/news/uniqures-amt-130-for-tre... | 05/28/2021 uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial A-TITLE uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial | |
https://www.youtube.com/watch?... | Externo Subdominio | 04/30/2021 HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data A-TITLE HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data |
https://en.hdbuzz.net/306 | Externo Subdominio | 04/30/2021 HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference A-TITLE HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference |
https://en.hdbuzz.net/305 | Externo Subdominio | 04/29/2021 HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference A-TITLE HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference |
https://en.hdbuzz.net/304 | Externo Subdominio | 04/28/2021 HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference A-TITLE HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference |
/news/hdsa-announces-winners-o... | 04/26/2021 HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship A-TITLE HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship | |
https://fs22.formsite.com/hdsa... | Externo Subdominio | 04/21/2021 Now Accepting 2021 National Award Nominations A-TITLE Now Accepting 2021 National Award Nominations |
/wp-content/uploads/2021/04/20... | 04/05/2021 uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130 A-TITLE uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130 | |
/about-hdsa/annual-convention/ | 04/02/2021 Register Today For Free | Virtual 36th Annual HDSA Convention A-TITLE Register Today For Free | Virtual 36th Annual HDSA Convention | |
https://en.hdbuzz.net/301 | Externo Subdominio | 03/30/2021 HDBuzz: Wave Life Sciences PRECISION-HD Trials A-TITLE HDBuzz: Wave Life Sciences PRECISION-HD Trials |
/wp-content/uploads/2021/03/HD... | 03/29/2021 Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials A-TITLE Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials | |
https://www.youtube.com/watch?... | Externo Subdominio | 03/26/2021 VIDEO: A Message from Roche about the GENERATION-HD1 Trial News A-TITLE VIDEO: A Message from Roche about the GENERATION-HD1 Trial News |
https://www.youtube.com/watch?... | Externo Subdominio | 03/25/2021 RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here? A-TITLE RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here? |
https://en.hdbuzz.net/300 | Externo Subdominio | 03/23/2021 HDBuzz: Sad News From Roche A-TITLE HDBuzz: Sad News From Roche |
/wp-content/uploads/2021/03/To... | 03/22/2021 Roche Provides a Disappointing Update on Tominersen A-TITLE Roche Provides a Disappointing Update on Tominersen | |
/news/hdsa-reintroduces-the-hd... | 03/19/2021 HDSA Reintroduces the HD Parity Act A-TITLE HDSA Reintroduces the HD Parity Act | |
https://www.youtube.com/watch?... | Externo Subdominio | 03/18/2021 HDSA Films presents My Father, My Hero A-TITLE HDSA Films presents My Father, My Hero |
/news/now-accepting-2021-human... | 03/12/2021 Now Accepting 2021 Human Biology Project Letters of Intent A-TITLE Now Accepting 2021 Human Biology Project Letters of Intent | |
https://en.hdbuzz.net/299 | Externo Subdominio | 02/25/2021 HDBuzz: Vaccines and HD A-TITLE HDBuzz: Vaccines and HD |
/news/the-36th-annual-hdsa-con... | 02/18/2021 The 36th Annual HDSA Convention Goes Virtual! A-TITLE The 36th Annual HDSA Convention Goes Virtual! | |
/news/hdsa-expands-centers-of-... | 02/02/2021 HDSA Expands Centers of Excellence Program to Fifty-Four Sites A-TITLE HDSA Expands Centers of Excellence Program to Fifty-Four Sites | |
/wp-content/uploads/2021/02/HD... | 01/29/2021 HDSA Publishes 2020 Year In Review Magazine A-TITLE HDSA Publishes 2020 Year In Review Magazine | |
/news/dr-victor-sung-named-cha... | 01/06/2021 Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees A-TITLE Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees | |
https://www.youtube.com/watch?... | Externo Subdominio | 01/01/2021 Happy New Year! A-TITLE Happy New Year! |
https://www.youtube.com/watch?... | Externo Subdominio | 12/17/2020 NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead A-TITLE NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead |
/wp-content/uploads/2020/12/Th... | 12/10/2020 HDSA Publishes The Marker: 2020 Research Report A-TITLE HDSA Publishes The Marker: 2020 Research Report | |
/news/hdsa-awards-four-hd-huma... | 12/03/2020 HDSA Awards Four HD Human Biology Project Fellowships For 2020 A-TITLE HDSA Awards Four HD Human Biology Project Fellowships For 2020 | |
https://en.hdbuzz.net/293 | Externo Subdominio | 10/06/2020 HDBUZZ: Updates from the EHDN Plenary Meeting 2020 A-TITLE HDBUZZ: Updates from the EHDN Plenary Meeting 2020 |
/news/virtual-6th-annual-freez... | 09/28/2020 VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA A-TITLE VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA | |
/wp-content/uploads/2020/09/HD... | 09/10/2020 HDSA Publishes 2019 Annual Report A-TITLE HDSA Publishes 2019 Annual Report | |
https://en.hdbuzz.net/291 | Externo Subdominio | 08/26/2020 HDBuzz: When genes are unstable: Targeting somatic instability in HD A-TITLE HDBuzz: When genes are unstable: Targeting somatic instability in HD |
https://www.youtube.com/watch?... | Externo Subdominio | 08/25/2020 NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease A-TITLE NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease |
https://en.hdbuzz.net/290 | Externo Subdominio | 08/18/2020 HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off A-TITLE HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off |
https://en.hdbuzz.net/289 | Externo Subdominio | 08/14/2020 HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR A-TITLE HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR |
/news/anne-leserman-msw-announ... | 08/10/2020 Anne Leserman announces her retirement from HDSA A-TITLE Anne Leserman announces her retirement from HDSA | |
/find-help/clinical-care-servi... | 07/28/2020 Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence A-TITLE Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence | |
https://www.youtube.com/watch?... | Externo Subdominio | 07/22/2020 NEW EPISODE: Here’s The Deal with End of Life & HD A-TITLE NEW EPISODE: Here’s The Deal with End of Life & HD |
https://abcn.ws/2YUkn7w | Externo | 07/06/2020 Huntington’s Disease Featured on ABC News Live Prime A-TITLE Huntington’s Disease Featured on ABC News Live Prime |
https://highlandcountypress.co... | Externo | 06/24/2020 HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD A-TITLE HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD |
/wp-content/uploads/2020/06/PR... | 06/19/2020 uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease A-TITLE uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease | |
/about-hdsa/annual-convention/... | 06/15/2020 Virtual HDSA Convention Recorded Sessions Now Available A-TITLE Virtual HDSA Convention Recorded Sessions Now Available | |
/news/virtual-35th-annual-hdsa... | 06/10/2020 Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe A-TITLE Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe | |
/news/hdsa-supports-the-fight-... | 06/03/2020 HDSA Supports The Fight Against Racism A-TITLE HDSA Supports The Fight Against Racism | |
/about-hdsa/annual-convention/ | 06/01/2020 Register for the Virtual 35th Annual HDSA Convention A-TITLE Register for the Virtual 35th Annual HDSA Convention | |
https://player.vimeo.com/video... | Externo Subdominio | 05/29/2020 Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference A-TITLE Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference |
/news/hdsa-awards-berman-toppe... | 05/27/2020 HDSA Awards Berman-Topper Family HD Career Development Fellowship A-TITLE HDSA Awards Berman-Topper Family HD Career Development Fellowship | |
/wp-content/uploads/2020/05/In... | 05/15/2020 International Huntington’s Disease Awareness Day – May 15th A-TITLE International Huntington’s Disease Awareness Day – May 15th | |
/news/hdsa-announces-winners-o... | 05/07/2020 HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship A-TITLE HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship | |
/wp-content/uploads/2020/04/Ro... | 04/20/2020 COMMUNITY STATEMENT: Update On Tominersen (RG6042) A-TITLE COMMUNITY STATEMENT: Update On Tominersen (RG6042) | |
https://www.youtube.com/watch?... | Externo Subdominio | 04/17/2020 NEW EPISODE: Here’s The Deal with Self-Care A-TITLE NEW EPISODE: Here’s The Deal with Self-Care |
https://en.hdbuzz.net/284 | Externo Subdominio | 04/06/2020 HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research? A-TITLE HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research? |
/news/hd-covid-19-pandemic-res... | 04/03/2020 HD & COVID-19 PANDEMIC RESOURCES A-TITLE HD & COVID-19 PANDEMIC RESOURCES | |
https://www.youtube.com/watch?... | Externo Subdominio | 04/02/2020 NEW EPISODE: Here’s The Deal with COVID-19 & HD A-TITLE NEW EPISODE: Here’s The Deal with COVID-19 & HD |
/wp-content/uploads/2020/03/FA... | 03/27/2020 FREQUENTLY ASKED QUESTIONS: Disability & COVID-19 A-TITLE FREQUENTLY ASKED QUESTIONS: Disability & COVID-19 | |
/wp-content/uploads/2020/03/Co... | 03/27/2020 Community Statement A-TITLE Community Statement | |
https://www.youtube.com/watch?... | Externo Subdominio | 03/26/2020 NEW EPISODE: Here’s The Deal with Disability A-TITLE NEW EPISODE: Here’s The Deal with Disability |
/wp-content/uploads/2020/03/CO... | 03/20/2020 HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual! A-TITLE HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual! | |
/wp-content/uploads/2020/03/CO... | 03/18/2020 HDSA Community Update: HD & COVID-19 A-TITLE HDSA Community Update: HD & COVID-19 | |
/wp-content/uploads/2020/03/CO... | 03/13/2020 HDSA Community Update A-TITLE HDSA Community Update | |
https://en.hdbuzz.net/283 | Externo Subdominio | 03/13/2020 HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models A-TITLE HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models |
/wp-content/uploads/2020/03/CO... | 03/05/2020 HDSA Convention Community Statement A-TITLE HDSA Convention Community Statement | |
https://en.hdbuzz.net/282 | Externo Subdominio | 03/03/2020 HDBuzz: Day 3 at HD Therapeutics Conference A-TITLE HDBuzz: Day 3 at HD Therapeutics Conference |
https://www.youtube.com/watch?... | Externo Subdominio | 03/02/2020 HDSA Films Presents ALLIE & JOE A-TITLE HDSA Films Presents ALLIE & JOE |
https://en.hdbuzz.net/281 | Externo Subdominio | 03/02/2020 HDBuzz: Day 2 at HD Therapeutics Conference A-TITLE HDBuzz: Day 2 at HD Therapeutics Conference |
https://en.hdbuzz.net/280?fbcl... | Externo Subdominio | 02/28/2020 HDBuzz: Day 1 at HD Therapeutics Conference A-TITLE HDBuzz: Day 1 at HD Therapeutics Conference |
/news/hdsa-announces-fifty-202... | 02/05/2020 HDSA Announces Fifty 2020 Centers of Excellence A-TITLE HDSA Announces Fifty 2020 Centers of Excellence | |
/wp-content/uploads/2020/01/HD... | 01/17/2020 HDSA Publishes 2019 Year In Review Magazine A-TITLE HDSA Publishes 2019 Year In Review Magazine | |
/about-hdsa/annual-convention/ | 01/17/2020 REGISTER TODAY! 35th Annual HDSA Convention in New Orleans A-TITLE REGISTER TODAY! 35th Annual HDSA Convention in New Orleans | |
/news/community-letter-from-wa... | 12/30/2019 Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2 A-TITLE Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2 | |
/news/wave-life-sciences-annou... | 12/30/2019 Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease A-TITLE Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease | |
/news/hdsa-earns-fourth-consec... | 12/23/2019 HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator A-TITLE HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator | |
/news/hdsa-awards-inaugural-cl... | 12/23/2019 HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence A-TITLE HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence | |
/news/hdsa-listed-in-top-10-vo... | 12/05/2019 HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits A-TITLE HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits | |
/news/hdsa-welcomes-three-trus... | 11/27/2019 HDSA Welcomes Three Trustees to National Board A-TITLE HDSA Welcomes Three Trustees to National Board | |
/wp-content/uploads/2019/11/HD... | 11/19/2019 HDSA Publishes The Marker – 2019 Research Report A-TITLE HDSA Publishes The Marker – 2019 Research Report | |
/news/hdsas-new-york-city-mara... | 11/06/2019 HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD A-TITLE HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD | |
/news/hdsa-awards-five-2019-hd... | 10/15/2019 HDSA Awards Five 2019 HD Human Biology Project Fellowships A-TITLE HDSA Awards Five 2019 HD Human Biology Project Fellowships | |
/news/community-statement-from... | 10/15/2019 Community Statement from Roche / Genentech A-TITLE Community Statement from Roche / Genentech | |
/news/view-5th-annual-freeze-h... | 10/01/2019 View 5th Annual Freeze HD Red Carpet and Event Photos A-TITLE View 5th Annual Freeze HD Red Carpet and Event Photos | |
/news/5th-annual-freeze-hd-rai... | 10/01/2019 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA A-TITLE 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA | |
/wp-content/uploads/2019/12/HD... | 09/11/2019 2018 HDSA Annual Report A-TITLE 2018 HDSA Annual Report | |
https://en.hdbuzz.net/275 | Externo Subdominio | 08/05/2019 HDBUZZ: Exciting New Huntingtin Lowering Tool Described A-TITLE HDBUZZ: Exciting New Huntingtin Lowering Tool Described |
https://fs22.formsite.com/hdsa... | Externo Subdominio | 07/30/2019 Now Accepting 2020 HDSA Centers of Excellence Letters of Interest A-TITLE Now Accepting 2020 HDSA Centers of Excellence Letters of Interest |
https://www.youtube.com/watch?... | Externo Subdominio | 07/23/2019 VIDEO: Here’s The Deal With Caregiving While Positive A-TITLE VIDEO: Here’s The Deal With Caregiving While Positive |
https://www.youtube.com/watch?... | Externo Subdominio | 07/15/2019 VIDEO: 34th Annual HDSA Convention Recap A-TITLE VIDEO: 34th Annual HDSA Convention Recap |
/news/hdsa-sets-new-attendance... | 07/01/2019 HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston A-TITLE HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston | |
/news/community-statement-from... | 06/28/2019 Community Statement from uniQure A-TITLE Community Statement from uniQure | |
/news/hdsa-chdi-foundation-lau... | 06/20/2019 HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research A-TITLE HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research | |
/news/hdsa-adds-allison-bartle... | 06/11/2019 HDSA Adds Allison Bartlett as Manager of Disability Programs A-TITLE HDSA Adds Allison Bartlett as Manager of Disability Programs | |
/news/hdsa-awards-2019-berman-... | 05/31/2019 HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships A-TITLE HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships | |
https://kinzinger.house.gov/ne... | Externo Subdominio | 05/15/2019 Huntington’s Disease Parity Act Is Reintroduced A-TITLE Huntington’s Disease Parity Act Is Reintroduced |
https://en.hdbuzz.net/273?fbcl... | Externo Subdominio | 05/07/2019 HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication A-TITLE HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication |
https://player.vimeo.com/video... | Externo Subdominio | 04/18/2019 Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference A-TITLE Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference |
/news/hdsa-announces-winners-o... | 04/16/2019 HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship A-TITLE HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship | |
https://www.youtube.com/watch?... | Externo Subdominio | 04/11/2019 HDSA Films Presents “The Hodgsons” Short Film A-TITLE HDSA Films Presents “The Hodgsons” Short Film |
/wp-content/uploads/2019/04/Wa... | 04/10/2019 Update on PRECISION-HD program A-TITLE Update on PRECISION-HD program | |
https://hdsa.org/blog/ | 04/04/2019 BLOG: This Week in HD Research A-TITLE BLOG: This Week in HD Research | |
https://en.hdbuzz.net/272 | Externo Subdominio | 03/22/2019 HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the A... A-TITLE HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open lab... |
/wp-content/uploads/2019/03/Ro... | 03/21/2019 COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design A-TITLE COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design | |
https://en.hdbuzz.net/271 | Externo Subdominio | 03/14/2019 HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease A-TITLE HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease |
https://en.hdbuzz.net/270 | Externo Subdominio | 03/04/2019 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap A-TITLE HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap |
https://en.hdbuzz.net/269 | Externo Subdominio | 03/01/2019 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap A-TITLE HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap |
https://www.today.com/video/sp... | Externo Subdominio | 02/11/2019 Huntington’s Disease Featured On The Today Show A-TITLE Huntington’s Disease Featured On The Today Show |
/news/hdsa-expands-centers-of-... | 02/06/2019 HDSA Expands Centers of Excellence Program to Forty-Seven A-TITLE HDSA Expands Centers of Excellence Program to Forty-Seven | |
https://en.hdbuzz.net/267 | Externo Subdominio | 01/30/2019 HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race A-TITLE HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race |
/wp-content/uploads/2019/01/Ro... | 01/28/2019 First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies A-TITLE First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies | |
/wp-content/uploads/2019/01/HD... | 01/24/2019 HDSA Publishes 2018 Year In Review Magazine A-TITLE HDSA Publishes 2018 Year In Review Magazine | |
https://tools.eurolandir.com/t... | Externo Subdominio | 01/22/2019 uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease A-TITLE uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease |
/wp-content/uploads/2019/01/20... | 01/16/2019 HDSA Launches Youth Social Worker Program A-TITLE HDSA Launches Youth Social Worker Program | |
/news/breaking-news-roche-gene... | 12/19/2018 BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study A-TITLE BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study | |
/wp-content/uploads/2018/12/HD... | 12/11/2018 HDSA’s 2018 Research Report Now Available A-TITLE HDSA’s 2018 Research Report Now Available | |
/wp-content/uploads/2018/12/20... | 12/10/2018 EJ Garner Appointed as Chair of HDSA’s National Board of Trustees A-TITLE EJ Garner Appointed as Chair of HDSA’s National Board of Trustees | |
https://en.hdbuzz.net/266?fbcl... | Externo Subdominio | 12/04/2018 HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease A-TITLE HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease |
/news/genentech-roche-announce... | 11/10/2018 Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study A-TITLE Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study | |
/wp-content/uploads/2018/10/20... | 10/23/2018 HDSA Awards Five HD Human Biology Project Fellowships for 2018 A-TITLE HDSA Awards Five HD Human Biology Project Fellowships for 2018 | |
/wp-content/uploads/2018/10/FI... | 10/17/2018 FAQs: Upcoming Genentech/Roche Studies A-TITLE FAQs: Upcoming Genentech/Roche Studies | |
https://en.hdbuzz.net/264 | Externo Subdominio | 10/03/2018 HDBuzz: Kids Get Huntington’s Disease Too A-TITLE HDBuzz: Kids Get Huntington’s Disease Too |
https://www.youtube.com/watch?... | Externo Subdominio | 09/26/2018 RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042 A-TITLE RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042 |
https://en.hdbuzz.net/263/ | Externo Subdominio | 09/18/2018 HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease A-TITLE HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease |
/wp-content/uploads/2018/09/Ro... | 09/16/2018 Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018 A-TITLE Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018 | |
/news/roches-phase-3-trial-for... | 09/16/2018 Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1 A-TITLE Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1 | |
/wp-content/uploads/2018/08/Ro... | 08/03/2018 Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx) A-TITLE Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx) | |
/wp-content/uploads/2018/08/IO... | 08/02/2018 IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease A-TITLE IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease | |
/news/now-accepting-2019-hdsa-... | 08/01/2018 Now Accepting 2019 HDSA Centers of Excellence Letters of Interest A-TITLE Now Accepting 2019 HDSA Centers of Excellence Letters of Interest | |
https://en.hdbuzz.net/260 | Externo Subdominio | 07/10/2018 HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed A-TITLE HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed |
https://www.youtube.com/watch?... | Externo Subdominio | 06/27/2018 VIDEO: 33rd Annual HDSA Convention Recap A-TITLE VIDEO: 33rd Annual HDSA Convention Recap |
/wp-content/uploads/2018/06/20... | 06/13/2018 33rd Annual HDSA Convention Recap A-TITLE 33rd Annual HDSA Convention Recap | |
https://vimeo.com/274605963 | Externo | 06/13/2018 VIDEO: HD Buzz at the 33rd Annual HDSA Convention A-TITLE VIDEO: HD Buzz at the 33rd Annual HDSA Convention |
https://vimeo.com/274610527 | Externo | 06/13/2018 VIDEO: 33rd Annual HDSA Convention Research Forum A-TITLE VIDEO: 33rd Annual HDSA Convention Research Forum |
https://vimeo.com/274575984 | Externo | 06/13/2018 VIDEO: 33rd Annual HDSA Convention Opening Ceremony A-TITLE VIDEO: 33rd Annual HDSA Convention Opening Ceremony |
/wp-content/uploads/2018/06/Ro... | 06/07/2018 Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx ) A-TITLE Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx ) | |
/wp-content/uploads/2018/05/20... | 05/15/2018 HDSA Awards Berman-Topper Family HD Career Development Fellowship A-TITLE HDSA Awards Berman-Topper Family HD Career Development Fellowship | |
/wp-content/uploads/2018/04/Ap... | 04/27/2018 FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche A-TITLE FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche | |
http://ir.ionispharma.com/node... | Externo Subdominio | 04/24/2018 New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measu... A-TITLE New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Hunt... |
/wp-content/uploads/2018/04/20... | 04/24/2018 HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship A-TITLE HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship | |
/wp-content/uploads/2018/04/Ro... | 04/20/2018 Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx ) A-TITLE Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx ) | |
https://en.hdbuzz.net/257 | Externo Subdominio | 04/19/2018 HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers A-TITLE HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers |
/hd-research/research-video-po... | 03/29/2018 VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta A-TITLE VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta | |
/wp-content/uploads/2018/03/03... | 03/12/2018 HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders A-TITLE HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders | |
/news/hdsa-earns-second-consec... | 03/05/2018 HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator A-TITLE HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator | |
https://en.hdbuzz.net/255 | Externo Subdominio | 03/05/2018 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3 A-TITLE HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3 |
/wp-content/uploads/2018/03/Io... | 03/01/2018 IONIS-HTT Rx Community Statement A-TITLE IONIS-HTT Rx Community Statement | |
http://ir.ionispharma.com/node... | Externo Subdominio | 03/01/2018 IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease A-TITLE IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease |
https://en.hdbuzz.net/254 | Externo Subdominio | 03/01/2018 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2 A-TITLE HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2 |
https://en.hdbuzz.net/253 | Externo Subdominio | 02/28/2018 HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1 A-TITLE HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1 |
/wp-content/uploads/2018/02/20... | 02/13/2018 HDSA Announces Forty-Three Centers of Excellence A-TITLE HDSA Announces Forty-Three Centers of Excellence | |
/wp-content/uploads/2018/02/HD... | 02/02/2018 CEO Memo: Chorea Medication Co-Pay Assistance Programs Information A-TITLE CEO Memo: Chorea Medication Co-Pay Assistance Programs Information | |
/news/faq-ionis-huntingtin-low... | 12/12/2017 FAQs: Ionis Huntingtin-Lowering Trial A-TITLE FAQs: Ionis Huntingtin-Lowering Trial | |
/news/statement-by-louise-vett... | 12/11/2017 Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement A-TITLE Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement | |
/news/breaking-news-update-on-... | 12/11/2017 BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future A-TITLE BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future | |
/news/huntingtons-disease-soci... | 11/20/2017 Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Pri... A-TITLE Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care P... | |
https://curehd.blogspot.com/20... | Externo Subdominio | 11/14/2017 HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000 A-TITLE HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000 |
/news/hdsa-pays-tribute-to-fou... | 11/14/2017 HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy A-TITLE HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy | |
https://en.hdbuzz.net/248 | Externo Subdominio | 11/02/2017 HDBUZZ: Switch off the genome editor when you’re done A-TITLE HDBUZZ: Switch off the genome editor when you’re done |
https://en.hdbuzz.net/243 | Externo Subdominio | 10/15/2017 Update confirms Huntington’s disease ‘gene silencing’ trial on track A-TITLE Update confirms Huntington’s disease ‘gene silencing’ trial on track |
/news/huntingtons-disease-soci... | 10/12/2017 Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017 A-TITLE Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017 | |
https://en.hdbuzz.net/246 | Externo Subdominio | 09/25/2017 HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function A-TITLE HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function |
/news/global-huntingtons-disea... | 09/19/2017 Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE) A-TITLE Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE) | |
/news/huntingtons-disease-soci... | 09/18/2017 Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie A-TITLE Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie | |
/news/healthwell-foundation-op... | 08/01/2017 HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients A-TITLE HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients | |
https://en.hdbuzz.net/244 | Externo Subdominio | 07/28/2017 HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD A-TITLE HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD |
http://ir.wavelifesciences.com... | Externo Subdominio | 07/17/2017 Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease A-TITLE Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease |
https://en.hdbuzz.net/podcast/8 | Externo Subdominio | 06/29/2017 Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper de... A-TITLE Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ... |
/wp-content/uploads/2017/06/20... | 06/22/2017 Exciting News: IONIS provides update on Huntingtin lowering trial A-TITLE Exciting News: IONIS provides update on Huntingtin lowering trial | |
/news/huntingtons-disease-soci... | 06/21/2017 HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES | |
https://en.hdbuzz.net/242 | Externo Subdominio | 06/08/2017 New study reveals a potential HD biomarker A-TITLE New study reveals a potential HD biomarker |
/news/huntingtons-disease-soci... | 05/30/2017 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARD... A-TITLE HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGI... | |
/news/huntingtons-disease-pari... | 05/24/2017 Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease A-TITLE Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease | |
/news/huntingtons-disease-soci... | 05/16/2017 Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City A-TITLE Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City | |
/news/huntingtons-disease-soci... | 05/15/2017 Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship A-TITLE Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship | |
/news/huntingtons-disease-soci... | 05/15/2017 Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month A-TITLE Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month | |
https://en.hdbuzz.net/241 | Externo Subdominio | 05/08/2017 Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.) A-TITLE Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.) |
/news/huntingtons-disease-soci... | 05/02/2017 Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance ... A-TITLE Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare... | |
https://en.hdbuzz.net/240 | Externo Subdominio | 05/01/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 3 A-TITLE Huntington’s Disease Therapeutics Conference 2017 – Day 3 |
https://en.hdbuzz.net/239 | Externo Subdominio | 05/01/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 2 A-TITLE Huntington’s Disease Therapeutics Conference 2017 – Day 2 |
https://en.hdbuzz.net/238 | Externo Subdominio | 04/27/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 1 A-TITLE Huntington’s Disease Therapeutics Conference 2017 – Day 1 |
https://en.hdbuzz.net/237 | Externo Subdominio | 04/21/2017 Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research. A-TITLE Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research. |
http://www.prnewswire.com/news... | Externo Subdominio | 04/14/2017 Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease A-TITLE Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease |
http://en.hdbuzz.net/236 | Externo Subdominio | 04/05/2017 HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease A-TITLE HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease |
https://en.hdbuzz.net/235 | Externo Subdominio | 03/29/2017 Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop. A-TITLE Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop. |
/news/2017-national-awards-nom... | 03/28/2017 2017 National Awards Nominations A-TITLE 2017 National Awards Nominations | |
/news/save-the-date-for-the-la... | 03/13/2017 Save the Date- For the largest global gathering of the HD community! A-TITLE Save the Date- For the largest global gathering of the HD community! | |
/news/huntingtons-disease-soci... | 02/28/2017 Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary A-TITLE Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary | |
http://en.hdbuzz.net/234 | Externo Subdominio | 02/24/2017 Weeding out the truth: can cannabis improve Huntington’s? A-TITLE Weeding out the truth: can cannabis improve Huntington’s? |
http://en.hdbuzz.net/233 | Externo Subdominio | 02/22/2017 Huntingtin grabs a hammer: DNA repair in HD A-TITLE Huntingtin grabs a hammer: DNA repair in HD |
http://en.hdbuzz.net/232 | Externo Subdominio | 02/10/2017 The benefits of migration, highlighted in Huntington’s disease A-TITLE The benefits of migration, highlighted in Huntington’s disease |
/news/huntingtons-disease-soci... | 02/08/2017 Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence A-TITLE Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence | |
/news/huntingtons-disease-soci... | 01/19/2017 Huntington’s Disease Society of America Unveils HDNavigator Mobile App A-TITLE Huntington’s Disease Society of America Unveils HDNavigator Mobile App | |
http://en.hdbuzz.net/231 | Externo Subdominio | 01/12/2017 HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression A-TITLE HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression |
http://en.hdbuzz.net/229 | Externo Subdominio | 12/19/2016 Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms A-TITLE Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms |
/hd-research/research-investor... | 12/06/2016 HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016. A-TITLE HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016. | |
/news/huntingtons-disease-soci... | 12/02/2016 Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease A-TITLE Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease | |
/news/hdsa-earns-top-rating-fr... | 11/22/2016 HDSA Earns Top-Rating from CharityWatch A-TITLE HDSA Earns Top-Rating from CharityWatch | |
/news/huntingtons-disease-soci... | 11/15/2016 Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows A-TITLE Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows | |
http://en.hdbuzz.net/228 | Externo Subdominio | 11/01/2016 Important advances in next generation genome editing tools for Huntington’s Disease A-TITLE Important advances in next generation genome editing tools for Huntington’s Disease |
http://en.hdbuzz.net/227 | Externo Subdominio | 10/03/2016 HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine A-TITLE HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine |
http://en.hdbuzz.net/226 | Externo Subdominio | 09/23/2016 EuroBuzz 2016: The Euro-HD Network Meeting in The Hague A-TITLE EuroBuzz 2016: The Euro-HD Network Meeting in The Hague |
/wp-content/uploads/2016/09/PR... | 09/19/2016 Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD A-TITLE Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD | |
http://en.hdbuzz.net/225 | Externo Subdominio | 08/30/2016 New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD A-TITLE New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD |
/news/hd-support-care-network-... | 08/22/2016 HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona A-TITLE HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona | |
http://en.hdbuzz.net/224 | Externo Subdominio | 08/17/2016 Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly… A-TITLE Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly… |
http://en.hdbuzz.net/223 | Externo Subdominio | 08/02/2016 A support system gone wrong – glial cells contribute to HD symptoms A-TITLE A support system gone wrong – glial cells contribute to HD symptoms |
/news/huntingtons-disease-soci... | 07/18/2016 Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest A-TITLE Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest | |
/news/huntingtons-disease-comm... | 07/08/2016 Huntington’s Disease Community Scores Major Victory with Social Security Criteria A-TITLE Huntington’s Disease Community Scores Major Victory with Social Security Criteria | |
http://en.hdbuzz.net/222 | Externo Subdominio | 07/05/2016 Slightly long CAG repeats are more common than we thought A-TITLE Slightly long CAG repeats are more common than we thought |
http://en.hdbuzz.net/221 | Externo Subdominio | 06/29/2016 Early exposure to the HD protein may cause life-long symptoms A-TITLE Early exposure to the HD protein may cause life-long symptoms |
/news/wave-life-sciences-recei... | 06/21/2016 WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease A-TITLE WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease | |
http://en.hdbuzz.net/220 | Externo Subdominio | 06/20/2016 Electron beam snaps best images yet of Huntington’s disease protein A-TITLE Electron beam snaps best images yet of Huntington’s disease protein |
/about-hdsa/annual-convention/... | 06/14/2016 Select Videos From HDSA’s 31st Annual Convention Now Available A-TITLE Select Videos From HDSA’s 31st Annual Convention Now Available | |
/news/huntingtons-disease-soci... | 06/10/2016 Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years A-TITLE Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years | |
http://en.hdbuzz.net/218 | Externo Subdominio | 06/07/2016 Huntingtin takes a trip: harmful proteins pass between brain cells A-TITLE Huntingtin takes a trip: harmful proteins pass between brain cells |
/news/watch-us-live-from-the-3... | 06/03/2016 Watch us Live from the 31st Annual HDSA Convention A-TITLE Watch us Live from the 31st Annual HDSA Convention | |
/news/hdsa-national-board-of-t... | 06/01/2016 HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021. A-TITLE HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021. | |
/news/postcard-from-palm-springs/ | 05/17/2016 Postcard from Palm Springs A-TITLE Postcard from Palm Springs | |
/news/huntingtons-disease-soci... | 05/10/2016 Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship A-TITLE Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship | |
http://en.hdbuzz.net/217 | Externo Subdominio | 05/03/2016 Important drug targets yielded by new genetic study of HD A-TITLE Important drug targets yielded by new genetic study of HD |
/news/huntingtons-disease-soci... | 05/02/2016 Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May A-TITLE Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May | |
/news/huntingtons-disease-soci... | 04/28/2016 Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease” A-TITLE Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease” | |
http://en.hdbuzz.net/216 | Externo Subdominio | 04/18/2016 Thinking clearly about the earliest symptoms of HD and which brain regions control them A-TITLE Thinking clearly about the earliest symptoms of HD and which brain regions control them |
/news/huntingtons-disease-soci... | 04/18/2016 Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship A-TITLE Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship | |
/news/2016-hdsa-national-award... | 03/28/2016 2016 HDSA NATIONAL AWARDS NOMINATIONS A-TITLE 2016 HDSA NATIONAL AWARDS NOMINATIONS | |
http://en.hdbuzz.net/215 | Externo Subdominio | 03/10/2016 How NOT to write a news article about a clinical trial A-TITLE How NOT to write a news article about a clinical trial |
http://en.hdbuzz.net/214 | Externo Subdominio | 02/29/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3 A-TITLE HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3 |
http://en.hdbuzz.net/213 | Externo Subdominio | 02/26/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2 A-TITLE HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2 |
http://en.hdbuzz.net/212 | Externo Subdominio | 02/24/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1 A-TITLE HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1 |
/news/huntingtons-disease-soci... | 02/05/2016 Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask A-TITLE Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask | |
/news/huntingtons-disease-soci... | 02/01/2016 Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence A-TITLE Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence | |
http://en.hdbuzz.net/211 | Externo Subdominio | 02/01/2016 Harnessing the power of viruses to treat Huntington’s disease A-TITLE Harnessing the power of viruses to treat Huntington’s disease |
http://en.hdbuzz.net/210 | Externo Subdominio | 01/25/2016 Through a Broader Lens: Looking at Non-Motor Symptoms in HD A-TITLE Through a Broader Lens: Looking at Non-Motor Symptoms in HD |
/wp-content/uploads/2016/01/HD... | 01/22/2016 HDSA Releases 2015 Year in Review A-TITLE HDSA Releases 2015 Year in Review | |
/hd-research/research-investor... | 12/23/2015 HDSA Releases 2015 Research Investor’s Report A-TITLE HDSA Releases 2015 Research Investor’s Report | |
http://en.hdbuzz.net/209 | Externo Subdominio | 12/18/2015 Looking Past the Spin: Results from a Clinical Trial of Cysteamine A-TITLE Looking Past the Spin: Results from a Clinical Trial of Cysteamine |
http://en.hdbuzz.net/208 | Externo Subdominio | 12/15/2015 An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic A-TITLE An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic |
/wp-content/uploads/2015/12/Ra... | 12/10/2015 Raptor Plans to Advance RP103 in a Registration Study A-TITLE Raptor Plans to Advance RP103 in a Registration Study | |
https://hdsa.org/news/auto-draft/ | 12/07/2015 New HD Career Development Fellowship Announced by Huntington’s Disease Society of America A-TITLE New HD Career Development Fellowship Announced by Huntington’s Disease Society of America | |
http://en.hdbuzz.net/207 | Externo Subdominio | 12/02/2015 Through the eyes of a friend: changes in mood and behavior in early HD A-TITLE Through the eyes of a friend: changes in mood and behavior in early HD |
/news/huntingtons-disease-soci... | 12/02/2015 Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder A-TITLE Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder | |
/news/huntingtons-disease-soci... | 12/01/2015 Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator A-TITLE Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator | |
http://en.hdbuzz.net/206 | Externo Subdominio | 11/25/2015 A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true? A-TITLE A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true? |
/news/huntingtons-disease-soci... | 11/25/2015 Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship A-TITLE Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship | |
/news/huntingtons-disease-soci... | 11/03/2015 Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000 A-TITLE Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000 | |
/news/fourth-annual-strike-out... | 11/02/2015 Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000 A-TITLE Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000 | |
http://en.hdbuzz.net/204 | Externo Subdominio | 10/20/2015 HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD! A-TITLE HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD! |
http://en.hdbuzz.net/203 | Externo Subdominio | 10/09/2015 HDBuzz primer: Clinical trial designs and phases A-TITLE HDBuzz primer: Clinical trial designs and phases |
/news/huntingtons-disease-soci... | 10/05/2015 Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients A-TITLE Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients | |
/news/fda-opens-60-day-open-co... | 09/23/2015 FDA Opens 60 Day Open Comment Period A-TITLE FDA Opens 60 Day Open Comment Period | |
/news/hundreds-of-hd-families-... | 09/22/2015 Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease A-TITLE Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease | |
http://en.hdbuzz.net/202 | Externo Subdominio | 09/17/2015 HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells A-TITLE HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells |
/news/cnn-new-day-hosts-alisyn... | 09/11/2015 CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America A-TITLE CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America | |
/news/tell-us-your-thoughts/ | 08/31/2015 Deadline To Tell Us Your Thoughts Has Been Extended! A-TITLE Deadline To Tell Us Your Thoughts Has Been Extended! | |
https://hdsa.org/news/6984/ | 08/17/2015 HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program A-TITLE HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program | |
/news/patient-focused-drug-dis... | 08/05/2015 Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease A-TITLE Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease | |
/news/scientists-identify-gene... | 07/30/2015 Scientists identify genetic factors that alter the clinical onset of HD in landmark study A-TITLE Scientists identify genetic factors that alter the clinical onset of HD in landmark study | |
http://en.hdbuzz.net/199 | Externo Subdominio | 07/29/2015 Would ewe believe it? GM1, sheep and Huntington’s disease A-TITLE Would ewe believe it? GM1, sheep and Huntington’s disease |
/wp-content/uploads/2015/07/PR... | 07/21/2015 ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients A-TITLE ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients | |
/news/30th-annual-convention-i... | 07/02/2015 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America A-TITLE 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America | |
/news/calling-all-hd-families-... | 06/22/2015 Calling all HD families: Our time to be heard is now! A-TITLE Calling all HD families: Our time to be heard is now! | |
/news/huntingtons-disease-soci... | 06/19/2015 Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status A-TITLE Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status | |
http://energycommerce.house.go... | Externo Subdominio | 06/19/2015 HDSA Supports 21st Century Cures Act A-TITLE HDSA Supports 21st Century Cures Act |
http://www.nih.gov/news/health... | Externo Subdominio | 06/16/2015 NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke A-TITLE NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke |
/news/life-in-hd-earns-rave-re... | 06/02/2015 Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America A-TITLE Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America | |
http://en.hdbuzz.net/198 | Externo Subdominio | 06/02/2015 HDBUZZ: Switching it up: variety in the HD gene affects symptom onset A-TITLE HDBUZZ: Switching it up: variety in the HD gene affects symptom onset |
/hd-research/research-news-rep... | 05/26/2015 2015 Postcard from Palm Springs A-TITLE 2015 Postcard from Palm Springs | |
/en.hdbuzz.net/196 | 05/13/2015 HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease A-TITLE HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease | |
http://en.hdbuzz.net/podcast/4 | Externo Subdominio | 05/12/2015 2015 Huntington’s Disease Therapeutics Conference and taking part in trials A-TITLE 2015 Huntington’s Disease Therapeutics Conference and taking part in trials |
http://www.sciencedaily.com/re... | Externo Subdominio | 05/07/2015 Gene variant determines early or late onset of Huntington’s disease A-TITLE Gene variant determines early or late onset of Huntington’s disease |
/news/life-in-hd-a-conversatio... | 05/01/2015 Life in HD: A Conversation with Lisa Genova Tickets Now on Sale A-TITLE Life in HD: A Conversation with Lisa Genova Tickets Now on Sale | |
/news/huntingtons-disease-soci... | 04/22/2015 Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship A-TITLE Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship | |
/news/lighting-the-way-a-new-b... | 04/21/2015 Lighting the way: A new biomarker for Huntington’s disease A-TITLE Lighting the way: A new biomarker for Huntington’s disease | |
/news/huntingtons-disease-soci... | 04/07/2015 Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease A-TITLE Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease | |
/news/new-york-times-bestselli... | 04/07/2015 New York Times Bestselling Author Lisa Genova to release Inside the O’Briens A-TITLE New York Times Bestselling Author Lisa Genova to release Inside the O’Briens | |
/wp-content/uploads/2015/01/La... | 01/29/2015 Law Enforcement Toolkit II Webinar Now Available A-TITLE Law Enforcement Toolkit II Webinar Now Available | |
/news/huntingtons-disease-soci... | 01/29/2015 Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards A-TITLE Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards | |
/news/huntingtons-disease-soci... | 01/29/2015 Huntington’s Disease Society of America Endorses Enroll-HD A-TITLE Huntington’s Disease Society of America Endorses Enroll-HD | |
/news/huntingtons-disease-soci... | 01/29/2015 Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship A-TITLE Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship | |
/news/pride-hd-study-enrolling... | 01/29/2015 Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease A-TITLE Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease | |
/news/hdsa-appoints-director-o... | 01/29/2015 HDSA appoints Director of Marketing & Communications A-TITLE HDSA appoints Director of Marketing & Communications | |
/news/world-leader-in-movement... | 01/29/2015 World leader in movement disorders Professor Ira Shoulson joins Prana Board A-TITLE World leader in movement disorders Professor Ira Shoulson joins Prana Board | |
/news/pitt-study-demonstrates-... | 01/29/2015 Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons A-TITLE Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons | |
/news/huntingtons-disease-soci... | 01/28/2015 Huntington’s Disease Society of America Launches First “HD News” App A-TITLE Huntington’s Disease Society of America Launches First “HD News” App | |
/wp-content/uploads/2015/01/An... | 01/28/2015 2CARE HD Clinical Trial Stopped Early for Lack of Benefit A-TITLE 2CARE HD Clinical Trial Stopped Early for Lack of Benefit | |
http://en.hdbuzz.net/171 | Externo Subdominio | 01/28/2015 HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends A-TITLE HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends |
http://investor.auspexpharma.c... | Externo Subdominio | 01/28/2015 Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD) A-TITLE Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD) |
/news/huntingtons-disease-soci... | 01/28/2015 Huntington’s Disease Society of America Awards Additional HD Human Biology Project A-TITLE Huntington’s Disease Society of America Awards Additional HD Human Biology Project | |
/news/jang-ho-cha-md-phd-appoi... | 01/28/2015 Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America A-TITLE Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America | |
/wp-content/uploads/2015/01/Gl... | 01/28/2015 Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline A-TITLE Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline | |
https://hdsa.org/events | Texto duplicado | Events |
https://kentucky.hdsa.org/even... | Externo Subdominio | KYCureHD – RachelWalsh A-TITLE KYCureHD – RachelWalsh |
https://washington.hdsa.org/ev... | Externo Subdominio | 7/13/2024 2:00 PM HDSA WA Celebration of Hope at FlatStick Flatstick Redmond - 7530 164th Ave NE Suite A108 , Redmond, VA 98052 A-TITLE HDSA WA Celebration of Hope at FlatStick |
https://michigan.hdsa.org/even... | Externo Subdominio | 7/20/2024 9:00 AM 2024 Team Hope Walk- Boyne City, MI Boyne City Pavilion - Veterans Memorial Park - 207 North Lake St. , Boyne City, MI 49712 A-TITLE 2024 Team Hope Walk- Boyne City, MI |
https://redcap.vumc.org/survey... | Externo Subdominio | 7/27/2024 8:00 AM 2024 HDSA & Vanderbilt Neurology Tennessee Education Day Hilton Garden Inn - Mt. Juliet - 1975 Providence Parkway , Mt. Juliet, TN 37122 A-TITLE 2024 HDSA & Vanderbilt Neurology Tennessee Education Day |
https://rockymountain.hdsa.org... | Externo Subdominio | 7/27/24 7:30 AM 2024 Fairways for Hope Charity Golf Tournament , Littleton, Colorado 80125 A-TITLE 2024 Fairways for Hope Charity Golf Tournament |
https://midwest.hdsa.org/event... | Externo Subdominio | 8/10/2024 9:30 AM 2024 Team Hope Walk – Traverse City, MI Sunset Park - 635 E Front Street , Traverse City, MI 49686 A-TITLE 2024 Team Hope Walk – Traverse City, MI |
https://iowa.hdsa.org/events/2... | Externo Subdominio | 8/10/2024 7:00 AM 2024 Grahlman Golf Tournament Jester Park Golf Course - 11949 NW 118th Avenue , Granger, IA 50190 A-TITLE 2024 Grahlman Golf Tournament |
https://northeast.hdsa.org/eve... | Externo Subdominio | 8/16/2024 10:00 AM 2024 HD Education Day – Morgantown, WV Rockefeller Neuroscience Institute - 33 Medical Center Drive , Morgantown, WV 26506 A-TITLE 2024 HD Education Day – Morgantown, WV |
https://pacificwest.hdsa.org/e... | Externo Subdominio | 8/17/2024 10:00 AM 2024 Team Hope Walk & 5K Run – Bozeman, MT BOGERT PARK - 325 S Church Ave , Bozeman, MT 59715 A-TITLE 2024 Team Hope Walk & 5K Run – Bozeman, MT |
https://midwest.hdsa.org/event... | Externo Subdominio | 8/17/2024 10:00 AM 2024 Team Hope Walk – Central Michigan Michigan Theatre - 124 North Mechanic Street , Jackson, MI 49201 A-TITLE 2024 Team Hope Walk – Central Michigan |
https://arizona.hdsa.org/event... | Externo Subdominio | 8/23/2024 All Day 2024 Arizona Family Retreat Weekend Redemptorist Renewal Center - 7101 West Picture Rocks Road , Tucson, AZ 85743 A-TITLE 2024 Arizona Family Retreat Weekend |
https://albany.hdsa.org/events... | Externo Subdominio | 8/24/2024 8:30 AM 2024 Team Hope Fishy Frolic – Walk & 5K Corning Preserve - Jennings Landing 1 Quay Street , Albany, NY 12207 A-TITLE 2024 Team Hope Fishy Frolic – Walk & 5K |
https://birdease.com/foreacure... | Externo | 8/23/2024 8:30 AM 15th Annual Fore-A-Cure Golf Outing Bunker Hill Golf Course - 3060 Pearl Rd , Medina, OH 44256 A-TITLE 15th Annual Fore-A-Cure Golf Outing |
https://illinois.hdsa.org/even... | Externo Subdominio | 8/25/2024 1:00 PM 2024 Day at the Races for HD Hawthorne Race Course - 3501 South Laramie , Cicero, IL 60804 A-TITLE 2024 Day at the Races for HD |
https://northeast.hdsa.org/eve... | Externo Subdominio | 9/14/2024 9:00 AM 2024 Team Hope Walk – Lehigh Valley, PA Hopewell Park Pavilion - 4695 West Hopewell Rd , Center Valley, PA 18036 A-TITLE 2024 Team Hope Walk – Lehigh Valley, PA |
https://rockymountain.hdsa.org... | Externo Subdominio | 9/14/2024 8:00 AM 2024 20th Annual Heroes and Villains Team Hope 5K Walk and Run Stapleton Central Park - 8601 E Martin Luther King Blvd S , Denver, CO 80238 A-TITLE 2024 20th Annual Heroes and Villains Team Hope 5K Walk and Run |
https://northeast.hdsa.org/eve... | Externo Subdominio | 9/15/2024 12:00 PM 2024 Team Hope Walk – Buffalo, NY Niawanda Park - Ronald J Pilozzi Pavilion - 600 Niagra Street , Tonowanda, NY 14150 A-TITLE 2024 Team Hope Walk – Buffalo, NY |
https://northeast.hdsa.org/eve... | Externo Subdominio | 9/15/2024 2:00 PM 2024 Team Hope Walk – West Virginia Barbour County Fairgrounds - 1154 Point Pleasant Road , Belington, WV 26250 A-TITLE 2024 Team Hope Walk – West Virginia |
https://northeast.hdsa.org/eve... | Externo Subdominio | 9/15/2024 9:00 AM 2024 Team Hope Walk – Wantagh, NY Wantagh Park - 1 King Road , Wantagh, NY 11793 A-TITLE 2024 Team Hope Walk – Wantagh, NY |
https://san-diego.hdsa.org/eve... | Externo Subdominio | 9/21/2024 8:00 AM 2024 Team Hope Walk – San Diego Coronado Tidelands Park - 2000 Mullinex Drive , Coronado, CA 92118 A-TITLE 2024 Team Hope Walk – San Diego |
https://connecticut.hdsa.org/e... | Externo Subdominio | 9/21/2024 2:30 PM 2024 Music On The Vine Chateau Le Gari Winery - 303 S. Main Street , Marlborough, CT 06447 A-TITLE 2024 Music On The Vine |
https://missouri.hdsa.org/even... | Externo Subdominio | 9/21/2024 9:00 AM 2024 Team Hope Walk – St. Louis, MO Tilles Park - 9551 Litzsinger , St. Louis, MO 63124 A-TITLE 2024 Team Hope Walk – St. Louis, MO |
https://indiana.hdsa.org/event... | Externo Subdominio | 9/21/2024 10:00 AM 2024 Team Hope Walk – Zionsville, IN Mulberry Fields - 9645 Whitestown RD , Zionville, IN 46077 A-TITLE 2024 Team Hope Walk – Zionsville, IN |
https://massri.hdsa.org/events... | Externo Subdominio | 9/22/2024 9:00 AM 2024 Team Hope Walk – Rhode Island Colt State Park - Bristol Sports Complex 50 Asylum Road , Bristol, RI 02809 A-TITLE 2024 Team Hope Walk – Rhode Island |
https://southdakota.hdsa.org/e... | Externo Subdominio | 9/22/2024 10:30 AM 2024 Fall Education Day – South Dakota Sanford Health - 1305 W 18th St - Schroder Auditorium, , Sioux Falls, SD 57105 A-TITLE 2024 Fall Education Day – South Dakota |
https://missouri.hdsa.org/even... | Externo Subdominio | 9/29/2024 12:30 PM 2024 Midwest Golf Tournament – STL Crescent Farms Golf Club - 745 Lewis Rd , Eureka, MO 63025 A-TITLE 2024 Midwest Golf Tournament – STL |
https://utah.hdsa.org/events/2... | Externo Subdominio | 9/27/2024 9:30 AM 2024 Team Hope Walk & Fun Run – Salt Lake City, UT Sugar House Park - 1330 2100 S , Salt Lake City, UT 84106 A-TITLE 2024 Team Hope Walk & Fun Run – Salt Lake City, UT |
https://sanfrancisco.hdsa.org/... | Externo Subdominio | 10/5/24 8:00 AM 2024 Team Hope 5k Walk & Fun Run – San Francisco , San Francisco, California 94129 A-TITLE 2024 Team Hope 5k Walk & Fun Run – San Francisco |
https://pacificwest.hdsa.org/e... | Externo Subdominio | 10/06/2024 4:30 PM 2024 SoCal Celebration of Hope Stone Brewing - 2816 Historic Decatur Rd #116 , San Diego, CA 92106 A-TITLE 2024 SoCal Celebration of Hope |
https://southcarolina.hdsa.org... | Externo Subdominio | 10/6/2024 1:00 PM 2024 Team Hope Walk – Columbia, SC Community Park of Irmo - 7507 Eastview Drive , Irmo, SC 29763 A-TITLE 2024 Team Hope Walk – Columbia, SC |
https://newjersey.hdsa.org/eve... | Externo Subdominio | 10/06/2024 9:30 AM 2024 Team Hope Walk – Edison, New Jersey Roosevelt Park - Meet at Grove 1A - 151 Parsonage Road , Edison, NJ 08837 A-TITLE 2024 Team Hope Walk – Edison, New Jersey |
https://arkansas.hdsa.org/even... | Externo Subdominio | 10/12/2024 10:00 AM 2024 Team Hope Walk – Arkansas Rock City Harley Davidson - 400 Gateway Grove Loop , Little Rock, AR 72210 A-TITLE 2024 Team Hope Walk – Arkansas |
https://southernidaho.hdsa.org... | Externo Subdominio | 10/19/2024 9:00 AM 2024 Team Hope Walk – Boise, ID Julius M Kleiner Memorial Park - 1900 N. Records Avenue , Boise, ID 83642 A-TITLE 2024 Team Hope Walk – Boise, ID |
https://greaterla.hdsa.org/eve... | Externo Subdominio | 10/19/2024 8:00 AM 2024 Team Hope Walk – Los Angeles Johnny Carson Park - 400 Bob Hope Drive , Burbank, CA 91505 A-TITLE 2024 Team Hope Walk – Los Angeles |
https://orangecounty.hdsa.org/... | Externo Subdominio | 10/20/2024 9:30 AM 2024 Team Hope Walk – Orange County, CA William H. Mason Park - 18712 University Dr. , Irvine, CA 92612 A-TITLE 2024 Team Hope Walk – Orange County, CA |
https://greaterntx.hdsa.org/ev... | Externo Subdominio | 10/24/24 11:00 AM 2024 Team Hope Walk – Greater North Texas Mike Lewis Park - 2600 North Carrier Parkway , Grand Prairie, TX 75050 A-TITLE 2024 Team Hope Walk – Greater North Texas |
https://classes.nm.org/wlp2/cl... | Externo Subdominio | 11/16/2024 10:00 AM Northwestern Huntington’s Disease Patient Family Symposium Northwestern Medicine Prentice Women's Hospital, 250 E Superior St , Chicago, ... A-TITLE Northwestern Huntington’s Disease Patient Family Symposium |
https://app.donorview.com/Surv... | Nueva ventana Externo Subdominio | Subscribe Join HDSA’s E-mail List |
https://hdsa.org/ | A-TITLE Huntington's Disease Society of America logo | |
https://www.facebook.com/HDSofA | Nueva ventana Externo Subdominio | Sin texto |
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https://www.youtube.com/channe... | Nueva ventana Externo Subdominio | Sin texto |
http://instagram.com/hdsanational | Nueva ventana Externo | Sin texto |
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/what-is-hd/overview-of-huntin... | Texto duplicado | What is HD? A-TITLE What is HD? |
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https://extranet.hdsa.org/logi... | Externo Subdominio | HDSA Connect A-TITLE HDSA Connect |
https://hdsa.org/disclosures/ | Disclosures A-TITLE Disclosures | |
/about-hdsa/financials/ | Tax Returns & Audited Financials A-TITLE Tax Returns & Audited Financials | |
https://hdsa.org/privacy-policy/ | Privacy Policy A-TITLE Privacy Policy | |
https://app.donorview.com/e18b | Externo Subdominio Texto duplicado | Donate |
https://www.charitynavigator.o... | Nueva ventana Externo Subdominio | IMG-ALT Charity Navigator Four-Star Rating |
http://www.give.org/charity-re... | Nueva ventana Externo Subdominio | Sin texto |
http://www.nationalhealthcounc... | Nueva ventana Externo Subdominio | Sin texto |
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https://www.americanbraincoali... | Nueva ventana Externo Subdominio | Sin texto |
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https://hdsa.org/contact-us/ | Nueva ventana | Contact Us |
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