https://www.eurordis.org/ | Anchor | Skip to content |
/accessibility-options/ | Subdomain | Accessibility Options |
https://www.eurordis.org/ | Subdomain | English |
https://www.eurordis.org/es/ | Subdomain | Español |
https://www.eurordis.org/de/ | Subdomain | Deutsch |
https://www.eurordis.org/fr/ | Subdomain | Français |
https://www.eurordis.org/it/ | Subdomain | Italiano |
https://www.eurordis.org/pt-pt/ | Subdomain | Português |
https://www.eurordis.org/ru/ | Subdomain | Русский |
/category/newsroom/ | Subdomain | Newsroom |
/multimedia/ | Subdomain | Multimedia |
/category/events/ | Subdomain | Events |
/who-we-are/our-members/ | Subdomain | Members |
/resources/ | Subdomain | Resources |
/contact-us/ | Subdomain | Contact us |
https://www.eurordis.org/ | Subdomain | IMG-ALT Eurordis logo |
/our-vision-mission | | Who We Are |
https://www.eurordis.org/donate | Subdomain | Donate |
/who-we-are/our-vision-mission/ | Subdomain | About EURORDIS |
/who-we-are/our-history/ | Subdomain | History |
/who-we-are/staff/ | Subdomain | Team |
/who-we-are/initiatives-progra... | Subdomain | Initiatives |
/who-we-are/projects-and-partn... | Subdomain | Projects & Partnerships |
/external-representation/ | Subdomain | Governance Charts & External Representation |
/who-we-are/board-of-directors/ | Subdomain | Board of Directors |
/who-we-are/our-strategy-impact/ | Subdomain | Strategy & Impact |
/who-we-are/our-funding/ | Subdomain | Funding |
/who-we-are/annual-reports-wor... | Subdomain | Annual Reports, Statutes & By-Laws |
/who-we-are/our-members/ | Subdomain Text duplicate | Members |
/who-we-are/our-members/nation... | Subdomain | National Alliances |
/who-we-are/our-members/europe... | Subdomain | European Federations |
/who-we-are/volunteers/ | Subdomain | Volunteers |
/rare-disease-policy/ | Subdomain | Setting the Agenda |
/rare-disease-policy/mobilisin... | Subdomain | Mobilising Policymakers |
/rare-disease-policy/engaging-... | Subdomain | Engaging the Community |
/actrare2024/ | Subdomain | European Elections 2024 |
/rare-disease-policy/30-millio... | Subdomain | European Action Plan |
/our-priorities/diagnosis/ | Subdomain | Diagnosis |
/our-priorities/research/ | Subdomain | Research |
/our-priorities/holistic-care/ | Subdomain | Holistic Care |
/our-priorities/treatments/ | Subdomain | Treatments |
/our-priorities/data-and-digit... | Subdomain | Data and Digital Health |
/mental-wellbeing/ | Subdomain | Mental Health & Wellbeing |
/our-priorities/european-refer... | Subdomain | European Reference Networks |
/our-priorities/eurordis-ukrai... | Subdomain | EURORDIS Ukraine Response |
/our-priorities/rare-cancers/ | Subdomain | Rare Cancers |
/information-support/what-is-a... | Subdomain | What is a Rare Disease? |
/information-support/on-your-d... | Subdomain | Information on your Rare Disease |
/information-support/rare-dise... | Subdomain | Rare Diseases in the Arts |
/rare-disease-personal-stories/ | | Personal Stories |
/survey-design-toolkit/ | Subdomain | Survey Design Toolkit for Patient Organisations |
/information-support/find-info... | Subdomain | FAQ: Rare Disease Medicines |
/information-support/list-of-t... | Subdomain | List of the Marketing Authorisations |
/information-support/find-info... | Subdomain Anchor | Getting Involved in Medicine Development |
/information-support/find-a-pa... | Subdomain | Connect with a Patient Organisation |
/information-support/rare-dise... | Subdomain | Contact Rare Disease Helplines |
/information-support/find-medi... | Subdomain | Find Medical Expertise |
/get-involved/become-a-member/ | Subdomain | Become a Member |
/get-involved/join-the-eurordi... | Subdomain | Join the EURORDIS Round Table of Companies |
/rare-disease-policy/european-... | Subdomain | Become a Parliamentary Advocate |
/support-eurordis/ | | Support EURORDIS |
/get-involved/jobs/ | | Careers |
https://openacademy.eurordis.org/ | External Subdomain | EURORDIS Open Academy |
/rare-disease-policy/european-... | Subdomain | Rare Disease Week |
/rare-barometer/english/ | Subdomain | Rare Barometer |
https://www.rarediseaseday.org/ | External Subdomain | Rare Disease Day |
/category/events/ | Subdomain | Attend Our Events |
/black-pearl-awards/ | Subdomain | Black Pearl Awards |
https://www.rare-diseases.eu/ | External Subdomain | European Conference on Rare Diseases (ECRD) |
/who-we-are/our-members/eurord... | Subdomain | Membership Meeting |
/our-vision-mission | Text duplicate | Who We Are |
/who-we-are/our-vision-mission/ | Subdomain Text duplicate | About EURORDIS |
/who-we-are/our-history/ | Subdomain Text duplicate | History |
/who-we-are/staff/ | Subdomain Text duplicate | Team |
/who-we-are/initiatives-progra... | Subdomain Text duplicate | Initiatives |
/who-we-are/projects-and-partn... | Subdomain Text duplicate | Projects & Partnerships |
/external-representation/ | Subdomain Text duplicate | Governance Charts & External Representation |
/who-we-are/board-of-directors/ | Subdomain Text duplicate | Board of Directors |
/who-we-are/our-strategy-impact/ | Subdomain Text duplicate | Strategy & Impact |
/who-we-are/our-funding/ | Subdomain Text duplicate | Funding |
/who-we-are/annual-reports-wor... | Subdomain Text duplicate | Annual Reports, Statutes & By-Laws |
/who-we-are/our-members/ | Subdomain Text duplicate | Members |
/who-we-are/our-members/nation... | Subdomain Text duplicate | National Alliances |
/who-we-are/our-members/europe... | Subdomain Text duplicate | European Federations |
/who-we-are/volunteers/ | Subdomain Text duplicate | Volunteers |
/rare-disease-policy/ | Subdomain Text duplicate | Setting the Agenda |
/rare-disease-policy/mobilisin... | Subdomain Text duplicate | Mobilising Policymakers |
/rare-disease-policy/engaging-... | Subdomain Text duplicate | Engaging the Community |
/actrare2024/ | Subdomain Text duplicate | European Elections 2024 |
/rare-disease-policy/30-millio... | Subdomain Text duplicate | European Action Plan |
/our-priorities/diagnosis/ | Subdomain Text duplicate | Diagnosis |
/our-priorities/research/ | Subdomain Text duplicate | Research |
/our-priorities/holistic-care/ | Subdomain Text duplicate | Holistic Care |
/our-priorities/treatments/ | Subdomain Text duplicate | Treatments |
/our-priorities/data-and-digit... | Subdomain Text duplicate | Data and Digital Health |
/mental-wellbeing/ | Subdomain Text duplicate | Mental Health & Wellbeing |
/our-priorities/european-refer... | Subdomain Text duplicate | European Reference Networks |
/our-priorities/eurordis-ukrai... | Subdomain Text duplicate | EURORDIS Ukraine Response |
/our-priorities/rare-cancers/ | Subdomain Text duplicate | Rare Cancers |
/information-support/what-is-a... | Subdomain Text duplicate | What is a Rare Disease? |
/information-support/on-your-d... | Subdomain Text duplicate | Information on your Rare Disease |
/information-support/rare-dise... | Subdomain Text duplicate | Rare Diseases in the Arts |
/rare-disease-personal-stories/ | Text duplicate | Personal Stories |
/survey-design-toolkit/ | Subdomain Text duplicate | Survey Design Toolkit for Patient Organisations |
/information-support/find-info... | Subdomain Text duplicate | FAQ: Rare Disease Medicines |
/information-support/list-of-t... | Subdomain Text duplicate | List of the Marketing Authorisations |
/information-support/find-info... | Subdomain Anchor Text duplicate | Getting Involved in Medicine Development |
/information-support/find-a-pa... | Subdomain Text duplicate | Connect with a Patient Organisation |
/information-support/rare-dise... | Subdomain Text duplicate | Contact Rare Disease Helplines |
/information-support/find-medi... | Subdomain Text duplicate | Find Medical Expertise |
/get-involved/become-a-member/ | Subdomain Text duplicate | Become a Member |
/get-involved/join-the-eurordi... | Subdomain Text duplicate | Join the EURORDIS Round Table of Companies |
/rare-disease-policy/european-... | Subdomain Text duplicate | Become a Parliamentary Advocate |
/support-eurordis/ | Text duplicate | Support EURORDIS |
/get-involved/jobs/ | Text duplicate | Careers |
https://openacademy.eurordis.org/ | External Subdomain Text duplicate | EURORDIS Open Academy |
/rare-disease-policy/european-... | Subdomain Text duplicate | Rare Disease Week |
/rare-barometer/english/ | Subdomain Text duplicate | Rare Barometer |
https://www.rarediseaseday.org/ | External Subdomain Text duplicate | Rare Disease Day |
/category/events/ | Subdomain Text duplicate | Attend Our Events |
/black-pearl-awards/ | Subdomain Text duplicate | Black Pearl Awards |
https://www.rare-diseases.eu/ | External Subdomain Text duplicate | European Conference on Rare Diseases (ECRD) |
/who-we-are/our-members/eurord... | Subdomain Text duplicate | Membership Meeting |
/category/newsroom/news/ | Subdomain | News A-TITLE News |
/category/events/ | Subdomain Text duplicate | Events A-TITLE Events |
/who-we-are/our-members/ | Subdomain Text duplicate | Members A-TITLE Members |
/resources/ | Subdomain Text duplicate | Resources A-TITLE Resources |
/contact-us/ | Subdomain Text duplicate | Contact us A-TITLE Contact us |
/accessibility-options/ | Subdomain Text duplicate | Accessibility Options A-TITLE Accessibility Options |
https://www.eurordis.org/ | Subdomain Text duplicate | English |
https://www.eurordis.org/es/ | Subdomain Text duplicate | Español |
https://www.eurordis.org/de/ | Subdomain Text duplicate | Deutsch |
https://www.eurordis.org/fr/ | Subdomain Text duplicate | Français |
https://www.eurordis.org/it/ | Subdomain Text duplicate | Italiano |
https://www.eurordis.org/pt-pt/ | Subdomain Text duplicate | Português |
https://www.eurordis.org/ru/ | Subdomain Text duplicate | Русский |
https://www.eurordis.org/donate | Subdomain Text duplicate | Donate |
/rare-barometer-launches-surve... | Subdomain | Rare Barometer survey on social participation Take the survey |
/black-pearl-awards/nomination/ | Subdomain | Nominations open for 2025 Black Pearl Awards Nominate now! |
/rare-on-air/ | | Rare on Air podcast Listen now |
/10-minutes-with/ | Subdomain | 10 Minutes With... Watch now |
/category/newsroom/ | Subdomain | View all news |
/category/events/ | Subdomain | View all events |
/open-letter-presented-to-euro... | Subdomain | NewsOpen Letter signed by thousands across rare disease community presented to European Commission 23 July 2024, Brussels – EURORDIS-Rare Diseases Europe has... |
/black-pearl-awards-over-the-y... | Subdomain | NewsNights to remember: the Black Pearl Awards over the years Since 2012, the Black Pearl Awards have honoured the outstanding achievements of the rare disea... |
/rare-barometer-launches-surve... | Subdomain | NewsRare Barometer survey launched on rare diseases and social participation Rare Barometer, the survey initiative of EURORDIS has launched a new global surv... |
/eurordis-welcomes-epsco-call/ | Subdomain | Press releaseEURORDIS welcomes EPSCO call for inclusion of health priorities in EU Strategic AgendaEURORDIS responds to the unanimous conclusions reached by ... |
/eu4health-must-recognise-adde... | Subdomain | Press releaseEURORDIS: EU4Health must recognise added value of EU action on rare diseasesEURORDIS urges the European Commission to address rare diseases in t... |
/european-parliament-elections... | Subdomain | NewsEuropean Parliament Elections 2024: What They Mean for Rare Disease Advocacy This year’s elections have brought about changes that will undoubtedly impac... |
/who-we-are/our-members/ | | 74 countries View more |
/european-or-international-fed... | | 80 European federations of specific rare diseases View more |
/national-alliances-for-rare-d... | | 55 National alliances of rare disease patient organisations View more |
/who-we-are/our-members/ | | 1,000 +member patient organisations View more |
/information-support/find-a-pa... | | Image ALT text Outreach to over2,500patient groups View more |
/who-we-are/volunteers/ | | Image ALT text over 400volunteers View more |
/who-we-are/our-members/ | | 74 countries |
/european-or-international-fed... | | 80 European federations of specific rare diseases |
/national-alliances-for-rare-d... | | 55 National alliances of rare disease patient organisations |
/who-we-are/our-members/ | | 1,000 +member patient organisations |
/information-support/find-a-pa... | | Outreach to over2,500patient groups |
/who-we-are/volunteers/ | | over 400volunteers |
/get-involved/become-a-member/ | Subdomain | Become a member |
/who-we-are/our-members/ | Subdomain | Our members |
/category/events/?keywordSearc... | Subdomain | Members events |
/newsletter-signup/ | | Subscribe |
https://www.facebook.com/eurordis | New window External Subdomain | Facebook |
https://twitter.com/eurordis | New window External | Twitter |
https://www.instagram.com/euro... | New window External Subdomain | Instagram |
https://www.linkedin.com/compa... | New window External Subdomain | LinkedIn |
/contact-us | | IMG-ALT Our offices |
/who-we-are/our-vision-mission/ | | Who we are? |
/rare-disease-policy/ | | Our priorities |
/information-support/what-is-a... | | Information & Support |
/support-eurordis/ | | Get Involved |
/category/news/ | Text duplicate | News |
/category/events/ | Text duplicate | Events |
/who-we-are/our-members/ | Text duplicate | Members |
/resources/ | Text duplicate | Resources |
/contact-us/ | Text duplicate | Contact us |
/cookie-policy/ | Subdomain | Cookie Policy |
/privacy-policy/ | Subdomain | Privacy Policy |
/terms-conditions/ | Subdomain | Terms & Conditions |
(Nice to have)