| https://www.eurordis.org/ | Texto ancla | Skip to content |
| /accessibility-options/ | Subdominio | Accessibility Options |
| https://www.eurordis.org/ | Subdominio | English |
| https://www.eurordis.org/es/ | Subdominio | Español |
| https://www.eurordis.org/de/ | Subdominio | Deutsch |
| https://www.eurordis.org/fr/ | Subdominio | Français |
| https://www.eurordis.org/it/ | Subdominio | Italiano |
| https://www.eurordis.org/pt-pt/ | Subdominio | Português |
| https://www.eurordis.org/ru/ | Subdominio | Русский |
| /category/newsroom/ | Subdominio | Newsroom |
| /multimedia/ | Subdominio | Multimedia |
| /category/events/ | Subdominio | Events |
| /who-we-are/our-members/ | Subdominio | Members |
| /resources/ | Subdominio | Resources |
| /contact-us/ | Subdominio | Contact us |
| https://www.eurordis.org/ | Subdominio | IMG-ALT Eurordis logo |
| /our-vision-mission | | Who We Are |
| https://www.eurordis.org/donate | Subdominio | Donate |
| /who-we-are/our-vision-mission/ | Subdominio | About EURORDIS |
| /who-we-are/our-history/ | Subdominio | History |
| /who-we-are/staff/ | Subdominio | Team |
| /who-we-are/initiatives-progra... | Subdominio | Initiatives |
| /who-we-are/projects-and-partn... | Subdominio | Projects & Partnerships |
| /external-representation/ | Subdominio | Governance Charts & External Representation |
| /who-we-are/board-of-directors/ | Subdominio | Board of Directors |
| /who-we-are/our-strategy-impact/ | Subdominio | Strategy & Impact |
| /who-we-are/our-funding/ | Subdominio | Funding |
| /who-we-are/annual-reports-wor... | Subdominio | Annual Reports, Statutes & By-Laws |
| /who-we-are/our-members/ | Subdominio Texto duplicado | Members |
| /who-we-are/our-members/nation... | Subdominio | National Alliances |
| /who-we-are/our-members/europe... | Subdominio | European Federations |
| /who-we-are/volunteers/ | Subdominio | Volunteers |
| /rare-disease-policy/ | Subdominio | Setting the Agenda |
| /rare-disease-policy/mobilisin... | Subdominio | Mobilising Policymakers |
| /rare-disease-policy/engaging-... | Subdominio | Engaging the Community |
| /actrare2024/ | Subdominio | European Elections 2024 |
| /rare-disease-policy/30-millio... | Subdominio | European Action Plan |
| /our-priorities/diagnosis/ | Subdominio | Diagnosis |
| /our-priorities/research/ | Subdominio | Research |
| /our-priorities/holistic-care/ | Subdominio | Holistic Care |
| /our-priorities/treatments/ | Subdominio | Treatments |
| /our-priorities/data-and-digit... | Subdominio | Data and Digital Health |
| /mental-wellbeing/ | Subdominio | Mental Health & Wellbeing |
| /our-priorities/european-refer... | Subdominio | European Reference Networks |
| /our-priorities/eurordis-ukrai... | Subdominio | EURORDIS Ukraine Response |
| /our-priorities/rare-cancers/ | Subdominio | Rare Cancers |
| /information-support/what-is-a... | Subdominio | What is a Rare Disease? |
| /information-support/on-your-d... | Subdominio | Information on your Rare Disease |
| /information-support/rare-dise... | Subdominio | Rare Diseases in the Arts |
| /rare-disease-personal-stories/ | | Personal Stories |
| /survey-design-toolkit/ | Subdominio | Survey Design Toolkit for Patient Organisations |
| /information-support/find-info... | Subdominio | FAQ: Rare Disease Medicines |
| /information-support/list-of-t... | Subdominio | List of the Marketing Authorisations |
| /information-support/find-info... | Subdominio Texto ancla | Getting Involved in Medicine Development |
| /information-support/find-a-pa... | Subdominio | Connect with a Patient Organisation |
| /information-support/rare-dise... | Subdominio | Contact Rare Disease Helplines |
| /information-support/find-medi... | Subdominio | Find Medical Expertise |
| /get-involved/become-a-member/ | Subdominio | Become a Member |
| /get-involved/join-the-eurordi... | Subdominio | Join the EURORDIS Round Table of Companies |
| /rare-disease-policy/european-... | Subdominio | Become a Parliamentary Advocate |
| /support-eurordis/ | | Support EURORDIS |
| /get-involved/jobs/ | | Careers |
| https://openacademy.eurordis.org/ | Externo Subdominio | EURORDIS Open Academy |
| /rare-disease-policy/european-... | Subdominio | Rare Disease Week |
| /rare-barometer/english/ | Subdominio | Rare Barometer |
| https://www.rarediseaseday.org/ | Externo Subdominio | Rare Disease Day |
| /category/events/ | Subdominio | Attend Our Events |
| /black-pearl-awards/ | Subdominio | Black Pearl Awards |
| https://www.rare-diseases.eu/ | Externo Subdominio | European Conference on Rare Diseases (ECRD) |
| /who-we-are/our-members/eurord... | Subdominio | Membership Meeting |
| /our-vision-mission | Texto duplicado | Who We Are |
| /who-we-are/our-vision-mission/ | Subdominio Texto duplicado | About EURORDIS |
| /who-we-are/our-history/ | Subdominio Texto duplicado | History |
| /who-we-are/staff/ | Subdominio Texto duplicado | Team |
| /who-we-are/initiatives-progra... | Subdominio Texto duplicado | Initiatives |
| /who-we-are/projects-and-partn... | Subdominio Texto duplicado | Projects & Partnerships |
| /external-representation/ | Subdominio Texto duplicado | Governance Charts & External Representation |
| /who-we-are/board-of-directors/ | Subdominio Texto duplicado | Board of Directors |
| /who-we-are/our-strategy-impact/ | Subdominio Texto duplicado | Strategy & Impact |
| /who-we-are/our-funding/ | Subdominio Texto duplicado | Funding |
| /who-we-are/annual-reports-wor... | Subdominio Texto duplicado | Annual Reports, Statutes & By-Laws |
| /who-we-are/our-members/ | Subdominio Texto duplicado | Members |
| /who-we-are/our-members/nation... | Subdominio Texto duplicado | National Alliances |
| /who-we-are/our-members/europe... | Subdominio Texto duplicado | European Federations |
| /who-we-are/volunteers/ | Subdominio Texto duplicado | Volunteers |
| /rare-disease-policy/ | Subdominio Texto duplicado | Setting the Agenda |
| /rare-disease-policy/mobilisin... | Subdominio Texto duplicado | Mobilising Policymakers |
| /rare-disease-policy/engaging-... | Subdominio Texto duplicado | Engaging the Community |
| /actrare2024/ | Subdominio Texto duplicado | European Elections 2024 |
| /rare-disease-policy/30-millio... | Subdominio Texto duplicado | European Action Plan |
| /our-priorities/diagnosis/ | Subdominio Texto duplicado | Diagnosis |
| /our-priorities/research/ | Subdominio Texto duplicado | Research |
| /our-priorities/holistic-care/ | Subdominio Texto duplicado | Holistic Care |
| /our-priorities/treatments/ | Subdominio Texto duplicado | Treatments |
| /our-priorities/data-and-digit... | Subdominio Texto duplicado | Data and Digital Health |
| /mental-wellbeing/ | Subdominio Texto duplicado | Mental Health & Wellbeing |
| /our-priorities/european-refer... | Subdominio Texto duplicado | European Reference Networks |
| /our-priorities/eurordis-ukrai... | Subdominio Texto duplicado | EURORDIS Ukraine Response |
| /our-priorities/rare-cancers/ | Subdominio Texto duplicado | Rare Cancers |
| /information-support/what-is-a... | Subdominio Texto duplicado | What is a Rare Disease? |
| /information-support/on-your-d... | Subdominio Texto duplicado | Information on your Rare Disease |
| /information-support/rare-dise... | Subdominio Texto duplicado | Rare Diseases in the Arts |
| /rare-disease-personal-stories/ | Texto duplicado | Personal Stories |
| /survey-design-toolkit/ | Subdominio Texto duplicado | Survey Design Toolkit for Patient Organisations |
| /information-support/find-info... | Subdominio Texto duplicado | FAQ: Rare Disease Medicines |
| /information-support/list-of-t... | Subdominio Texto duplicado | List of the Marketing Authorisations |
| /information-support/find-info... | Subdominio Texto ancla Texto duplicado | Getting Involved in Medicine Development |
| /information-support/find-a-pa... | Subdominio Texto duplicado | Connect with a Patient Organisation |
| /information-support/rare-dise... | Subdominio Texto duplicado | Contact Rare Disease Helplines |
| /information-support/find-medi... | Subdominio Texto duplicado | Find Medical Expertise |
| /get-involved/become-a-member/ | Subdominio Texto duplicado | Become a Member |
| /get-involved/join-the-eurordi... | Subdominio Texto duplicado | Join the EURORDIS Round Table of Companies |
| /rare-disease-policy/european-... | Subdominio Texto duplicado | Become a Parliamentary Advocate |
| /support-eurordis/ | Texto duplicado | Support EURORDIS |
| /get-involved/jobs/ | Texto duplicado | Careers |
| https://openacademy.eurordis.org/ | Externo Subdominio Texto duplicado | EURORDIS Open Academy |
| /rare-disease-policy/european-... | Subdominio Texto duplicado | Rare Disease Week |
| /rare-barometer/english/ | Subdominio Texto duplicado | Rare Barometer |
| https://www.rarediseaseday.org/ | Externo Subdominio Texto duplicado | Rare Disease Day |
| /category/events/ | Subdominio Texto duplicado | Attend Our Events |
| /black-pearl-awards/ | Subdominio Texto duplicado | Black Pearl Awards |
| https://www.rare-diseases.eu/ | Externo Subdominio Texto duplicado | European Conference on Rare Diseases (ECRD) |
| /who-we-are/our-members/eurord... | Subdominio Texto duplicado | Membership Meeting |
| /category/newsroom/news/ | Subdominio | News
A-TITLE News |
| /category/events/ | Subdominio Texto duplicado | Events
A-TITLE Events |
| /who-we-are/our-members/ | Subdominio Texto duplicado | Members
A-TITLE Members |
| /resources/ | Subdominio Texto duplicado | Resources
A-TITLE Resources |
| /contact-us/ | Subdominio Texto duplicado | Contact us
A-TITLE Contact us |
| /accessibility-options/ | Subdominio Texto duplicado | Accessibility Options
A-TITLE Accessibility Options |
| https://www.eurordis.org/ | Subdominio Texto duplicado | English |
| https://www.eurordis.org/es/ | Subdominio Texto duplicado | Español |
| https://www.eurordis.org/de/ | Subdominio Texto duplicado | Deutsch |
| https://www.eurordis.org/fr/ | Subdominio Texto duplicado | Français |
| https://www.eurordis.org/it/ | Subdominio Texto duplicado | Italiano |
| https://www.eurordis.org/pt-pt/ | Subdominio Texto duplicado | Português |
| https://www.eurordis.org/ru/ | Subdominio Texto duplicado | Русский |
| https://www.eurordis.org/donate | Subdominio Texto duplicado | Donate |
| /rare-barometer-launches-surve... | Subdominio | Rare Barometer survey on social participation Take the survey |
| /black-pearl-awards/nomination/ | Subdominio | Nominations open for 2025 Black Pearl Awards Nominate now! |
| /rare-on-air/ | | Rare on Air podcast Listen now |
| /10-minutes-with/ | Subdominio | 10 Minutes With... Watch now |
| /category/newsroom/ | Subdominio | View all news |
| /category/events/ | Subdominio | View all events |
| /open-letter-presented-to-euro... | Subdominio | NewsOpen Letter signed by thousands across rare disease community presented to European Commission 23 July 2024, Brussels – EURORDIS-Rare Diseases Europe has... |
| /black-pearl-awards-over-the-y... | Subdominio | NewsNights to remember: the Black Pearl Awards over the years Since 2012, the Black Pearl Awards have honoured the outstanding achievements of the rare disea... |
| /rare-barometer-launches-surve... | Subdominio | NewsRare Barometer survey launched on rare diseases and social participation Rare Barometer, the survey initiative of EURORDIS has launched a new global surv... |
| /eurordis-welcomes-epsco-call/ | Subdominio | Press releaseEURORDIS welcomes EPSCO call for inclusion of health priorities in EU Strategic AgendaEURORDIS responds to the unanimous conclusions reached by ... |
| /eu4health-must-recognise-adde... | Subdominio | Press releaseEURORDIS: EU4Health must recognise added value of EU action on rare diseasesEURORDIS urges the European Commission to address rare diseases in t... |
| /european-parliament-elections... | Subdominio | NewsEuropean Parliament Elections 2024: What They Mean for Rare Disease Advocacy This year’s elections have brought about changes that will undoubtedly impac... |
| /who-we-are/our-members/ | | 74 countries View more |
| /european-or-international-fed... | | 80 European federations of specific rare diseases View more |
| /national-alliances-for-rare-d... | | 55 National alliances of rare disease patient organisations View more |
| /who-we-are/our-members/ | | 1,000 +member patient organisations View more |
| /information-support/find-a-pa... | | Image ALT text Outreach to over2,500patient groups View more |
| /who-we-are/volunteers/ | | Image ALT text over 400volunteers View more |
| /who-we-are/our-members/ | | 74 countries |
| /european-or-international-fed... | | 80 European federations of specific rare diseases |
| /national-alliances-for-rare-d... | | 55 National alliances of rare disease patient organisations |
| /who-we-are/our-members/ | | 1,000 +member patient organisations |
| /information-support/find-a-pa... | | Outreach to over2,500patient groups |
| /who-we-are/volunteers/ | | over 400volunteers |
| /get-involved/become-a-member/ | Subdominio | Become a member |
| /who-we-are/our-members/ | Subdominio | Our members |
| /category/events/?keywordSearc... | Subdominio | Members events |
| /newsletter-signup/ | | Subscribe |
| https://www.facebook.com/eurordis | Nueva ventana Externo Subdominio | Facebook |
| https://twitter.com/eurordis | Nueva ventana Externo | Twitter |
| https://www.instagram.com/euro... | Nueva ventana Externo Subdominio | Instagram |
| https://www.linkedin.com/compa... | Nueva ventana Externo Subdominio | LinkedIn |
| /contact-us | | IMG-ALT Our offices |
| /who-we-are/our-vision-mission/ | | Who we are? |
| /rare-disease-policy/ | | Our priorities |
| /information-support/what-is-a... | | Information & Support |
| /support-eurordis/ | | Get Involved |
| /category/news/ | Texto duplicado | News |
| /category/events/ | Texto duplicado | Events |
| /who-we-are/our-members/ | Texto duplicado | Members |
| /resources/ | Texto duplicado | Resources |
| /contact-us/ | Texto duplicado | Contact us |
| /cookie-policy/ | Subdominio | Cookie Policy |
| /privacy-policy/ | Subdominio | Privacy Policy |
| /terms-conditions/ | Subdominio | Terms & Conditions |
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